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Perhaps Trevor Butterworth would have a word with Danny Blanchflower too ;)

Agreed @Unable the dictionary definition of pacing yourself does hit the nail on the head we need to bring back yourself. ETA totally agree that the routine and structure stuff is dubious. It’s a fluctuating condition so trying to force people into a routine is putting square pegs in round...

Would be good if they could use ME as a comparator

Ha ha yes the one at DWP perhaps :whistle:

like @Barry i find the idea of having an energy budget helps describe what pacing is like I’ve mentioned before @Keela Too s blog about disposable energy rings true I think something like energy budgeting would work well as an alternative term for pacing...

Would this then be a good question for the likes of Pariante- do you subscribe to the psychoneuroimmunological model of ME

No but it’s good to have it confirmed

Because using your brain needs a lot of energy

Well they are the main researchers. Isn’t it something that was generated by patients?

There used to be 3 practices covering my area 2 now as my old one has since closed down.

Nope it may not be that common but I found it very easy to change to another GP Practice. And within practices there are often several Drs available. I only changed because the practice was relying on locums and I had very poor experience with them. My current GP practice is well run and...

Thanks for flagging this @Hutan @phil_in_bristol i can confirm that this booklet along with AFME booklet about employment/guide for employers are what I based my approach to ME/CFS in the first 18 months from diagnosis rather than resting for several months/a year I went back to work on gradual...

@Stewart i just assumed that the PACE authors would have been asked to comment on the points raised so would have been aware the letter was in the pipeline and maybe they were sent an advance copy which they then shared with SMC. In any event knowing the letter was coming they would have been...

Agreed and I guess if we say the AFME and MEA surveys are evdence of harm it’s difficult to then say there isn’t evidence that some people consider GET/CBT helped them.

No I didn’t take it that way

So the round table on Fibro is much broader than the one offered by Steve Brine on ME training for GPs

Cheers @dave30th sorry for indulging in thinking out loud. :whistle:

i don’t understand the practicalities around press articles. If the journalist has finished it and it has been submitted to the editors is the timing of publication in the hands of the editors or does the journalist have any influence. Just wondering if it has been held back because they knew...

Thanks SL this gave me a belly laugh :thumbup:

Wondering if, having been a response to a single question during the hearing before the Select Committee last year where J Montgomery said he was unsighted on the topic, this letter is weak enough for the Select Committee to consider calling him back to discuss?