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If there's a reply to it, I'd really like it if they could expand what they mean by "we are still investigating". What are they investigating? How? Who? What does that mean? Because so far they have pretty much shown that we can't take their word for anything, and they're asking us to do just...

That is so ridiculous. There has never been a time when the world was all roses and joy. But this can only be read as an admission of failure for his model, which I doubt he understands or would agree with. It's true that mental health care is terrible and doesn't deliver. But it should be...

They have not and I think it would be useful to put it to them plainly. The most common excuse for decades has been that this has been the opinion of a few radicals, and is not representative of most patients. This is false. This petition has the support of most of the patient organizations in...

Pretty much as we suspected, they wasted 4 years by refusing to look at the forbidden knowledge. For ridiculous reasons. Not even a talking snake involved. Well OK maybe a few talking snakes but they have legs and are oddly humanoid in shape. Probably wasted $1B in the process. I mean we saw it...

Not too sure of the details but my understanding is that the German government will be announcing a decision about off-label use of some medications for Long Covid to accelerate finding effective treatments, but word is that non-COVID ME/CFS will be left off. This announcement will be next...

I think there's something really interesting there. Over the years I have seen this reported so commonly by long haulers and it's a very strong effect when it happens. I can't imagine there isn't a way to objectively make sense of it.

If my memory serves me, I think that those materials are all preserved on the PACE trial website. In fact they have been referenced positively many times since, including a recent update of CFS guidelines in Australia. They don't seem to mind their own words being used against them. They're...

They only looked at clinical trials and systematic reviews of clinical trials. Somehow labeled as randomized controlled trials even though almost none of them are. It's basically, what, the tier 2 Rituximab trial and maybe a handful about supplements? All the others are open label randomized...

It's in the investment section, so that's fitting. But for sure there are likely issues with regulators here. Financial investors have far better protections against fraud than sick people have for health care. I had never seen this guy on social media before, but saw him the other shilling for...

Is it still largely considered a social contagion phenomenon? Initially that's mostly what I saw out of Sweden, eager to dismiss anything that contradicted the pursuit of herd immunity through mass infections. Last I saw it mostly laughed at publicly. "Our new public health disease" seems to be...

ABC news posted it on twitter and almost all the comments are either "it's the vaccines" or "it's the lockdowns / breakdown of society because of pandemic measures". As is tradition. And as we know, most MDs seem to have the same opinion. It's a complete omerta on the medical forums, where any...

Reads more like the old trope of goal-setting to me. It certainly fits with the "they can do anything they want, they just think they can't", and that putting it in writing provides the motivation to blah-blah-whatever. Damn is hope just being used as a toxic weapon nowadays.

Fits with the overall pattern of enshittification of medical research. Too much of the research itself is now mostly clickbait. Then the articles covering it are even worse clickbait. They money keeps pouring into it, and nothing comes out of it since it produces nothing. Evidence-based medicine...

I have not. Not sure if they know any better, they're very small and mostly just do meet-ups.

Significant? Very. Has the significance made any difference? No. LC research has pretty much validated decades of research on ME/CFS. This is highly significant. Looking back at everything we knew before, there was a very blurry picture and LC has made it in full focus, clear and crisp. The...

Given the atrocious state of research on both issues, how this is basically bunching up bad evidence and concluding whatever they want, this is a good example of yes, yes, two wrongs don't make a right but what about, like, dozens of wrongs? Nope. Still doesn't make it right. Might as well be...

I don't know if anyone has the energy, or the motivation knowing it would probably be for nothing, but it really should be asked of the reporters and the editor for this claim what fact-checking, if any, they did, or if they simply took them at their word. Because if they issue a correction...

It only proves that people will repeat something from a bullying authority, it means nothing about believing it. We know from decades of very intense efforts that brainwashing doesn't work in most cases. People rarely actually believe the things they were bullied into thinking, they usually...

Deconditioning, of course. It is commonly argued, but the symptoms are always, always, explained as the result of deconditioning. Which is just as false. I've seen this applied systematically in Long Covid. It's either deconditioning or anxiety that is the cause of all the symptoms, and usually...

One of the points that can hammer through the bullshit is the fact that her death was preventable. IMO most of them, probably all, understand that it's BS. They just say this because it lets them off the hook, because the system that employs them is OK with that death, and will do it again. They...