Search results

Trial By Error: The Surprising New BMJ Best Practice Guide 13 November 2017 By Steven Lubet and David Tuller, DrPH http://www.virology.ws/2017/11/13/trial-by-error-the-surprising-new-bmj-best-practice-guide/ Edit: thread...

Chronic fatigue syndrome is not imagined but a genuine illness: Study http://www.worldnews.easybranches.com/regions/asia/chronic-fatigue-syndrome-is-not-imagined-but-a-genuine-illness-study-435307 Patients with Gulf War Illness, Chronic Fatigue Syndrome Show Distinct Molecular Changes After...

https://insights.ovid.com/counseling-psychology/jcoup/2017/10/000/longitudinal-investigation-impact-psychotherapist/6/00001192

Severely affected ME (Myalgic Encephalomyelitis) analysis report on questionnaire 25% ME Group (UK) 2004 Link to survey ME 2008: What progress Action for ME and Association of Young People with ME (UK) 2008 Link to survey Ervaringen van de achterban van patiëntenorganisaties met de...

Very uneven. They publish articles + blogs for which they have no editorial responsabilities. So they've got nice posts from Tony Bernhard focusing on dealing with ME on a daily basis, one or two papers from Allen Frances criticising the psychologisation of badly understood diseases, ordinary...

This is another article part of the new narrative that seems to be emerging. It uses the recent results of Georgetown University to quickly describe the new landscape of ME/CFS, (references to the drop of GET in US guidelines, to David Tuller's work and @Tom Kindlon 's review of harm due to...

Chronic fatigue syndrome, Gulf War illness as unique disorders, brain chemistry study shows https://www.sciencedaily.com/releases/2017/11/171110084312.htm And a title that will please everyone: Chronic fatigue syndrome is NOT all in the mind- but caused by changes in brain chemistry, a study...

References:

Brain Chemistry Profiles Shows Chronic Fatigue Syndrome and Gulf War Illness as Unique Disorders https://gumc.georgetown.edu/news/Brain_Chemistry_Profiles_Shows_Chronic_Fatigue_Syndrome_and_Gulf_War_Illness_as_Unique_Disorders Researchers find distinct molecular signatures in chronic fatigue...

It seems more and more treatment recommandations are being updated! http://www.mydr.com.au/first-aid-self-care/chronic-fatigue-syndrome

MEA review: http://www.meassociation.org.uk/2017/08/mea-review-to-the-heart-of-the-issue-new-study-on-two-day-cpet-in-m-e-and-ms-29-august-2017/

That is great, too often a weakness in numerous trials, where the lack of a sedentary control group allows to have doubts as to wether the differences are due to the disease or to inactivity.

https://www.careopinion.org.uk/opinions/422141

Why Sci-Hub Will Win by James Heathers

BBC's (long) review of Unrest: http://www.bbc.com/news/stories-41888146

Ruthann Richter on November 8, 2017 I found there was too much certitude in this claim, as the study hasn't been reproduced yet (and cytokines studies seem to be difficult to reproduce): http://scopeblog.stanford.edu/2017/11/08/demystifying-chronic-fatigue-syndrome/

General health *36-Item Short Form Survey Instrument (SF-36) Link to questionnaire Outcome measurement in functional somatic syndromes: SF-36 summary scores and some scales were not valid. Schröder A, Oernboel E, Licht RW, Sharpe M, Fink P. Journal of Clinical Epidemiology 2011 Link to article...

I was wondering the same thing after reading a Canadian article. https://www.s4me.info/index.php?threads/treating-patients-with-mups-article-more-interesting-than-its-title.858/#post-14486 It seems more and more people are aware of the problems around ME. The well-oiled narrative set up by BPS...