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  1. rvallee

    Review The vicious cycle of [FND]s: a synthesis of healthcare professionals’ views on working with patients, 2020, Barnett, Tyson et al

    The denial is really strong here. It cites "misperceptions" as a negative factor, but is utterly oblivious to the fact that no matter how they try to disguise their dog whistle to the patients, the MDs understand perfectly what is meant here and they will never respect it. They understand...
  2. rvallee

    Trial Report Bulk RNA sequencing for analysis of post COVID-19 condition in adolescents and young adults, 2024, Sommen

    Given this, how does it even make sense to do RNA analysis? What possible relevance could this possibly have in a "long lockdown" model? Or I guess the philosopher's stone of psychosomatic ideologues everywhere is finding evidence of psychology influencing biology, nevermind that in all cases...
  3. rvallee

    Trial Report The presence of attentional and interpretation biases in patients with severe MS-related fatigue (also ME/CFS), 2024, Knoop, Moss-Morris et al

    Ironic choice of words: I guess in our case it's not understandable. Which is kinda true, they don't understand it. But that's irrelevant, it's not possible to understand everything, and nothing they do will lead them to that. All they're doing is showing their extreme biases and how utterly...
  4. rvallee

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    The plot thickens. Long investigative report, but worth the read if interested: Unraveling Havana Syndrome: New evidence links the GRU's assassination Unit 29155 to mysterious attacks on U.S. officials and their families. A shorter summary, 60 minutes is behind much of that investigation...
  5. rvallee

    News from Scandinavia

    Not fundamentally different than the brain retraining or phone call epiphany people. The most annoying part of this is that I occasionally see similar spontaneous recovery reports on the LC sub-reddit. This tells us something. However unlike the religious awakening story here, most of them...
  6. rvallee

    The biology of coronavirus COVID-19 - including research and treatments

    Maybe nitpicky again but dammit people feel the wind most days, there's no need to make things more mysterious than they are :laugh:
  7. rvallee

    Post-Exertional Malaise - a discussion including defining and measuring PEM

    Maybe nitpicking but: not necessarily. It's just what happens when muscles are used beyond their current ability. It happens when someone who hasn't lifted weight for years does a few series with 15 lbs, and it also happens when someone who is doing so regularly goes from 150 lbs to 160 lbs. So...
  8. rvallee

    News from Australia

    "I'm sorry you got offended" is the non-apologiest of fake apologies.
  9. rvallee

    Trial Report The presence of attentional and interpretation biases in patients with severe MS-related fatigue (also ME/CFS), 2024, Knoop, Moss-Morris et al

    Same old laughable rubbish that actually makes the Stanford Prison Experiment look tame and wise by comparison. None of this even makes sense. They present their BPS stuff as holistic, but then go on pretending like a few millisecond more or less pressing a button when presented arbitrary words...
  10. rvallee

    The causes that aren't genetic or pathogenic

    Most of the pathogens we come in contact with, it's the first time we ever encountered them. There are so many out there. Trillions and trillions and combinations and permutations among many of those we regularly come into contact with. I don't think that's especially relevant. It's too easy a...
  11. rvallee

    The causes that aren't genetic or pathogenic

    Somewhat, unfortunately leaves out a lot of space, like the entirety of psychosomatic ideology. Basically, they accept it, except where they don't, and where they don't want to, they do the exact opposite of what needs to be done. I guess that's the real problem, that it's not enough to accept...
  12. rvallee

    The causes that aren't genetic or pathogenic

    Most of the population carries H. Pylori. Most of the population never develops peptic ulcers. Similar with EBV, in some cases causing mono, in most not, in some cases leading to ME, in some cases after mono, in some cases without it, in most not. Some people die from a falling piano and other...
  13. rvallee

    Video: Who Funds Research? | Why The Charity Sector is Vital For Long Covid & ME/CFS

    Although 100% true, that's the difference that a discriminated "not even a real disease" makes. We could easily raise those funds if we had the support of the medical profession. But we have their hostile indifference, the main actors telling people that investing in the necessary research we...
  14. rvallee

    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    Key recommendations: "alternative targeted treatment strategies and new hope for recovery". Good. Grief. This is what having given up years ago looks like, long after it's been left to fester and decay.
  15. rvallee

    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    There was a NHS-organized Long Covid conference yesterday, and one of the presentations from a clinic lists Curable as one of the things they prescribe, or use, or whatever. The colors they chose are really unhelpful, but it even looks like it's the most common from this service.
  16. rvallee

    Review Long Covid in Aotearoa NZ: Risk assessment and preventive action urgently needed, 2024, Kvalsvig et al

    To be fair, if we did spend the money on that and other things, billionaires may have to do away with having to live on only 4 yachts, instead of 6, millionaires may have to see their wine cave almost half empty, and that's just clearly not a future worth living. Think of the crew of the other 2...
  17. rvallee

    In major dysmood disorder, physiosomatic, chronic fatigue and fibromyalgia symptoms are driven by immune activation and... 2024 Maes et al

    One of the growing paradigms in AI is Mixture of Experts (MoE), a technique where various independent models are asked the same question and a general language model takes the various inputs and chooses what is most relevant in a single response. I'm not sure this technique would give anything...
  18. rvallee

    Clinical effectiveness of an online group physical & mental health rehab programme for post-covid-19 condition REGAIN study, 2024, McGregor+

    There was a NHS-organized Long Covid conference (clearly to the surprise of everyone, it doesn't seem to have been announced beforehand) and McGregor presented the results of REGAIN as being positive, he even included the truncated axis that is a thing only done shadily, so I doubt he or BMJ...
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