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That is what I thought but I’ve not managed to follow the research as closely as I would like and I wondered if I had missed something. It is very frustrating and concerning to me when scientists present conjecture (and in some cases falsehoods) as facts. I don’t know if this happens more in ME...

The ME Biobank use a Tanita machine for calculating BMR (see: https://tanita.eu/help-guides/understanding-your-measurements/basal-metabolic-rate/). I've no idea how accurate or useful it is. I'm guessing that if low metabolic age had been a common observation in people with ME, and was deemed to...

From the Naviaux’s website: As a non-scientist patient this makes sense to me as a possible explanation for how I feel. What I am not clear about is how much is conjecture and how much is established scientific fact. Have Naviaux’s findings which suggest that ME/CFS is a “dauer-like metabolic...

Dr Byron Hyde surrenders his medical license (S4ME thread, August 2019): https://www.s4me.info/threads/dr-byron-hyde-surrenders-his-medical-license.10892/

@dave30th I don’t know if you’ve had a reply from Dr Ghebreyesus but I wanted to bring this thread to your attention, and particularly the information that @Dx Revision Watch has shared about attempts by different orgs to communicate with WHO in recent years. [Edit: link removed from my...

You could mention the CureME LSHTM study: https://cureme.lshtm.ac.uk/covid-19-our-work-thus-far/ The above article also references this study at the University of Leicester...

The Economist (free to read): When covid-19 becomes a chronic illness: https://www.economist.com/science-and-technology/2020/08/22/when-covid-19-becomes-a-chronic-illness Screenshots in case anyone can’t access:

Your comment has now been published on the site: https://www.evidentlycochrane.net/treatments-can-harm/ It will be interesting to see if Selena responds as she has below the other comment.

This letter in today’s FT took me all day to write and I suffered for the exertion but I hope it was worth it. I decided that it would have a better chance of being published if I didn’t name the KCL psychiatrist in question. When writing letters for publication it’s always a compromise...

I missed this gem the first time I read the FT article: I wonder if Dr Nicholson is aware that his KCL colleague and “expert in the field” once claimed: “we believe that understanding of the postviral fatigue syndrome has been hindered by doctors who suffer from the condition also researching...

FT article: Fatigue plagues thousands suffering post-coronavirus symptoms ‘Long-haul Covid’ has already become mired in controversy over causes and treatment https://www.ft.com/content/8a8c9630-7cce-417a-8732-f0589009be14 I managed to access this article for free by using an incognito browser...

https://www.theguardian.com/commentisfree/2020/aug/02/observer-letters-russian-meddling-is-at-the-heart-of-brexit

No surprise to see Dr Gerada congratulating her friend Claire Fox on her peerage and praising her “amazing work” and “honesty”. At least it wasn’t Fox congratulating Gerada or her husband.

Free access: Main article: Helen Salisbury: When will we be well again?: https://www.bmj.com/content/369/bmj.m2490/rr-0 Rapid Response from Williams, Muirhead and Pariente: https://www.bmj.com/content/369/bmj.m2490/rr-0 Rapid response from Michael Peel, GP...

Yes, that’s me. Thanks for sharing. I only just seen it. It is somewhat edited. It’s not a big deal but I didn’t write that CFS is “also known as myalgic encephalomyelitis (ME)”. My original letter only referred to ME/CFS so I understand why they felt the need to expand it but I wouldn’t have...

I sense that Debby Bogaert (professor of paediatric infectious diseases at Edinburgh University, who wrote a Guardian article on her experience as a post-covid “long-hauler”) may be on a similar journey of understanding to Prof Garner: Although I agree with Prof Bogaert, I’m not sure if she...

Thanks. Email received, but it says it’s from The ME/CFS Biomedical Partnership. Might be a good idea to change the name on the account that’s sending the emails to DecodeME.

The Unherd article by Stuart Ritchie that Hilda links to (“There should never be heroes in science”) is very interesting. Here are some quotes (my bold): “Stuart Ritchie is a Lecturer in the Social, Genetic and Developmental Psychiatry Centre at King’s College London. His new book, Science...

My evidence-based medicine heroes are the ME patients like Alem, Tom and Bob who have challenged the medical establishment with scientific and legal arguments, and the few disinterested academics and scientists like David and Jonathan who have chosen to stand up for people with ME, truth and the...

I see that Paul Garner’s blog is the most read article on the BMJ Opion website. It has over 8,840 shares on Facebook. The second most read article has 1,350 share and the third has 120. I hope this may alert the BMJ to the importance of these issues he raises. Please keep sharing. And please...