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Twitter text: One week ago to August 8, #SEVEREMEDAY I have a Pinterest board with 616 pins on #severeMECFS here https://pinterest.ie/tomkindlon/mecfs-severe-mecfs-mecfs-myalgic-encephalomyelitis/ that could be shared around. It mainly contains images but also links to videos & articles You...

I thought I would start a thread on this.

Free, professionally-facilitated online support group https://batemanhornecenter.org/event/online-support-group-75/? 1 PM MT/3 PM ET/8 PM in Great Britain & Ireland on August 13 Find the time in your time zone here...

It has just been published here: https://www.sciencedirect.com/science/article/abs/pii/S0163834324001671

Graphical Abstract There is a 2-minute video abstract on the journal site.

=AZX8hF6opc2Qmg4IbT8QkM5_f3dUKW_izs5VtBv9Orp_suiK5-Tw_cPjJkRo-_jdQ7MWD2f1zDe5tZwjDxfO-zE5-wwKw1g0fm4YaRto2vNBelsyB-86de7LSZSfx7ij9cNAGX3KEzZ8DvbAcv2tT_mHYSgyLjn8ioX14vvNofJloVr6NEg9inKfULNgJkIqLWtDAsteg7HnC4cN7znfe7lg&__tn__=-UC%2CP-R']Bateman Horne Center · Medical lecture now available...

https://www.researchsquare.com/article/rs-4654793/v1 Mitochondrial function in patients affected with fibromyalgia syndrome is impaired and correlates with disease severity Chiara Macchi1 Andrea Giachi1 Isabella Fichtner1 Silvia Pedretti1 Piercarlo Sarzi Puttini2 Nico Mitro1 Alberto...

https://www.mdpi.com/1648-9144/60/8/1215 Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Impact on Quality of Life (QoL) of Persons with ME/CFS Medicina 2024, 60(8), 1215; https://doi.org/10.3390/medicina60081215 (registering DOI) Submission received: 31 May 2024 / Revised: 4 July 2024 /...

Merged “Exercise” video (8 minutes) Long COVID Physio @LongCOVIDPhysio The final episode of the #LongCOVID Video Series is now live #Exercise See the video, audio only, transcript, details for translated closed captions, the team involved, and how to access the full video series, by...

Some papers connected with this thesis have previously been discussed on the forum.

https://kudos.dfo.no/documents/83066/files/37902.pdf The long, arduous road to recovery: an exploration of the experiences of young Norwegian women falling ill with ME/CFS during childhood and adolescence Silje Helen Krabbe Thesis submitted for the degree of Philosophia Doctor (PhD)...

Extract: Ramsay wrote his 1986 book ‘Myalgic encephalomyelitis and postviral fatigue states: the saga of the Royal Free disease’ to help other doctors understand the illness and give the best possible care to patients. Although there was no cure, Ramsay emphasised that receiving the correct...

It’s a pity they didn’t have another control group who hadn’t requested a test which might have better clarified the effect of having an infection.

“Our findings suggest that ME/CFS may follow several precipitating events (acute COVID-19 illness, other acute infections, or life disruptions due to the COVID-19 pandemic) but that regardless of reason or exact percentages, there will be millions affected who will seek care.” Frustrating. I...

Press release: https://www.eurekalert.org/news-releases/1052033

Free fulltext: https://apcz.umk.pl/QS/article/view/52946 BIEŃKOWSKI, Kuba, BIELASKA, Albert, WESOŁEK-BIELASKA, Ewelina, KOŁODZIEJ, Wojciech, GAŁĄZKA, Jakub Krzysztof and GRESZTA, Magdalena. Chronic fatigue syndrome related to herpes simplex viruses infection – a narrative review. Quality in...

ME Research UK: In June, ME Research UK attended the 16th Invest in ME Research conference, held at the Wellcome Genome Campus in Cambridgeshire. Read our full conference report: https://tinyurl.com/4rp3e422

https://onlinelibrary.wiley.com/doi/10.1111/sjop.13060 Scandinavian Journal of Psychology Early View Empirical Article Open Access Comparison of the symptom networks of long-COVID and chronic fatigue syndrome: From modularity to connectionism Michael E. Hyland, Yuri Antonacci, Alison M. Bacon...

Graphical abstract:

Zoanetti, J., Nielsen, T.D. & Hazel, S. The potential negative impacts of pet guardianship on the guardian, a scoping review. Discov Anim 1, 11 (2024). https://doi.org/10.1007/s44338-024-00014-1 https://link.springer.com/article/10.1007/s44338-024-00014-1#citeas The potential negative impacts...