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  1. rvallee

    Sensory Processing Difficulties and Occupational Therapy Outcomes for Functional Neurological Disorder 2024 McCombs, Perez et al

    So, recommendations published without evidence. And not actual consensus either, although this is the dominant school of thought, it's not a full consensus since there is a lot of disagreement over pretty much everything here. Given the huge number of people with LC misdiagnosed with FND, and...
  2. rvallee

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    The excuse that they genuinely believe in what they are doing is irrelevant. Beliefs don't free people from responsibility, even less so for professionals. Otherwise anyone could do anything and simply argue they truly believed it. A bank robber insists that he genuinely believed that the money...
  3. rvallee

    Immune drivers of physiological and pathological pain, 2024, Aakanksha Jain et al

    A warning is a sign of an impending problem. Pain does not occur as a warning of possible harm, it occurs as a signal of harm. Now it could be oddly framed as a warning to prevent more damage, but at the micro level obviously it is occurring not as a warning system, but as something that is...
  4. rvallee

    What is quality in long covid care? Lessons from a national quality improvement collaborative and multi-site ethnography, 2024, Greenhalgh et al.

    That would be a different issue and it seems appropriate here. It's a very rare problem with LC, where the problem usually breathlessness/shortness of breath and this belief about "dysfunctional breathing" is needlessly applied. I've seen that so often. It probably applies more to hospitalized...
  5. rvallee

    The disappearance of ME/CFS

    I so firmly remember somewhere maybe in 2021, a French MD commenting on Long Covid confidently asserting that if the patient has a confirmed test, then it's LC, and if they don't, then it's psychosomatic. Everything else may be the same, the distinction is made purely based on the perception of...
  6. rvallee

    What is quality in long covid care? Lessons from a national quality improvement collaborative and multi-site ethnography, 2024, Greenhalgh et al.

    Useless navel-gazing. The only requirement here is effectiveness, because it encompasses everything that matters. And of course not a single LC clinic is effective at anything, making variations pointless to focus on. This is all by MDs for MDs, writing their own narratives and describing what...
  7. rvallee

    Neurology Update Meeting 2023 – FND in focus (Ireland with international speakers)

    Well, no. Not those services. Literally the opposite of what is largely dismissed as gaslighting and for good reason. Plus it's really something that neither of those specialties do anything besides the same old pseudoscience, this is a rock and a hard place. This stuff is truly the dick pics...
  8. rvallee

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    None of this is mental health strategy. Together or apart. It's neither mental health nor a strategy. This is leisure. Time off. Recreation. And the more you look at mental health care and research in recent decades, the more the pattern becomes obvious: mental health has been redefined...
  9. rvallee

    2021 Pan-Europe ME Patient Survey (EMEA)

    The idea that health has multiple dimensions encompassing those three is wise and good. Even necessary. It definitely needs to happen in the future. But the biopsychosocial model has effectively made it impossible to do this in medicine. The recent renaming of the American psychosomatic society...
  10. rvallee

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    Can't say I see a real difference here, these people are all the same to me. One pseudoscience. Another pseudoscience. Makes no difference.
  11. rvallee

    Development Of a Mouse Model for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Janowski et al, 2024

    I could see some usefulness out of that. So it's a lot worse.
  12. rvallee

    USA 2024: Want to participate in MAESTRO? Chronic Lyme; Long Covid

    Unfortunately, I have zero confidence in this argument. It's a very rational argument that can be demonstrated using simple numbers, but it assumes that health care systems are rational and actually care about abandoning millions of people who don't have demonstrable pathology. We've seen how...
  13. rvallee

    Somatic symptom distress is not related to cardioceptive accuracy 2024 Petzke et al

    Same idea behind: this long-used PROM is bad, we need a different PROM. Rinse. Repeat. Decades pass, zero progress is made. It's amazing how they never seem bothered that a "key mechanism" turned out to be BS. Something that was long asserted as a fact, without any supporting evidence or even...
  14. rvallee

    Exploring the interplay between psychotic experiences, functional somatic symptoms and health anxiety in childhood and adolescence... 2024 Rimvall+

    All models are wrong, but some are useful. Those particular ones aren't. And obviously so. Models of subjective experience built by people who don't have that subjective experience have no chance of being useful. This is universally true. Especially when they don't bother trying to make sense.
  15. rvallee

    Trial Report Comorbidity and Sex Differences in Functional Disorders and Internalizing Disorders, 2024, Thomas

    A common complaint from MDs is that they can't tell the difference. Which is normal, without tests to validate, they usually can't tell the difference between most diseases anyway. And really the people behind this research should think of that and the worst part of this is that they likely did...
  16. rvallee

    Severe difficulties with eating in ME/CFS

    Hey hopefully some middle ground can be obtained where we can all agree that letting people die of starvation is not OK even if it's not explicitly written in detailed instructions under a sub-heading for whatever label they want to apply here. Wish we were here but clearly not. I used to think...
  17. rvallee

    Psychological flexibility in somatic symptom and related disorders: A case control study 2024 Selker et al

    Best I can tell almost none question any of this and think it's great and there should be more of it. Remember how many quotes and surveys and so on we've seen over the decades over how everything about us should be even more psycho, in fact all the bio should be stopped? It would be even worse...
  18. rvallee

    Protocol Personalized Management of Fatigue in Individuals With [ME/CFS] and [LC] Using a Smart Digital mHealth Solution:... 2024 Dorronzoro-Zubiete et al

    What is it that makes people still hold on to this idea that there is some magical way to 'manage' this that will be effective but hasn't been found yet? It's like there is this cultural block against advising rest when really it's the only thing that may help. Well, OK, it's a financial block...
  19. rvallee

    Review An Unwanted but Long-Known Company: Post-Viral Symptoms in the Context of Past Pandemics in Switzerland (and Beyond), 2024, Staub

    Mentions in 2 places but largely ignores the giant ME/CFS elephant in the room. So still a very superficial effort that puts too much emphasis on old events and mostly frames it as an issue during epidemics, ignoring that this happens all the time, just at a lower level. Or that COVID will...
  20. rvallee

    Trial Report Insights into early recovery from Long COVID—results from the German DigiHero Cohort, Mikolajczyk et al, 2024

    Well, they didn't really identify anything useful, but it at least data showing that half recovered naturally without doing anything could spell the end of all the crap rehabilitation that would be great, but I might as well ask for the damn moon so whatever. Anyway this was always likely the...
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