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I’m betting he’s wondering why he ever let them put his name on that one. Oops.

When they get the all over aching pain of a flu type virus are they having an emotional experience?

Ah but it wasn’t the patient who was the first to mention tasing :whistle:

It’s ridiculous that they didn’t foresee the need to address this in their communications.

Merged thread https://www.actionforme.org.uk/news/involving-young-people-in-the-nice-guideline-development/ Not sure if this has already been posted

Yes @Barry i feel I have my battery on trickle charge while coming back from PEM.

Be interesting to know what the £500k was spent on

Yes very familiar

So the “gold standard” Chalder Fatigue Questionnaire is used in these official stats to report the performance of IAPT Long Term Conditions aka MUS as a measure of “recovery” for CFS Executive Summary Appendix 3,

@Arnie Pye :hug: I’m glad you were able to get some benefits from the surgery

interesting story - he had NPH normal pressure hydrocephalus I’d not heard of that before but apparently it does get mistaken for Alzheimer’s https://www.bbc.co.uk/news/world-us-canada-49375308

Ignorant of statistics person question here how can they be sure that their adjustment for demographic issues is completely effective?

Agree with what @Andy said about undiagnosed people I also was one for at least 8-10 years. I felt unwell pretty much every day but managed to work 85% of full time with quite a lot of travel each month to other cities 12-14 hour working/travelling days. On the face of it I wasn’t far off...

Not the BBC but........oops ........not going there

Even longer if disagree and also away on holiday

Or are on holiday.

CFS clinic motto fake it till you make it :rofl: They’re certainly faking having anything that could honestly be described as “specialist knowledge” of ME/CFS

Well I guess if it’s being considered as potentially of use with people who are unable to communicate their pain it’s not too much of a leap for them to grasp that it could potentially validate people who do communicate pain but are disbelieved. Complicated though - if it’s roughly accurate it...

“experts”

He needs reigning in to limit the risk of his bogus approach causing harm to people. I fully support ME Associations actions in complaining to Advertising Standards and if people highlight that to social media platforms all to the good.