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I'm still a bit baffled by this idea of 3-for-1 encouraging people to give donations that they can't afford. When I see a BOGOF offer in the supermarket, it might make me more inclined to buy that product than another but it in no way inclines me to blow money I can't afford on it.

I'm proud and happy to have donated to your crowdfund and you're exceeding my high expectations of what you would be doing. You're making a huge difference - thank you again!

I think that part of the reason for doing a 3-for-1 is to draw new people in who then might become regular donors. You have a much better chance of getting new regular donors if you can get new donors in the first place.

PWME do of course have cognitive problems - I do, for sure - but this is the first time I've seen someone suggest that we have 'judgement problems'. I don't agree. I can see that cognitive difficulties mean that a PWME might be slowed in their thinking but having the incapacity to make...

I've been constantly amazed when I've encountered people by chance in the real world who, on finding that I have ME, say that they have a family member or friend with it. When I mention the biomed research charities, though, they haven't heard of them - and are excited to hear about them and...

People with limited resources are adults who can make rational decisions about their giving. If they feel they can't afford something, they won't give. The aim of the 3-for-1 is simply to encourage donations, and that includes larger donations from people who can afford to give and bringing in...

I don't think that's a safe assumption at all. I support OMF's work but I don't donate as much as I can afford to. I don't donate as much as I can afford to anything: my decision is based on a lot of factors. But if I can get more bang for my buck by having my donation tripled, that encourages...

Why is it childish and self-serving? That's an interesting point. A similar concept is why deflation is considered disastrous in an economy - because people wait and wait to spend their money because they expect prices to drop. I don't know whether it applies in this situation and I wonder if...

Sorry, my bad - I thought I was looking at your original post and I must have been looking at a later one. What you actually said was:

You've edited your original post to remove the statement about 'sleazy' fundraising but didn't you say that the 'three for one' approach was sleazy? If so, I don't think it is. If I was minted (which I'm not), and wanted to give a big donation to a charity, I'd be pressuring them to leverage it...

Great job, @dave30th! Very grateful to you and to everybody involved. It's very easy to forget that just three years ago, patients were alone in raising these issues, no one in authority would listen, and we couldn't understand why doctors and researchers wouldn't speak out and help us. We felt...

Thanks for doing this, @dave30th. What a mess.

On a lot of blogs, comments get held in moderation, especially if you haven't posted before. Looks like it's through now. :thumbup:

I thought that part of it went on setting up the Harvard centre and part on assuring continuity of employment (crucial for retaining skilled staff) but this is from memory and I could be wrong. Maybe @JaimeS knows?

It's possible to alert him by leaving a comment on his blog post - he usually fixes errors that people point out there and acknowledges that he's done so.

:woot::woot::woot:

Is it a discussion about what to debate? Will she be putting ME/PACE forward?

A tip for anyone using Dragon (not on the Mac - apparently that's not really Dragon even if it says it is) - think about what you want to say and then say it in a whole sentence, if you can, because Dragon recognises context and its guess at what you've said will be more accurate.

On Cort's blog, Janet Dafoe has been posting comments from Ron, including this interesting one: They have identified quite a large number of potential traps but more investigation is needed to determine if they fit all the requirements to be traps. The way to test if someone is in the trap is...

Thanks for raising this interesting issue, @Simon M! A few questions occur to me: Is he measuring PEM or post-exertional fatigue? The categories used on the pie charts suggest the latter, perhaps. Would it be worth doing the sort of blood tests that the Lights did to see if this test is...