Search results

  1. R

    Michael Sharpe skewered by @JohntheJack on Twitter

    Important to note that Godwin’s Law makes no judgement about the appropriateness of references to Hitler. It was just an observation that “As an online discussion grows longer, the probability of a comparison involving Hitler approaches 1.” If I was feeling a bit better I would write more about...
  2. R

    Analysis of data from 500k individuals in UK Biobank shows an inherited component to ME/CFS (Ponting blog)

    That sounds very like a tautology to me. The UK Biobank study found what it had the power to find, as would any study with any number of participants. I’m not sure I understand the second bit. Are we not discussing separate genetic contributions to a disease? Let’s assume 5% of the 0.445% (for...
  3. R

    Michael Sharpe skewered by @JohntheJack on Twitter

    I think he means independent in the same way that Cochrane is independent. For anyone who is not aware, in 2106, giving evidence under oath in defence of QMUL, Chalder stated: “disclosure to the Cochrane review does not count as disclosure to independent scientists as all three of the PACE...
  4. R

    Michael Sharpe skewered by @JohntheJack on Twitter

    Yes, I think that’s what happened. And Godwin seems to have realised that too. I agree. It would be unfortunate if Godwin was deterred from further engagement/involvement. He is clearly interested and appears to have taken in a great deal of information (which he requested) in a very short...
  5. R

    Michael Sharpe skewered by @JohntheJack on Twitter

    Mike continued... “None of the foregoing is a defense of the PACE trial, which, based on my current understanding, seems so profoundly flawed that it cannot be trusted. Nor is it a defense of researchers who should have been more rigorous. But humility is good practice for all of us, and ...
  6. R

    Michael Sharpe skewered by @JohntheJack on Twitter

    @Mike Godwin continued (apologies if I’ve got these tweets in wrong order): “I think humility is good for everyone, generally speaking. There are many medical conditions whose aetiology is mysterious or at least ambiguous. Symptoms, and strategies for treating the symptoms, may vary among...
  7. R

    Michael Sharpe skewered by @JohntheJack on Twitter

    I was impressed that you remembered! Hope you enjoyed it. Meanwhile, Mike Godwin’s responses are encouraging:
  8. R

    Michael Sharpe skewered by @JohntheJack on Twitter

    Seems he’s also an old pal of Omar! He’s now been sent dozens of links (including those to Steve Lubet’s excellent open letter to SW) and appears to be receptive:
  9. R

    Analysis of data from 500k individuals in UK Biobank shows an inherited component to ME/CFS (Ponting blog)

    Would it not be an approximately even chance if you know about 100 people?
  10. R

    Analysis of data from 500k individuals in UK Biobank shows an inherited component to ME/CFS (Ponting blog)

    Thanks. The bit I had not understood was more basic but having read your answer and re-read the blog I think I understand: This study suggests people with ME are more likely to have valine instead of aspartic acid in a particular part of the P4HA1 protein. However, other species (such as the...
  11. R

    Analysis of data from 500k individuals in UK Biobank shows an inherited component to ME/CFS (Ponting blog)

    This is a repetition of what I’ve just written on the blog (awaiting moderation): Many thanks for this blog, @Simon M n and @Chris Ponting. Very interesting and informative. Some questions: 1) I’ve just had a quick look at the UK Biobank website but I couldn’t see how patients were recruited...
  12. R

    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    I see they are recruiting for a double blind trial of Q10 + NADH in Barcelona: https://clinicaltrials.gov/ct2/show/NCT03186027
  13. R

    Letter from parents of children with ME to paediatricians in the UK

    Is this quote attributable to anyone? I would love to be able to quote this. The song has had quite a few views but it seems to have struggled to get beyond the ME community bubble. Most to the people who have commented, liked or shared it seem to have been people with ME. Where Jen has...
  14. R

    Michael Sharpe skewered by @JohntheJack on Twitter

    Regardless of whether or not it is worth engaging with Prof Sharpe on Twitter, I think his second question is important, as it is one that many may ask and some may struggle to answer satisfactory: I think I understand most of the reasons why the differences in responses do not provide...
  15. R

    Michael Sharpe skewered by @JohntheJack on Twitter

    I wonder if Sharpe’s motivation for these exchanges is to induce inaccurate criticisms and abusive comments so that he can use them to discredit/smear his critics. I am torn between challenging him and ignoring him for reasons given by others above. It’s a shame he can’t be persuaded to discuss...
  16. R

    Michael Sharpe skewered by @JohntheJack on Twitter

    If you click on the tweet, the heading that is generated in the preview of the article is: “All in the mind? ME can be cured by counselling, says Oxford Professor,” which is where I took it from. But you are right to point out that the exact quote is not currently repeated in the article...
  17. R

    CDC responds to false SMC factsheet claim

    Reply from the CDC CFS Program: “The CDC CFS program did not have correspondence with the SMC.”
  18. R

    CDC responds to false SMC factsheet claim

    I see that the Countess of Mar has now reported the SMC to the charities commission. Minutes of the last Forward ME meeting state: Forward ME minutes: http://www.forward-me.org.uk/1st May 2018.htm Discussion of Forward ME minutes on S4ME...
  19. R

    Letter in The Times (UK) on ME research

    Pleased to report that The Times has published my letter about the lack of investment in biomedical ME research: https://www.thetimes.co.uk/edition/comment/brexit-s-self-inflicted-wound-on-uk-s-future-vksr9j2jw It appears in Wednesday’s edition. The omission of “most” is their error.
Back
Top Bottom