Search results

  1. rvallee

    Making a 'Charter for Ethical ME/CFS Research'

    Right now, people have already been doing that for decades and they do not have our interests in mind. It's not ideal, but someone always makes the decisions in the end, if those decisions go explicitly against our interests, if the people making those decisions do not have a stake in our...
  2. rvallee

    Making a 'Charter for Ethical ME/CFS Research'

    All science is political. All of it, even more so when it comes to health. It would be amazing if it were above it, but it's not. Scientists and MDs are humans, with all the flaws and nonsense that comes with it. When it comes to medicine, I'd even say that it's more political than scientific...
  3. rvallee

    Management of severe ME/CFS in children and young people in the UK: a British Paediatric Surveillance Unit study, 2024, Royston et al.

    Similar to Wessely and PACE being his brain-child, having heavily participated in it, but did not put his name anywhere near the published material, then wrote an editorial pretending to be some neutral observer marveling at how great a study it was. Given her role, Crawley should have been a...
  4. rvallee

    UK, Guardian, Oversensitive and overreactive: what is nervous system dysregulation and how can it be resolved? 2024

    Impressive. Old Freudian nonsense. Pushes alternative "holistic healing". Frames it entirely as emotional symptoms in response to distress and conflict. Zero mention of COVID, or how it's such a common Long Covid issue. It even mentions how it's more prevalent these days, how more people are...
  5. rvallee

    Forensic assessment of somatoform and functional neurological disorders 2024 Datta and Blum

    Almost annoyed that I can't read it, because wow are the so many layers of wrong. Starting with the word forensic, which is the investigation of a crime. And of course the fact that most forensic "science" has been revealed to be pseudoscience of almost zero validity. Their wild claims of being...
  6. rvallee

    Burnout, Compassion Fatigue, and the Long Haul of Caring for Long COVID, 2024, Ramers et al

    I don't want my emotional needs to be met by clinicians. I could not care less about this, it's not going to happen anyway, this is not what medicine is for. Certainly not as long as they work in a system that is responsible for failing and mistreating us. I also don't care about hearing simple...
  7. rvallee

    [MUS] are common in women in tertiary neurological healthcare center: A survey cohort study of persons investigated for suspected [MS] 2024 Novakova+

    So, in a MS clinic, patients suspected to have MS based on having MS-like symptoms without a definitive explanation, 17% of which received an alternative diagnosis, some are found to have MS-like symptoms based on asking them about MS-like symptoms even though the diagnosis cannot be confirmed...
  8. rvallee

    Prevalence of orthostatic intolerance in long covid clinic patients and healthy volunteers: A multicenter study, 2024, Cassie Lee, Darren

    Well, you first have to figure that out, having refused for decades to even try, or even acknowledge that this is a thing that happens to people after infections, even mild ones, and that it's not 'biopsychosocial', or whatever. If you want the result of effort you have to put in the effort...
  9. rvallee

    Management of severe ME/CFS in children and young people in the UK: a British Paediatric Surveillance Unit study, 2024, Royston et al.

    So, this is a study of care providers using a now defunct guideline who show no useful knowledge of ME, severe or otherwise. So this is by definition only patients who are under someone's care, which is a minority, and they are overseen using a harmful care model that was deprecated between the...
  10. rvallee

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    They don't need grants, they're using the intramural fund. So not only are they wasting this funding, they're wasting funding that is supposed to be going to serious research. It's just as insulting as Rosmalen getting funds that were explicitly written to exclude anything psychosomatic. We all...
Back
Top Bottom