I thought it would be useful to have a list of all the active international and national level ME/CFS charities and research foundations not specific to one research institution around the world.
We can add to it as we find them. Please post below with organisations and a website and contact email if they have them. For those organisations that we have a news thread for, I'll link to the relevant thread.
Work in progress
International/regional
Canada - see also Canada regional ME/CFS and Long Covid charities/ organisations
Croatia
Czech Republic
Denmark
Finland
France
Germany
Ireland
Israel
Italy
Japan
Lithuania
Malta
Mexico
Netherlands
New Zealand - see also Aotearoa New Zealand regional ME/CFS and Long Covid organisations
Norway - see also Norway regional ME/CFS and Long Covid regional organisations
Portugal
Serbia
Slovenia
Spain
South Africa
Sweden - see also Sweden regional ME/CFS and Long Covid charities/ organisations
Switzerland
United Kingdom - see also United Kingdom Regional ME/CFS and Long Covid organisations
We can add to it as we find them. Please post below with organisations and a website and contact email if they have them. For those organisations that we have a news thread for, I'll link to the relevant thread.
Work in progress
International/regional
- International Association for CFS/ME, IACFSME -- forum thread
- World ME Alliance -- https://worldmealliance.org/contact-us/ -- forum thread
- ME Action -- info@meaction.net
- European ME Coalition EMEC -- europeanmecoalition@outlook.com -- forum thread
- Long Covid Physio -- https://longcovid.physio/contact
- ME Global Chronicle
- Physios for ME -- forum thread
- European ME Alliance EMEA -- info@euro-me.org
- Open Medicine Foundation (OMF)
- Emerge Australia -- ceo@emerge.org.au -- Forum thread
- Open Medicine Foundation Australia
- ME/CFS Australia -- info@mecfs.org.au
- WE&ME Foundation -- contact@weandmecfs.org -- forum thread
- Österreichische Gesellschaft Für ME/CFS -- contact@mecfs.at
- 12ME -- info@12me.be
- Millions Missing Belgique -- info@millionsmissingbelgique.com
- Belgium ME/CFS Association -- me.vereniging@belgacom.net -- EMEA member
Canada - see also Canada regional ME/CFS and Long Covid charities/ organisations
- Millions Missing Canada -- millionsmissingcanada@gmail.com
- Open Medicine Foundation Canada
- Action CIND
- National ME/FM Action Network -- mefminfo@mefmaction.com
Croatia
- PrepoznajME -- meifibromialgija@gmail.com -- EMEA member
Czech Republic
- Neúnavní -- info@neunavni.cz -- WMEA member
- Klub pacientů s myalgickou encefalomyelitidou/chronickým únavovým syndromem - https://www.facebook.com/MEcfs.cz me-cfs@seznam.cz
Denmark
- Dansk Covidforening (Danish Covid Association) -- mail@covidforeningen.dk
- Foreningen for Myalgisk-Encefalomyelitis (Danish ME Association) -- sekretariat@me-foreningen.dk -- EMEA member
- MillionsMissing Denmark
Finland
- Suomen lääketieteellinen ME/CFS-yhdistys ry Medicinska föreningen för ME/CFS I Finland (Finnish Medical ME/CFS Association) -- admin@slme.fi -- EMEA member
- Finnish Association of CFS - Suomen CFS-Yhdistys
France
- Association Francaise du Syndrome de Fatigue Chronique, Appelation Internationale: EM/SFC -- me.asso.sfcf@gmail.com -- EMEA member
- Millions Missing France -- info@millionsmissing.fr
- ApresJ20 - Long Covid charity
Germany
- ME/CFS Research Foundation -- contact@mecfs-research.org -- forum thread
- German Association for ME/CFS | Deutsche Gesellschaft für ME/CFS e.V.
