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I expect they will ignore any inconvenient differences in the type of CBT used in the different trials. Past experience with the out of date Cochrane reviews is they take everything at face value, and just crunch the numbers, despite them being meaningless.

Judging by the reaction on Twitter to Solve's CEO speaking at the launch meeting, I'd say Solve is unlikely to promote this campaign any further. I'm beginning to wonder whether the film maker is simply using the idea of a campaign to draw attention to her film that she's making, for publicity...

Their protocol describes what they intend to do with the individual patient data: https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42018107473 They are dividing the studies into 3 batches according to what sort of comparitor/control group they had. Then, for each batch of studies...

I have posted a question to the organisation on their website. https://www.onenamecampaign.com/contact I said:

We've been there done that with the inclusive names, and it's a disaster, giving the psychosomatic clinicians excuses to claim it's all the same thing. Conversion disorder, neurasthenia, hysteria, a whole load of initials like MUS, MUPS, SSD, PPS, functional disorder, FND, PIF, ... And then...

It seems to me an idiotic way to go about such a campaign. I can't understand why Solve or MEAction would lend their names to it. Just because something is well intentioned doesn't make it right. I think maybe sometimes people running ME organisations feel they have to support initiatives by...

It's a pity it's being wrapped up in all these superlatives, when actually it sounds like a very interesting and potentially productive way to go about researching the physiological effects of different treatments on pwME.

It's a book chapter, with only the Abstract and Introduction available at the link. From the Introduction: So it seems to be about the technology used to communicate between different medical providers to enable it to be done securely. I'm sure others here will know far more about this than...

And I'm pretty sure it's a false economy. A simple calculation: 8 people in a group that meets for 8 two hour sessions. That's 16 hours contact time for 8 people. I'm sure a much more effective result could be obtained with one or two half hour individual sessions each, and a few 10 minute phone...

A quick web search yielded this: https://quackwatch.org/cases/board/med/campbell/amended_complaint_2009/ “Toxic Mold” Guru (Andrew Campbell. M.D.) Surrenders Medical License Stephen Barrett, M.D. January 24, 2012 Andrew W. Campbell, M.D., as medical director of the Medical Center for Immune...

I hope so. Ovid Amitay really should have consulted widely before thowing Solve's weight behind this.

I think we need to clarify that this is not a SOLVE initiative, it's as far as I can see the initiative of one woman who is also making a film about ME. It looks like she invited Ovid Amitay to be a speaker at her launch, and he says he supports it, but it's not a SOLVE project.

Thread on the series of PEM videos: https://www.s4me.info/threads/videos-on-pem-bateman-horne-center.33627/

Can you explain more what you mean? I don't understand exactly what is being proposed.