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Some information & tips on claiming the UK disability payment, PIP, for ME/CFS Designed for people in the UK but may also include some suggestions people elsewhere could use ---- PIP health conditions Claim PIP for ME and CFS In 2024, there were 28,121 PIP claimants with CFS listed as their...

Open Medicine Foundation: Let’s celebrate! We are thrilled to share a monumental milestone with you: OMF StudyME Registry has now surpassed 10,000 participants! In April 2023, we proudly launched OMF StudyME, a participant registry powered by StudyPages. This innovative recruitment tool was...

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New-ish webpage https://rally.massgeneralbrigham.org/study/me_cfs_patients_need

New Scientist piece on this: https://www.newscientist.com/article/2447116-chronic-fatigue-syndrome-could-be-quickly-diagnosed-via-a-blood-test/

Saturday, September 21 CAREGIVER SUPPORT CALL ( for caregivers of people with ME (#MyalgicEncephalomyelitis), #LongCOVID & associated conditions) https://www.meaction.net/event/me-caregiver-support-call/2024-09-21/ 15:30 ET/20:30 in Great Britain & Ireland Find the time in your time zone here...

The Center for Immunology Science and Immunology Diagnostics Announce a Major Breakthrough Discovery: DNA-Based Proof of the Disease of Fibromyalgia. https://www.newswire.com/news/the-center-for-immunology-science-and-immunology-diagnostics-announce-22410951

Press release: UK researchers find Alzheimer’s-like brain changes in long COVID patients https://uknow.uky.edu/research/uk-researchers-find-alzheimer-s-brain-changes-long-covid-patients

From Facebook: —- We were delighted to receive 28 proposals in response to our recent call for grant applications. Together, a total of nearly £6 million has been requested, and these studies represent many different areas of ME/CFS research – including immunology, neurology and the brain...

Free fulltext: https://journals.sagepub.com/doi/full/10.1177/17423953241282246 Doris O, Morrissey EC. Experiences of students with chronic illness in university education in Ireland. Chronic Illness. 2024;0(0). doi:10.1177/17423953241282246 One of the participants has ME/CFS. Abstract...

Dr. Walter Tarello Gatekeeper Press, 5 Sept 2024 - Health & Fitness - 356 pages Chronic Fatigue is the authentic, fascinating and riveting account of the author’s journey in the ‘heart of darkness’ of modern medicine, the Chronic Fatigue Syndrome, also known as Myalgic Encephalomyelitis...

Merged https://www.actionforme.org.uk/news/watch-now-mecfs-research-workshops/ Watch now: ME/CFS research workshops July 29, 2024 Hundreds of people living with ME/CFS, researchers and clinicians recently came together in a series of online workshops designed to stimulate clinical research in...

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Press release: "#NotJustFatigue Urges NIH to Address Funding for ME/CFS, Ensure Inclusion in the RECOVER Initiative*" https://www.pr.com/press-release/919698 Post copied to #NotJustFatigue thread

Press release: "#NotJustFatigue Urges NIH to Address Funding for ME/CFS, Ensure Inclusion in the RECOVER Initiative*" https://www.pr.com/press-release/919698

Based on a quick search, there doesn't seem to be any mention of harm from exercise programmes and the like.

https://www.xaviergimeno.net/files/formulation_symbolic_violence_scale_6en.pdf Title: Formulation of a symbolic violence scale questionnaire: the importance of the epistemological, theoretical, and methodological construction of the object of study Author: Xavier Gimeno Torrent...

I just checked and still can't access them.