Search results

Text reads: New for #SevereMEDay2024 The following notes are a guide from the 25% ME Group for those who are/may be going to hospital with #SevereME or #VerySevereME https://25megroup.org/wp-content/uploads/2024/07/Severe-ME-Awareness-Day-2024-Hospital-Care.pdf #SevereMEDay

Text reads: New for #SevereMEDay2024 The following notes are a guide from the 25% ME Group for those who are/may be going to hospital with #SevereME or #VerySevereME https://25megroup.org/wp-content/uploads/2024/07/Severe-ME-Awareness-Day-2024-Hospital-Care.pdf #SevereMEDay Thread...

Severe ME Day 2024 Today, 8 August is international Severe ME Day. Severe ME Day is recognised globally as a day to acknowledge the strength and spirit of the estimated 25% of individuals living with ME/CFS who have severe or very severe symptoms. Living, or caring for someone , with severe...

https://podcasts.apple.com/us/podcast/hope-and-help-for-fatigue-chronic-illness/id1724900423?i=1000663080596 EP32: ME/CFS and Long COVID: Are They Connected?Hope and Help For Fatigue & Chronic Illness Medicine Read "ME/CFS and Long COVID share similar symptoms and biological...

Hospital Mistreatment of Severe ME Patients Globally – #SevereMEDay 2024 https://worldmealliance.org/2024/08/hospital-mistreatment-of-severe-me-patients-globally-severemeday-2024/

https://megroupaustralia.org.au/awareness/severe-me-day-webinar-event/

Severe ME Artist Project 2024 In honor of Severe ME Day, #MEAction is proud to share the Severe ME Artist Project 2024! We have two viewing options: - All the artwork including the written pieces here: http://meartistsproject.com - A video compilation:

https://docs.google.com/forms/d/e/1FAIpQLScftBynVZ71QwqqlX84L6JPXt5IDTWj0JrPil7js0pMj-_LBg/viewform Severe ME Awareness Day 2024 For Severe ME Awareness Day, we're providing all healthcare professionals with free educational content via our 'Question of the Day' Campaign to challenge and...

Open access https://journals.sagepub.com/doi/10.1177/0271678X241270528 Research article First published online August 7, 2024 Absence of BOLD adaptation in chronic fatigue syndrome revealed by task functional MRI Laura Schönberg, Abdalla Z Mohamed, Qiang Yu, Richard A Kwiatek, Peter Del Fante...

https://docs.google.com/forms/d/e/1FAIpQLScftBynVZ71QwqqlX84L6JPXt5IDTWj0JrPil7js0pMj-_LBg/viewform Severe ME Awareness Day 2024 For Severe ME Awareness Day, we're providing all healthcare professionals with free educational content via our 'Question of the Day' Campaign to challenge and...

Tuesday, August 20 Free, professionally-facilitated online support group https://batemanhornecenter.org/event/online-support-group-76/ 1 PM MT/3 PM ET/8 PM in Great Britain & Ireland Find the time in your time zone here...

There are slides and a pdf download that can be accessed for free.

ME Research UK: On the 15th and 16th of May this year, ME Research UK attended the first Unite To Fight conference – “The biggest community-driven ME/CFS and Long COVID conference ever”, which was held online. During the conference, many areas of ME/CFS and long COVID research were discussed –...

Saturday, August 17 CAREGIVER SUPPORT CALL ( for caregivers of people with ME (myalgic encephalomyelitis), Long COVID and associated conditions) https://www.meaction.net/event/me-caregiver-support-call/2024-08-17/ 3:30 PM ET/8:30 PM in Great Britain & Ireland Find the time zone in your time...

From Dan the LC Kiwi : "Check out http://dysimmune.nz for the latest #LongCovid #MECFS #PostViralIllness research happening in Aotearoa NZ. If you are based in Auckland, consider signing up to be part of a study." https://dysimmune.nz/our-team/

From ME Research UK ME Research UK's July 2024 e-newsletter was sent out this Wednesday. Want to join the mailing list? It is easy to do - https://shorturl.at/Bvqeu Alternatively, read the e-newsletter on our website - https://tinyurl.com/dthdyv4u

This has come up as a problem when lobbying for services. Some people consider "multidisciplinary teams" to mean medical consultants from different specialties so they lobby for that but it very often seems to mean people from different allied health professions.

Apologies if this has been posted before. I haven't been following this thread. https://www.meresearch.org.uk/how-coroners-inquiry-into-death-of-maeve-boothby-oneill-unfolds-in-quotes-with-media-links/ News How Coroner’s Inquiry into death of Maeve Boothby-O’Neill unfolds – in quotes with...