Search results

Are you suggesting the people who decide on individual applications for assisted dying are the people who can give out extra money? I very much doubt that happens currently. And if it did, it could lead to assisted dying system being overwhelmed with applications so I’m not sure it would be an...

The thing is: would people prefer if in this scenario it wasn’t seen as a suitable reason and the application for assisted dying was turned down?

Cases of Long Covid still growing, German health minister says (Has some references to ME/CFS) https://www.yahoo.com/news/cases-long-covid-still-growing-151626706.html

They have a new website: https://www.umassmed.edu/selinlab/ 10-item Twitter thread Can be read here: https://threadreaderapp.com/thread/1836068503490638018.html As the website says, "Dr. Selin has ME/CFS".

Most of the signatories I think haven’t signed previous David Tuller letters. It could be interesting to see how many might in future.

I also wonder how many are strongly critical of the biopsychosocial viewpoint e.g. with regard to graded activity/exercise/CBT. Possibly best not to assume that based on their signing this particular letter.

Yes, I wonder how many of them are "long covid people", particularly patients or others with a relative with the condition rather than those who have had a long-lasting interest in ME.

I wonder how they were able to put together such a long list given, as I understand it, there wasn’t a public call for support?

1:30pm ET/6:30pm in GB & Ireland Find the time in your time zone here: https://www.timeanddate.com/worldclock/fixedtime.html?msg=September+19+Lunch+and+Learn&iso=20240919T1130&p1=220&ah=1&am=30 Bateman Horne Center RESEARCH | CLINICAL CARE | EDUCATION September 2024 Thursday 19 Lunch &...

3pm ET/8pm in GB & Ireland Find the time in your time zone https://www.timeanddate.com/worldclock/fixedtime.html?msg=Sept+16+support+group+&iso=20240917T13&p1=220&ah=1 Bateman Horne Center Our 2x a month online support groups are professionally led and provide a caring community to those...

ME Association: Writing a children’s book featuring a protagonist who has ME Sally Doherty talks about her new book – Max and Monty: The Raven Thief – and explains why she jumped at the chance to write a book for children with a protagonist with ME, as part of the HarperCollins new disability...

Call for US RECOVER Initiative to include ME/CFS ME Research UK Facebook: Leading ME/CFS researchers have provided a roadmap on how the US's NIH can successfully integrate ME/CFS into the RECOVER Initiative and provided areas of mutual interest to advance the field. The suggestions - from...

(Melbourne, Australia) Have you been diagnosed with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) or orthostatic intolerance...

I'm guessing it's related to this research funding announcement from earlier in the year: https://www.s4me.info/threads/baker-institute-australia-funding-to-advance-understanding-of-the-impacts-of-long-covid-plus-pots-and-me-cfs.38947/

https://www.emerge.org.au/get-involved-in-research/ Have you been diagnosed with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) or orthostatic intolerance? Researchers at the Baker Heart and Diabetes Institute (Melbourne, Victoria) request your contribution to research that hopes...

Carer podcasts - Season 5 For many in our community, carers make a huge difference; they are often unpaid loved ones, such as grandparents, mothers, fathers, sisters, brothers, partners, children and friends. Carers are often unseen by the community, so we are honoured to be able to share these...

https://documentserver.uhasselt.be/handle/1942/43513 https://documentserver.uhasselt.be/bitstream/1942/43513/1/EAPM 2024_Katleen Bogaerts.pdf Title: Fatigability and stress reactivity in patients with chronic fatigue syndrome versus healthy controls Authors: BOGAERTS, Katleen DOOMS, Ynse VAN...

AIM ImmunoTech Announces that Analysis of AMP-518 Complete Clinical Patient Data Underscores Ampligen’s Potential to Improve the Post-COVID Condition of Fatigue Company is planning a follow-up clinical trial with a focused subject population of moderate-to-severe Post-COVID-related fatigue...

Free fulltext. Peng Qiu, Junyu Wu, Min Li, Zhiguang Zhao, Qirong Wang, Causal inference between physical activity and chronic diseases: insights from a two-sample Mendelian randomization study, Sports Medicine and Health Science, 2024, , ISSN 2666-3376...