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They seem to be suggesting that increased levels of CD8+ T cells and areas where the tissue repair wasn't happening properly was a feature of post-viral pulmonary fibrosis. The researchers tried to recreate this situation in mice by exposing them to a SARS-CoV-2 but they couldn't. However...

Mostly University of Virginia work This paper is about 'respiratory PASC'. They appear to be suggesting that the compromise to lung function can last a long time whereas PASC impacts elsewhere do not. Despite the paper being focused on lungs, maybe it can tell us something about Long covid...

Solve M.E. Welcomes Chief Scientific Officer, H. Timothy Hsiao, Ph.D. Solve M.E. is pleased to announce that H. Timothy Hsiao, Ph.D. recently joined us as Chief Scientific Officer, Head of Research Strategy and Alliances. In this role, Tim will create a roadmap for advancing translational...

Added, thanks

They found more depression and anxiety in the NeuroPASC cohort, but it's worth noting that these patients are being assessed 6 months into their illness, so they won't have had time to adapt and come to terms with the abrupt negative change in their lives. So, attention was the most affected...

Just worth noting this clinic, may be of interest to people with Long covid. They are doing studies and seem to have people assessed by specialists, so even with just that, they are well ahead of many clinics. They don't appear to assess for PEM though. And also noting the NIH Toolbox for...

Thanks @obeat, added

The Hanson in the author list is Barbara Hanson of North-Western University, Chicago. @DMissa, one in your wheelhouse. From the posted excerpts, it looks interesting. The separations aren't perfect, but I guess there could be quite a bit of daily variation in the levels of the proteins...

Here's the daily increase in signatures. Things are tracking pretty well, there's a steady increase. If you want to check out the organisations that have signed the open letter, have a look here. S4ME: 2023 Open Letter to Cochrane - request for action on the ME/CFS Exercise Therapy Review It...

Here's the report of signatures by country: Country: Name (Count All) As I read that list, I think of the people who are the sole signatories of their country. I hope they have support around them. Top ten countries: UK 1824, Australia 699, US 536, Canada 498, Netherlands 410, Norway 372...

Thanks @TiredSam :thumbup: - organisations added

A big thank you to the World ME Alliance for signing the open letter, and also for promoting the petition to its international network of member patient organisations. Particular thanks to Sian Leary, Head of Advocacy and Communications, for her support. :emoji_blossom:

Fantastic to have the support of 25% ME Group, United Kingdom.

They are on our list to contact - so, yes, please do contact them for us :)

Latest MassME newsletter is out 17 September - webinar by a Long covid clinician 28 October - webinar by Ed Yong There are dates for their Young Adult Support Group - Massachusetts residents only News of a new medical education course Also promotion of a fibromyalgia study that looks...

From the latest Massachusetts ME/CFS and FM Association: DO YOU SUFFER FROM FIBROMYALGIA? This research study investigates whether a method of non-invasive brain stimulation (tDCS) combined with physical exercise can help pain processing in adults with fibromyalgia. This research study requires...

Cochrane has much bigger problems than us, including, as far as I can see, how it can continue to exist. That's (somewhat perversely), not good for us, because key decisionmakers probably don't have the bandwidth to deal with the problem they have created for people with ME/CFS. Also they...

An update has been posted on the petition site:

I think we could. It's probably better to have a more inclusive list than a less inclusive one.

Finnish Medical ME/CFS Association added, thanks @mango