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  1. NelliePledge

    ME/CFS success story: Lightning Process on Youtube 2019

    I’ve found it quite helpful when I used to respond to stuff on Facebook when theLP evangelists come on to post a link to advertising standards ruling it seems to be quite effective at shutting down exchanges.
  2. NelliePledge

    Fatigue: The Silent Symptom of Parkinson’s Disease

    My relative who has Parkinson’s has the frozen up state but when meds kick in and they are mobile again actually is pretty mobile and does a lot of walking. Goes between being in a wheelchair and walking about four times as fast as me. I’ve seen them looking exhausted but it doesn’t seem to be...
  3. NelliePledge

    "Body Reprogramming: Patient guide for recovery using the Hyland model"

    Is central sensitivity syndrome an actual diagnosis or is it made up like Fink
  4. NelliePledge

    ME/CFS success story: Lightning Process on Youtube 2019

    Which would be fine if he wasn’t actually selling a product. In which case it’s entirely appropriate to report something making misleading claims.
  5. NelliePledge

    More PACE trial data released

    Did they do anything with the non subjective data?
  6. NelliePledge

    ME/CFS success story: Lightning Process on Youtube 2019

    I think people should be kept to same standard as being clear of cancer ie if you’re symptom free for 5 years you can said to be clear. Although apparently some cancer doctors only use remission even then.
  7. NelliePledge

    Survey of activity pacing across healthcare professionals informs a new activity pacing framework for chronic pain/fatigue, 2019, Antcliff et al

    Gradually increasing goes against the normal useage of pacing which is to maintain a STEADY pace to enable you to reach a goal without becoming exhausted before you reach it. https://www.merriam-webster.com/dictionary/pace%20oneself Gradually increasing is the therapist acting as a pacemaker-...
  8. NelliePledge

    Bias in medicine - Sex and Race John Oliver

    It’s been shown on tv now so might be available
  9. NelliePledge

    The Times - Untouchable ‘diva doctors’ bully staff and put patients at risk (2019)

    Made me think of this I saw recently on twitter https://www.mirror.co.uk/news/uk-news/boy-died-meningitis-just-hours-16248796. Paramedic in particular seems to have been incredibly dismissive of the poor mother.
  10. NelliePledge

    BBC Article - Re 'Mass hysteria in Malaysia' - SW comments

    IAPT is pretty well established as I understand it the CBT I had in 2015 was under IAPT It appears to have begun in 2008 https://www.england.nhs.uk/mental-health/adults/iapt/iapt-at-10/
  11. NelliePledge

    News from Aotearoa/New Zealand and the Pacific Islands

    No probs i did this as part of my old job so every page I go on I’m spotting issues can’t help myself good to be a bit useful :thumbup:
  12. NelliePledge

    Food intolerance testing (York Test)

    I just did it by eliminating a couple of things for a couple of months then seeing how I do when I eat them again. Wheat and cows milk. I definitely notice when I eat wheat so avoid it as much as possible. I think cows milk is less of an issue than wheat but I feel goat milk etc is a better...
  13. NelliePledge

    News from Aotearoa/New Zealand and the Pacific Islands

    Looks good in terms of content a couple of suggestions in terms of useability. Looking at the what is ME section it is quite a lot of scrolling to get through it to find particular topics. If possible it would make it easier to navigate if the contents list had hyperlinks to the relevant...
  14. NelliePledge

    Lyme disease on BBC Today programme

    Which given how shallow the beeb health reporting is may be sufficient to influence a change of attitude?
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