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  1. Kalliope

    LP coach on research, Lightning Process and ME (Norway)

    This is so dreadful I don't even know where to start in order to give a recap. :cry::cry::arghh: Lightning Process (LP) coach Live Landmark has written a letter to the editor defending LP as treatment for ME. Dette sier forskningen om Lightning Process og ME google translation: This is what...
  2. Kalliope

    Concerns about Cochrane

    A statement from today by Cochrane's Governing Board Cochrane is a collaboration: an organization founded on shared values and an ability to work effectively, considerately and collaboratively. The Governing Board’s decision was based on an ongoing, consistent pattern of disruptive and...
  3. Kalliope

    Petition against National Competence center for CFS/ME with BPS approach in Norway - anyone can sign

    Another blog post from initiator Nina E. Steinkopf. She writes about the harm the competence service causes patients when they include research and diagnostic criteria beyond ME. Kompetansetjenesten skader ME-pasienter google translation: The Competence Service is harming ME patients 3598...
  4. Kalliope

    News from Scandinavia

    Letter to the editor from ME-patient and graduate engineer Benedikte Monrad-Krohn about Cochrane, ME and CBT/GET. She discusses and explains several weaknesses with the Cochrane review on ME and GET. This is on a Norwegian news site about medicine. Benedikte Monrad-Krohn: Besværlig...
  5. Kalliope

    Concerns about Cochrane

    This statement says absolutely nothing. They're just throwing him under the bus without revealing any details of the complaints they got about him. This Board decision is not about freedom of speech. It is not about scientific debate. It is not about tolerance of dissent. It is not about...
  6. Kalliope

    Petition against National Competence center for CFS/ME with BPS approach in Norway - anyone can sign

    New blog post from initiator Nina E. Steinkopf. This time about the importance of strict diagnostic criteria. Ikke min sykdom! google translation: Not my illness! The competence service has the defining power and chooses to mix ME with mental disorders. Therefore, it must be legitimate to ask...
  7. Kalliope

    Jarred Younger confirms neuroinflammation in brains of ME patients

    This is so interesting. I'd like to be tested for this before and after having read some long texts, as that's when I feel the brain is burning. The only thing that helps is to not read, not write, not concentrate. I don't usually get this particular symptom after physical exertion, but it can...
  8. Kalliope

    Berkeley Wellness: When Medical Symptoms Are Dismissed as "All in Your Head" (David Tuller interviews Maya Dusenbery)

    The problem is we don’t have feedback systems in place that will actually let doctors know they made an error. So they assume they’ve gotten the diagnosis right unless they hear otherwise—and they usually don’t unless the patient themselves comes back to tell them they were wrong. In other...
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