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https://www.rcpch.ac.uk/work-we-do/bpsu/study-severe-chronic-fatigue-syndrome-myalgic-encephalitis-cfsme Lead investigators Professor Esther Crawley Centre of Child and Adolescent Health, University of Bristol 1-5 Whiteladies Road Bristol BS8 1NU Email: esther.crawley@bristol.ac.uk And yet she...

yes https://www.timeanddate.com/worldclock/

Deadline extended to March 11: NINDS is seeking feedback on ME/CFS Research Roadmap priorities NIH MECFS Information List <NIHMECFSInformationList@mail.nih.gov> (12 minutes ago) to NIH-MECFS_INFORMATION The deadline for providing input and feedback on the ME/CFS Research Roadmap...

A little reminder that the deadline for this is tomorrow.

This video may be UK only. I can’t watch the video but have seen people praise it. https://www.itv.com/walesprogrammes/articles/wales-this-week-clinical-trials-life-in-the-waiting-room Wales This Week: Clinical Trials: Life In The Waiting Room Tuesday 5 March at 8:30pm Every new medicine is...

ME Research UK: “Criticisms of the guideline discussed in this paper are misplaced” sums up pithily NICE’s rebuttal of 8 criticisms levelled against the organisation over charges of a ‘controversial U-turn’ concerning changes to GET and CBT contained in the 2021 ME/CFS guideline. For an...

https://www.tandfonline.com/doi/full/10.1080/21641846.2024.2326406 Received 18 Nov 2023, Accepted 29 Feb 2024, Published online: 06 Mar 2024 Research Article Fatigue and somatic symptom burden among U.S. adults with current, previous, or no history of long COVID Zoe Sirotiak , Emily B. K...

This paper has now been published. It is open access: https://bpspsychub.onlinelibrary.wiley.com/doi/10.1111/bjhp.12717

"Updates on long Covid and the brain: Let's explore the recent flurry of research revealing Covid's impacts on the brain and cognition" 05 March 2024 By Emma Barratt https://www.bps.org.uk/research-digest/updates-long-covid-and-brain This includes some discussion of ME.

NIH MECFS Information List <NIHMECFSInformationList@mail.nih.gov> A new information page about the NIH Intramural ME/CFS study is now live on the NIH ME/CFS website. This includes a Q&A page featuring answers to commonly asked questions about the study.

Press release: "A blood test will diagnose #fibromyalgia more reliably: A pioneering technique that a URV researcher has helped to develop enables this chronic disease to be identified more quickly and precisely" https://www.eurekalert.org/news-releases/1036432

https://www.mdpi.com/2227-9059/12/1/133 Early Diagnosis of Fibromyalgia Using Surface-Enhanced Raman Spectroscopy Combined with Chemometrics by Haona Bao 1, Kevin V. Hackshaw 2,*, Silvia de Lamo Castellvi 1,3, Yalan Wu 1, Celeste Matos Gonzalez 1, Shreya Madhav Nuguri 1, Siyu Yao 1,4...

“Chronic fatigue condition offers clues to Long COVID” https://www.nationaltribune.com.au/chronic-fatigue-condition-offers-clues-to-long-covid/ Newspaper article that looks like it is based on a press release

Full text now available for free at: https://www.frontiersin.org/journals/endocrinology/articles/10.3389/fendo.2024.1358404/full Background: Fatigue of unknown origin is a hallmark symptom in chronic fatigue syndrome (CFS) and is also found in 20% of hypothyroidism patients despite appropriate...

https://www.sciencedirect.com/science/article/pii/S1471491424000285 Trends in Molecular Medicine Available online 4 March 2024 Review Unravelling shared mechanisms: insights from recent ME/CFS research to illuminate long COVID pathologies Sarah J. Annesley 1, Daniel Missailidis 1, Benjamin...

In case of interest, the parent of a participant:

Saturday, March 16 Caregiver support call (for caregivers of people with ME (#MyalgicEncephalomyelitis), #LongCOVID and associated conditions) https://www.meaction.net/event/me-caregiver-support-call/2024-03-16/ 3:30 PM ET/7:30 PM in Great Britain & Ireland Find the time in your time zone...

A Crawley clinic patient on Twitter in the last 24 hours: Mod note: Noting the content of the remaining tweets in case more disappear: March 3 2024 Person C Oh no, I did activity management at the adult Bath clinic and got worse. The OT called it pacing but it was increasing each week. I've...

Merged thread https://www.eqt.com.au/about-us/media-centre/news-items/press-releases/2024/mason-foundation-awards-1-4-million-to-fight-chronic-fatigue MASON FOUNDATION AWARDS $1.4 MILLION TO FIGHT CHRONIC FATIGUE 4/03/2024 Approximately $1.4 million has been committed to support vital...

A similar article, or perhaps simply a carbon copy, has been published in a newspaper New Myalgic Encephalomyelitis Research Funding Education 4 Mar 2024 1:30 pm AEST https://www.nationaltribune.com.au/new-myalgic-encephalomyelitis-research-funding/#google_vignette Also...