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  1. Kalliope

    Caught up in Care: Crafting Moral Subjects of Chronic Fatigue, Risor and Lillevoll, 2021

    This is how they describe the CFS/ME-team's interdisciplinary approach to "pacing" The patient's stories are sad to read. The shame and self blaming of not being able to live up to society's and one's own expectations of activity and productivity.
  2. Kalliope

    Cognitive Behavioural Therapy for chronic fatigue and CFS: outcomes from a specialist clinic in the UK (2020) Adamson, Wessely, Chalder

    The Science Bit: Apart from the sampling ambiguity, weak measurement, survivor bias, missing data, and lack of control group, the study wasn't that bad
  3. Kalliope

    Cognitive Behavioural Therapy for chronic fatigue and CFS: outcomes from a specialist clinic in the UK (2020) Adamson, Wessely, Chalder

    Trial by Error: Hughes-Tuller Comment of Wessely-Chalder CBT Study Rejected by Journal, Posted Here
  4. Kalliope

    News from Scandinavia

    A good opinion piece today from civil engineer and ME patient Benedikte Monrad-Krohn published at forskningno, a news site about research. "ME-krigen" trenger ikke å være en krig google translation: The "ME war" doesn't have to be a war
  5. Kalliope

    BPS attempts at psychologizing Long Covid

    The Norwegian newspaper Bergens Tidende has a paywalled article today about rehabilitation of Covid-19 patients at the institution "Health in Hardanger" (Helse in Hardanger). Specialist in heart- and lung physiotherapy, Bente Frisk, says in the article that there aren't any large studies, but...
  6. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Good to see the following message on exercise and PEM coming across from dr. Daniel Griffith in his latest clinical updated at TWIV (at 19.20 min) I also want to talk a little bit about treatment here. I still find it frustrating, I’m sure a lot of our listeners who have Long Covid find it...
  7. Kalliope

    British Medical Association article: Long Covid - we've been here before, 2021, J. Trueland

    Splendid article with interviews with Nina Muirhead, David Strain, Charles Shepherd and Amy Small. Thank you to those who contributed! When it was becoming clear that COVID-19 was a serious issue early last year, Nina Muirhead (pictured) had a strong suspicion about what would happen next. As...
  8. Kalliope

    BPS attempts at psychologizing Long Covid

    The Norwegian newspaper Dagbladet had a paywalled article on Monday about Long Covid where they've interviewed among others prof. Vegard Bratholm Wyller who apparently is going to do research on this patient group :( Seems he will be building on his previous research on Epstein Barr infection...
  9. Kalliope

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    The national competence service for CFS/ME in Norway (known for a BPS approach) submitted a commentary to the draft NICE guidelines. It's available under the headline "news" (Nyheter) at their website. Here is direct link to their commentary...
  10. Kalliope

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Sharing just to show how Garner's blog post is being used as an example for everyone.
  11. Kalliope

    ME Ireland: Online Talk and Q&A with Dr Hanne Thurmer

    I've listened to it now. The title for dr. Thürmer's talk was: ME/CFS/SEID a Norwegian perspective She spoke about her background and gave some basic facts on different names and criteria for ME. That ME and fatigue are different. The IOM report. General (lack of) knowledge about ME among...
  12. Kalliope

    ME Ireland: Online Talk and Q&A with Dr Hanne Thurmer

    Don't think this has been posted here yet? Hanne Thürmer is a Norwegian cardiologist and one of the researchers of the RituxME-trial. Haven't seen the talk yet, but she's very knowledgeable about ME and sympathetic, so this should be good!
  13. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Unbelievable! Fitting name though, Reklame literally means advertising in Norwegian..
  14. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The Japan Times Japanese doctors warn of long-lasting COVID-19 aftereffects among young people It is important for people who have recovered from COVID-19 to refrain from exercising for a while, Hirahata said, warning that just taking a walk can cause their condition to deteriorate. “In one...
  15. Kalliope

    Nat Commun - Early-life-trauma triggers interferon-β resistance and neurodegeneration in a MS model via down regulated β1-adrenergic signaling - Khaw

    A Norwegian news site about research has an article today about this study. Khaw and colleagues took some of the mice away from their mother for several days while they were young, and also gave them injections of saline. This is how they inflicted both mental and physical stress on the mice...
  16. Kalliope

    Nat Commun - Early-life-trauma triggers interferon-β resistance and neurodegeneration in a MS model via down regulated β1-adrenergic signaling - Khaw

    Nature Communications: Early-life-trauma triggers interferon-β resistance and neurodegeneration in a multiple sclerosis model via downregulated β1-adrenergic signaling - Yee Ming Khaw et al Abstract Environmental triggers have important functions in multiple sclerosis (MS) susceptibility...
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