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WHO on the airborne nature of transmission of SARS-CoV-2: The biology of coronavirus COVID-19 - including research and treatments

That is something that I would contribute to, if someone got the people involved on board and set up a fund raiser.

Investigation of wearable technology that can better define symptoms and impact e.g. activity levels, ability to maintain concentration, ataxia

ME/CFS Patient registry studies to get better information about disease course

Multiple repeated exertion over a series of days – where participants exercise each day for up to 5 days – with wearables assessing activity and proteomics

Replication of the repeated CPETs, at a large enough scale to provide convincing evidence one way or another

Followup on Paul Hwang’s work on WASF3 in muscle cells/ unfolded protein response/ endoplasmic reticulum response to cellular stress

Investigation of changes in proteomics etc during pregnancy in ME/CFS, coupled with symptom monitoring. Does pregnancy have an impact on ME/CFS severity? Poll: Did pregnancy affect your ME?

GWAS followup to DecodeME

Post-mortem studies - brain and muscle and bone marrow histology, presence of pathogens

Ebola - incidence of ME/CFS, and comparison with other diseases

Merged thread Every day I come across ideas for studies. And yet, when I come to put together a list, I struggle. So, I thought we could jot down ideas as we think about them or see them, ideally with a link to a thread that discusses them more. We have had a Members Only thread about this...

(Just as an aside, and it probably won't make this wandering thread much more wandering, Vicky Whittemore seems to have been consistently on the side of people with ME/CFS. That was already remarkable and praiseworthy, but is even more so with what we have learned about the NIH recently.)

:laugh:

Yes, if I had to guess based off the data reported, I'd say about 5 to 10% of people with post-acute infections implicated in ME/CFS* meet ME/CFS criteria after 6 months and 1 to 2% at 2 years. Which actually still seems incredibly high - I struggle to believe that it is that common myself. *...

Well, they do comment on reaction times obliquely, and the reaction times are reported in Table 2. For me, that would be one big and real result of the study. Mean reaction time of the ME/CFS group was about 628 ms, regardless of what they were reacting to in the Attention bias game. Mean...

There isn't good evidence for Abilify or LDN being useful in ME/CFS either - not to discount the reports from patients that they found these drugs helpful. It points to a problem that goes well beyond Dr Tam, and probably applies to every ME/CFS doctor. Doctors want to help, and patients...

I don't think we know that, I suspect that it is not true. It actually looks as though the percentages affected with post-infection ME/CFS in a whole range of diseases is quite similar. Don't forget that it is each infection event that we have to think about - the fact that people are being...

I think each approach answers different questions. A record of functional limitations measures the impact of the disease on someone's life. That's potentially useful for measuring impact changes over time and working out what assistance might be useful. A retrospective survey asking about...

There are two parts to the study: Attention bias and interpretation bias. First, the attention bias: Attention bias Ugh. They really really don't get it, do they. A Visual Probe Task (VPT) 24 pairs of fatigue-related words + neutral words; 24 pairs of activity-related words + neutral words...