Search results

Saw a video about this not long ago. Has a few drawings from those affected showing what they see. They can tell the difference because they don't see the same thing when looking at photos, IIRC. Easy to see why they'd call what they see demonic. I wonder if there's something similar going on...

Which is all really unfortunate. We have to lose perfectly acceptable terminology because every term has been abused away from its intended meaning. Syndromes should not be taken as meaning trivial. SARS is a syndrome, so is AIDS and many other terrible conditions. But the word really is...

So some people may have noticed that the US Congress budget outline has been published by the US Senate. There is almost no mention of Long Covid or ME/CFS besides a few agencies being "urged to X" and so on. To massive disappointment. And that's because it's a separate bill: The Long COVID...

That I guess can be argued. But it would take a huge suspension of disbelief to buy it. Her decline was over many years, then again into life-threatening over several months. There was also ample testimony about how she declined every time she got to the hospital, how bad it was for her overall...

I'm a bit confused as to what the... hospital?... I'm not sure who is the investigated party here, is arguing about how the death was not preventable. All their contemporaneous notes reflect their certainty that there was nothing physically wrong with her and there was ample testimony that she...

There are some really good bits in there. Like explaining how there is no reason to change, especially not for the sake of performative "we did a thing as professionals", since it brings nothing at all. And also recognition that the patient community did all the early work. And this:

You can almost hear the cash registers DING loudly from CBT businesses. So much money will be wasted on the usual EBM crap that doesn't work but has been sold to work so they don't have a choice to keep it propped up. If you could do the thing, you could indeed do the thing. But you can't do...

The irony of talking about modifiable lifestyle factors when everyone is encouraged by public health authorities to spread infectious illnesses like it's a competition. Because the main factor here, the one that offers 100% protection, is... not catching COVID. And people are pretty much...

A comprehensive report from a National Academies of Science, Engineering and Medicine committee, with a clear summary published in the New England Journal of Medicine, one of the most influential academic journals in the world, and I'm not even sure it will make a difference. This is more...

Even more notable though is that this only confirms all the early research and reports from hundreds of thousands of patients. Medicine has been in a holding pattern, refusing to act on it, but it was always correct. This says nothing more than the very first paper published by the Body Politic...

This is not the correct interpretation, there is no reason to think that it works in some and not others, not when natural remissions and recoveries are this common, which is well-documented. What this says is that any form of rehabilitation is useless here, that convalescence is more conducive...

One of the worst I have ever seen. Completely asinine excuse. This is a system in complete shambles.

I've come to think of: the belief that anything can cause any symptoms mimicking illness and anything can undo it, as long as the patient believes in it. And by anything in both cases I literally mean anything. I've seen so many dumb excuses put forward in both cases to be certain that there is...

Only technology matters, the alternative is perception. Once you get to the level of perception you've already lost. Not because it can't work, but because everything has been built around needing specific technology, even where those responsible refuse to build it. And with the current...

I don't think it's dissenting. There definitely is a lot of genuine trauma, I just think that the bar should be set much tighter than this. Setting it at the level of trauma is a lot like justifying a preventable disaster was acceptable because no one died, or not everyone did. We saw the exact...

I didn't bookmark any info but from what I gather today is the day that budget decisions about LC funding is being decided. There was a call for advocates to be present, send messages or phone. Not sure if anyone has more details. Edit: found one. Includes a list of senators to call and the...

Every hospital in the world has signs and rules about noise: be quiet. It's heavily enforced by staff and with good reasons. They understand all the basics involved here, they're just trained to ignore them because of the psychological exemption. This is what the comments about 'medicalizing'...

So far from the comments there is no indication that anyone involved thought that they did anything wrong. Some clearly think that others, generally, didn't do everything right, but no one seems to find fault with their own behavior. When no one did anything wrong, there is nothing to change...

Trauma isn't the right word here. Again. The misuse of language in health care is shockingly disastrous. It's as if language itself is stripped of its intended usage. In some cases there may be something that can be described as traumatic, but the real issue is a far larger mass of needless...

Putting aside that most pharmaceuticals here are useless, this isn't any different than what a physician from antiquity may work with. It's not fundamentally different anyway. Like maybe the difference that a plow with metal at the right places vs a fully wooden one. Most of it is simply not...