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  1. NelliePledge

    Journalist looking for case study with child who has ME

    I could be misremembering but didn’t Merryns family have concerns with the Scum article I think they said they hadn’t even been contacted by the paper?
  2. NelliePledge

    BBC East Midlands Today report on CBT for “health anxiety MUS

    No mention of ME the patient who was interviewed has a Fibromyalgia diagnosis
  3. NelliePledge

    'E-cigarettes help more smokers quit than patches and gum' (30.01.2019) Kelland / Reuters

    Thanks to my dad I was a passive smoker as a child. Luckily i don’t seem to have been addicted to Nicotine through that and hearing his disgusting coughing in the morning was enough to make me completely averse to even trying a cig. Meant I missed out on dope as a student but just couldn’t...
  4. NelliePledge

    'E-cigarettes help more smokers quit than patches and gum' (30.01.2019) Kelland / Reuters

    I have 2 relatives very addicted to nicotine. During a hospital stay my dad was so desperate he would beg to be wheeled to the fire exit and would light up a second cig before the first had finished burning down.
  5. NelliePledge

    David Tuller: Trial By Error: Steve Brine's Troubling Claim in Parliamentary Debate on ME

    Presumably in theory a medical opinion that the so called rehabilitation was a risk to your health would prevent DWP from enforcing it but you would need to find a doctor able and willing to give such an opinion against DWP. And presumably DWP could chose to challenge it and would it not then...
  6. NelliePledge

    Use of antidepressants for/with ME/CFS?

    I have gradual onset so not exactly sure when ME started I was told by a specialist at least 10 years ago. I was diagnosed with CFS 3 years so. Before that I had a minor depression diagnosis and had been on Prozac since 14 years ago. Prozac neither prevented me getting ME or improved it. I...
  7. NelliePledge

    BBC East Midlands Today report on CBT for “health anxiety MUS

    Absolutely did not all about reducing health anxiety and saving money didn’t specify that was from fewer GP visits but.......
  8. NelliePledge

    UK: Social prescribing on the NHS (and possible implications for ME/CFS services)

    In the UK community centres that provided youth clubs spaces for keep fit pensioners groups erc which have been funded by local authorities as community/social service have been slashed. Because health funding has a higher status and a bit harder to slash to the same extent it makes sense for...
  9. NelliePledge

    BBC East Midlands Today report on CBT for “health anxiety MUS

    short report on local news tonight promoting the MUS/psychology agenda Local news is only on Iplayer for 24 hours and not downloadable I will email them asking for a transcript. A woman was shown who feels she benefited from a short course of CBT. She talks about going undiagnosed for several...
  10. NelliePledge

    Trial By Error: Some Thoughts About an Upcoming Article

    Not a doctor - how shallow is that
  11. NelliePledge

    Trial By Error: Some Thoughts About an Upcoming Article

    Yes @Stewart strikes me as high risk too for the same reasons you mentioned. After all drawing attention to the arguments certainly backfired with Mike Godwin didn’t it.
  12. NelliePledge

    Trial By Error: Some Thoughts About an Upcoming Article

    Shows you’re making inroads @dave30th or they wouldn’t be doing this ETA presumably timed to take the gloss off the positive PR for ME community from the commons debate.
  13. NelliePledge

    Stripy Lightbulb - E-learning on ME/CFS - Sally Callow

    I’m sceptical about the value of feedback questionnaires from experience of training evaluation at my old employer and from CFS/me clinic. ETA. I mean in the sense that training providers tend to use of on the spot “happy sheets”. I recognise the value in evaluation using anonymised surveys...
  14. NelliePledge

    Trial By Error: Bristol Investigating Crawley Papers

    If I was @dave30th senior person at Berkeley who had been asked by Bristol hierarchy to have a word with D I would be very tempted to give them a call back to ask if they need any help with their inquiry :whistle:
  15. NelliePledge

    Does your ME cause sleep inversion?

    I take 1mg too as I read on a PR thread that worked for long term usevtogether with taking regular breaks of a few nights. My friend who was bringing them from the USA was told by Walgreens that the 1mg are only used for kids and they didn’t have any in stock so she had to go elsewhere. I...
  16. NelliePledge

    UK: Social prescribing on the NHS (and possible implications for ME/CFS services)

    Yes Wizard of Oz springs to mind people need to see behind the curtain
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