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Yes, Dr Tam sounds lovely and caring, and I'm not surprised that many in the ME/CFS community are grateful for her. But there is no credible evidence that the Perrin Technique works.

This thread is exactly the right place for discussion about the PROMs study. The Emotional Support Thread is actually just for talking about how the things that happened on this thread affected people, and getting and giving support. Due to a bit of moderator inattention, the Emotional...

Brought to you by the Journal of Health Psychology, Kings College London. (in press) I think this could be a good paper to look at, I suspect the investigators were disappointed that the chronic fatigue people did not look as different from healthy controls as the MS people did. Oh, for...

So, 15,676 people who were diagnosed and treated for Covid-19 at a John Hopkins healthcare system location. Of these, 398 were coded as having PASC or long Covid or post acute-Covid (0.4%). Of the 398 diagnosed with PASC etc, there were 6 people who had a prior diagnosis of a genetic collagen...

I note that Peter Rowe is based at the John Hopkins University School of Medicine and this is a John Hopkins database study

Yeah, but presumably there are processes in some individuals that fix a system that went awry due to some random chance. Why not in everyone? I accept that things happen just by chance, but I reckon there's a risk of replacing psychosomaticism with stochasticism - a sort of the 'god of the...

Well yes, and I guess chance does throw up some really odd coincidences at times. But I'm sure you can understand why I would be looking at stochasticity with a little bit more suspicion, given three family members became ill with ME/CFS at one time. Yes, I think some new investigations of the...

I couldn't think of a better title. Of course there must be some a genetic vulnerabilities - hopefully DecodeME will find something. And of course the onset of ME/CFS seems to have something to do with infections of various pathogens. But, all of us will have had multiple infections before...

It's terrific to have you with us Janna, I too look forward to hearing more from you.

And are you feeling much improved for it?

One of the other biggest concerns @cassava7 was the small size of the cohorts. For most of the studies, the size is considerably smaller than the headline sizes of 27 controls and 17 people with ME/CFS. Often more like 8 or 10 people in each group. Not many people actually made it to the...

I think there is quite a bit of semantics, which is not to say that it's unimportant. I define things a bit differently to you. I'd say 1) an underlying abnormal response to exertion:some unknown molecular/cellular/neurological/whatever mechanism which in itself isn't directly perceptible by...

Nice feedback from that commentator. The overwhelming feeling I get from reading that roll is that governments are going to continue to deny the problem. Tackling it is just too difficult. I mean - better ventilation in schools? There's not even enough money for school infrastructure without...

Thanks very much Dakota. That still leaves a lot of room for Walitt in that task. As lead researcher he must have approved it, and probably commissioned the test. Developing the version of the test used the study is of relatively little consequence once a decision to do this sort of test was...

The same thought crossed my mind. But surely they would also inject mice with IgG from healthy people as controls?

It took me a while to get what I think Jonathan saying, as lots of people risk painful outcomes in order to achieve something worthwhile. And I had significant PEM after the first PEM and I happily turned up for the second CPET (although at that time I didn't have PEM). I think you are saying...

I've just been re-reading a bit of the thread discussing the MEA project headed by @sarahtyson. And I see that @bobbler pointed out that one of the researchers on that study was involved in the development of this scale

Yes, thirding this. Really helpful presentations. It is way past time that Australia had some decent clinical guidelines for ME/CFS.

Well, there is the RER measure, which is taken to be a measure of effort. So, if it is the same, around 1.1, then I don't believe it is possible to dismiss the finding as just being the result of less effort. Yes, I don't think enough attention is paid to normalising energy expenditure prior...