- Fatigatio e.V. -- info@fatigatio.de EMEA member
- Lost Voices Foundation -- nicole.krueger@lost-voices-stiftung.org
- Long Covid Deutschland
- Iceland ME/CFS Association -- mefelag@gmail.com -- EMEA member
Ireland
- Irish ME/CFS Association - info@irishmecfs.org
- ME Advocates Ireland -
- Irish ME Trust -- info@imet.ie -- EMEA member
Israel
- ME/CFS Israel - https://www.mecfsisrael.org/ - mecfs.israel@gmail.com
Italy
- CFS/ME Associazione Italiana - www.stanchezzacronica.it/ - cfs@cro.it
- Associazione CFS Organizzazione di Volontariato
Japan
Lithuania
- Savarankiskas gyvenimas -- EMEA member
Malta
- ME, CFS & FM Alliance Malta - https://www.facebook.com/groups/me.cfs.fmalliance/ - me.cfs.fmalliance@gmail.com
Mexico
- Millions Missing Mexico - [sfcem.mexico@gmail.com - this email doesn't work, does anyone have contact details?]
Netherlands
- ME CVS Nederland -- info@mecvs.nl -- EMEA member
- ME/CVS Vereniging -- info@me-cvsvereniging.nl
- ME Centraal - Dutch ME info channel
- Steungroep ME en Arbeidsongeschiktheid (ME and Disability Support Group)
New Zealand - see also Aotearoa New Zealand regional ME/CFS and Long Covid organisations
- ANZMES - info@anzmes.org.nz - news thread
- Long Covid Support Aotearoa
- M.E. Awareness NZ - m.e.awareness.nz@gmail.com
- ME Support - info@mesupport.org.nz
- Dysimmune Research Aotearoa New Zealand - news thread
Norway - see also Norway regional ME/CFS and Long Covid regional organisations
- ME Foreningen (Norwegian ME-association) -- post@me-foreningen.no -- EMEA member
- ME-foreldrene (The ME parents)
- Norsk Covidforening (Norwegian Covid Association)
- Facebook group https://www.facebook.com/groups/258771904515221/
Portugal
Serbia
- Association of People with CFS SHUKS -- shuts.udruzenje@gmail.com -- EMEA member
Slovenia
Spain
- Associació Catalana d’Afectades i Afectats de Fibromiàlgia i d’altres Síndromes de Sensibilització Central -- https://www.fibromialgia.cat/ - info@sfc.cat
- CONFESQ -- https://confesq.org/?page_id=25415 - EMEA member
- ONG PEM Asociación de Personas con Encefalomielitis Miálgica --info.ongpem@gmail.com
South Africa
- ME and Long Covid Unite South Africa -- mecfssafoundation@gmail.com --(formerly the ME CFS Foundation South Africa) -- WMEA member
Sweden - see also Sweden regional ME/CFS and Long Covid charities/ organisations
- RME -- info@rme.nu -- forum thread -- EMEA member
- Svenska Covidföreningen (Swedish Covid Association)
Switzerland
- ME CFS Verein Schweiz -- EMEA member (primarily German language)
- Facebook group EM/SFC Suisse (primarily French language) https://www.facebook.com/groups/194371634040745
- Long Covid Switzerland
- Long Covid Kids Switzerland
United Kingdom - see also United Kingdom Regional ME/CFS and Long Covid organisations
- 25% M.E. Group -- https://25megroup.org/contact-us/ -- forum news thread
- Action for ME -- questions@actionforme.org.uk -- forum news thread
- Doctors with ME -- https://doctorswith.me/ -- forum news thread
- Hope 4 ME & Fibro Northern Ireland -- hope4mefibro@outlook.com
- Forward M.E. -- https://forward-me.co.uk/contact-us/ -- forum thread
- Invest in ME -- https://www.investinme.org/index.shtml -- info@investinme.org -- EMEA member
- ME Action UK -- https://www.meaction.net/countries/uk/
- ME Association UK - https://meassociation.org.uk/ -- Russell.fleming@meassociation.org.uk
- M.E. Support Northern Ireland -- info@mesupportni.com
- ME Research UK -- https://www.meresearch.org.uk/ -- contact@meresearch.org.uk
- The Grace Charity for M.E. -- info@thegracecharityforme.org
- The Young ME Sufferers Trust (TYMES Trust) -- https://www.tymestrust.org/
- Welsh Association of ME & CFS Support WAMES
- LocalME- umbrella organisation of 52 local support and advocacy groups across the UK as well as outside UK
- Long Covid SOS -- https://www.longcovidsos.org/
- Long Covid Kids -- https://www.longcovidkids.org/ -- info@longcovidkids.org
- Long Covid Support -- info@longcovid.org
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