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Al Jazeera A world forever transformed: Life with Long COVID Quote: There is vulnerability, too, to the aftershock of Long COVID, to suffering from a disease that appears on medical records like a specter. Is it there? Can we prove it? Long COVID’s symptoms are amorphous, its timeline...

Thank you for sharing the links @Ravn This is nightmarish stuff indeed. Just adding a quote from the article "Sick in a health care system on the wrong track" and adding that if you want to read Marie Louise's own account of a stay at Aarhus University Hospital it's the last of the links @Ravn...

Great! Haven't watched this talk by Anne Kielland, but have seen previous talks from her. She is working on an ongoing research project about health care services and ME and really gets what the problematic aspects are, so should be worth watching.

Professor Mady Hornig's lecture at the conference has now been uploaded to YouTube. Title: Robust evidence for ME as a biological disease. Immune signatures in ME suggest immune dysregulation CNS as a function of subgroup and disease course. Duration: 39 minutes Language: English + subtitles...

@Tom Kindlon skimmed more thoroughly and shared the following comments on Twitter: - New CPD course on #MyalgicEncephalomyelitis /#ChronicFatigueSyndrome for healthcare professionals I quickly skimmed the slides & noticed under fatigue "goal-directed & non-fatiguing exercise" which I wouldn't...

Just skimmed this, but looks good.

Released: 12/21/2021 A Fresh Look at Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Diagnosis and Management of a Multisystem Illness This activity is intended for primary care physicians, nurses, nurse practitioners, and other healthcare providers (HCPs) involved in the diagnosis and...

Interview with professor Brendan Delaney from the Faculty of Medicine at Imperial College London: IPS 'With Long Covid, there's a minimisation push' quote: From a policy perspective, it would be naïve to think that SARS-CoV-2 would be different from other various infections. Unfortunately...

More pushback from Scandinavia. This time in a Danish medical newspaper interviewing Marianne Rosendal, senior researcher, specialist in general medicine at the Department of Functional Disorders at Aarhus University Hospital and front person for the Danish Society for Functional Disorders...

Professor Kringlen has received another reply. This time from the professors Ola Didrik Saugstad and Rolf Rønning titled The High Priest of the Humiliators. They say Kringlen is making fun of several diagnoses which he believes were created by the patients themselves and their doctors. They...

A great answer today from ME patients saying that the NICE guidelines gives them hope. They don't find it right that Recovery Norge with their 260 members should raise themselves above biomedical research, health authorities from other countries and the Norwegian ME Association's near 6 000...

MD and professor Petter C. Borchgrevink has written a short and rather sharp reply accusing psychiatrist Kringlen for despising patients and for insinuating that ME patients are simulating their illness. He says it's obvious that Kringlen has not kept himself updated for many years when it comes...

The Norwegian public broadcaster has today an article about a treatment offer in Bergen municipality for Long Covid. It is run by a physiotherapist and an occupational therapist who saw the need for rehabilitation for these patients, but that a suitable offer for the patient group was lacking...

Professor in social policy, Rolf Rønning, has written an interesting opinion piece for the newspaper Dagsavisen about why ME patients became an underclass in healthcare. Quotes: I have been following social policy debates in Norway for fifty years. A year ago, I began to familiarize myself...

A frustrating opinion piece in the Norwegian newspaper Klassekampen today by psychiatrist Einar Kringlen. He's an old school psychiatrist who has rejected ME for decades. The article is paywalled, so here's a summary: He claims ME are among many diagnoses that isn't listed in ICD-10 or DSM-III...

George Monbiot said on Twitter yesterday that he's keen to write about the NICE guideline, but overworked and exhausted.

The authors are from the same university, probably even same department, where the Lightning Process study was supposed to be led from before its ethical approval was removed. Are they paving the way for a new attempt?

Danish news report today of a study on long term symptoms in children post covid-19 infection. Aalborg University Hospital presents the study on their website and writes that sequelae after covid-19 infection in adults have been thoroughly examined and described (sic), but that until now the...

Patient advocate Sissel Sunde was recently interviewed in a local Norwegian newspaper about her disease. Summary here in the Scandinavian thread. She talked about the different ME treatments she had tried, among other the treatment provided by psychiatrist Bjarte Stubhaug who authored the study...

Moved from the general Long Covid thread. Reviews in Medical Virology Proposed subtypes of post-COVID-19 syndrome (or long-COVID) and their respective potential therapies by Shin Jie Yong, Shiliang Liu Summary The effects of coronavirus disease 2019 (COVID-19), a highly transmissible...