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Thursday, September 5: Free, professionally-facilitated online support group Topic: Sharing the Collective Wisdom of the Chronically Ill https://batemanhornecenter.org/event/online-support-group-77/ 1 PM MT/3 PM ET/8 PM in Great Britain & Ireland Find the time in your time zone here...

I think they hope there will be more editions. I have seen it plugged but I haven't looked into it...

In some ways this is a very basic question and maybe I should know the answer: I was talking with an enquirer to an ME/CFS group I volunteer with yesterday who wasn’t sure whether they had ME/CFS and they mentioned that the exhaustion can get so bad that they can barely move an inch, that if...

For the first time, people with hidden conditions such as fibromyalgia, ME and autism will be eligible for disability benefits after Malta adopts World Health Organisation functionality assessment. Go to...

https://www.computer.org/csdl/proceedings-article/compsac/2024/769600a827/1ZIUHEpHdfO A. Mahmood, et al., "CFSCare: ML-Based Activity Monitoring System for Chronic Fatigue Syndrome Patients Using Smartphone and Wrist Sensor," in 2024 IEEE 48th Annual Computers, Software, and Applications...

Ear abnormalities in chronic fatigue syndrome (CFS), (FM), (COVID) and long-COVID, sick-building syndrome (SBS), (PoTS), and (ASIA): A systematic review https://www.sciencedirect.com/science/article/abs/pii/S1568997224000971 Thelma L. Skare, Jozélio Freire de Carvalho, Italo Roberto Torres de...

https://us02web.zoom.us/webinar/register/WN_YjCfUvHiQnmuAG6yV3jORw#/registration Severe ME/CFS: Care, Rights, and Research Description ME/CFS has a broad spectrum of severity, with some able to work while others require total care and support. People living with Severe ME are often confined...

2.2. Assessment of Fatigue Fatigue symptoms were evaluated using the Chalder fatigue scale (CFQ-11) [22, 24]. This instrument (Table 1) comprises 11 items, each rated on a scale from 0 to 3, with total scores ranging from 0 to 33. Higher scores correspond to more pronounced fatigue symptoms. The...

https://onlinelibrary.wiley.com/doi/full/10.1155/2024/3256273 Sun, Deping, Liang, Yanan, Yang, Fuwei, Liu, Lan, Yan, Yuqin, A Novel Nomogram for Early Identification of CFS-Like Symptoms in University Students with Infectious Mononucleosis, Advances in Public Health, 2024, 3256273, 10 pages...

ME Research UK have produced a fairly detailed text summary: https://www.meresearch.org.uk/bbc-breakfast-features-me-cfs/

Further reflections on the 2024 NASEM definition for “Long COVID” – how does ME/CFS fit in? https://www.meresearch.org.uk/further-reflections-on-the-2024-nasem-definition-for-long-covid-how-does-me-cfs-fit-in/ Extract: However, the new definition does not explain how medical professionals are...

I saw this highlighted by ME Research UK on Facebook: Trial By Error: Post-Inquest Comments from Sarah Boothby, Maeve’s Mum https://virology.ws/2024/08/20/trial-by-error-post-inquest-comments-from-sarah-boothby-maeves-mum/ “Again I am obliged to accept adequate funding for biomedical...

This link has the same Twitter thread but also contains the figures https://threadreaderapp.com/thread/1828809116745351582.html

https://bjgpopen.org/content/early/2024/08/24/BJGPO.2024.0079 Patient experiences of remote consulting with chronic fatigue syndrome/myalgic encephalomyelitis and fibromyalgia: a qualitative study Helen Leach, Abi Eccles, Carolyn A Chew-Graham and Helen Atherton BJGP Open 27 August 2024...

I found it interesting the comparison Dr Weir made between meningitis and ME (particularly the more severe form) and that in the past (and maybe still now?) curtains were drawn around the beds of meningitis patients to shield them from bright lights. It could be a useful comparison for...

“I tend to overdo things and then rest up for a while” If you have PEM, it’s adaptive rather than maladaptive to rest a bit more. And if you have PEM, whatever you did to bring it on could be defined as overdoing it, even if most people wouldn’t call it overdoing it and also it might not even...

There was this study on gait https://pubmed.ncbi.nlm.nih.gov/18505580/ Gait characteristics of subjects with chronic fatigue syndrome and controls at self-selected and matched velocities Lorna Paul et al. J Neuroeng Rehabil. 2008. Abstract Background: Gait abnormalities have been reported in...

This discusses the PACE Trial among other things: "Pursuit-worthy research in health: Three examples and a suggestion, 2024, Wilkenfeld" https://www.s4me.info/threads/pursuit-worthy-research-in-health-three-examples-and-a-suggestion-2024-wilkenfeld.39938/

This discusses the PACE Trial among other things https://www.sciencedirect.com/science/article/pii/S0039368124001213 Studies in History and Philosophy of Science Pursuit-worthy research in health: Three examples and a suggestion Daniel A. Wilkenfeld University of Pittsburgh School of...

Lisa H. Hamilton. 2024. The Role of Occupational Therapy in Long Covid Rehabilitation. Capstone. Nova Southeastern University. Retrieved from NSUWorks, . (160) https://nsuworks.nova.edu/hpd_ot_capstone/160 .