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  1. rvallee

    News from Aotearoa/New Zealand and the Pacific Islands

    The whole framing about the solution being so damn simple, requiring no skills at all, all you have to do is to be open-minded, to not be such a downer ruminating about that illness-so-severe-it-left-you-bedbound-for-days that didn't even happen, since most cases stem from mild illnesses anyway...
  2. rvallee

    Opinion Lessons from a Neurologist After 25 Years of Functional Neurological Disorder Subspeciality Practice 2023 Stone

    These quacks sure do love to invent fake origin stories. Conversion disorder was invented by Freud and has been part of neurology since. It wasn't called FND, but that's about the only difference you could find with what fellow quack neurologists from a century were pushing. It's not even hard...
  3. rvallee

    International Journal of Molecular Sciences: Special Issue "Advances of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)"

    Saw this passing again and it seems that more articles have been published since, 8 in total. Research Evidence of a Novel Mitochondrial Signature in Systemic Sclerosis Patients with Chronic Fatigue Syndrome, Osman et al Circulating miRNAs Expression in Myalgic Encephalomyelitis/Chronic...
  4. rvallee

    Long Covid in the media and social media 2023

    Comes from this, at about 33 minutes: They are just completely lost and incapable of asking for directions. They can't even assess what they do properly. I never could have imagined that things were so bad, even with everything we knew of.
  5. rvallee

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    "Unplanned". Yeah this is the right word. We literally didn't know there was a "hiatus". Unplanned means it happens without warning, not that there is no communication whatsoever about it. Not even a word as to when this "hiatus" even began, how long it lasted, or any information. And it took...
  6. rvallee

    The course of self-perceived cognitive functioning among patients with lymphoma and the co-occurrence with fatigue and psychological distress

    Usually the case when you don't have any after having denied this issue for... ever. Even though: 15% Really? That's catastrophic. You're supposed to do the work if you want results. Don't do the work? No results. Do the work? Eventually you get results. They didn't do the work. Still aren't...
  7. rvallee

    Replication games: how to make reproducibility research more systematic, 2023, Brodeur et al

    Yeah that's been one of the biggest factors why things are so messed up in evidence-based medicine. Sharpe actually replied once to someone criticizing the many flaws in PACE that they should just run their own multimillion dollar trial that takes 10 years to complete. What a ridiculous troll...
  8. rvallee

    The relationship between self-reported chronic stress, physiological stress axis dysregulation and medically-unexplained symptoms 2023 Schulz et al

    They're presenting their hypothesis as highlights? I mean yeah, sure, someone is bound to try that but I guess the journals have just given up bothering to do their job? Just the same old correlations that work best as consequences presented as causes just because they prefer that. But the...
  9. rvallee

    Developing a blood cell-based diagnostic test for ME/CFS using peripheral blood mononuclear cells, 2023, Xu, Morten et al

    Heh, wasn't sure but thought so. I made the comment anyway because it's definitely a thing that comes up a lot, and why even though there is so much frustration going around about 'lazy diagnoses' making it easy to get free money, disability systems are really not likely to be bothered to do...
  10. rvallee

    “Your Blood is Black”: My ME/CFS Experience with HELP Apheresis in Germany

    That's what our human-lizard overlords want you to believe
  11. rvallee

    The Netherlands ME/CFS Cohort and Biobank (NMCB) consortium

    There's a case to make about rapid irritability and sour mood, something normal and expected while ill, exhausted and in pain, but I have zero confidence that people who don't believe there is an actual illness can make that difference. So it's all dependent on what they believe. Change the...
  12. rvallee

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    It may be annoying to deal with after a while, but don't underestimate the power that thousands of people can have in emphasizing the importance of something like this. Maybe it's different in medical academia, though I doubt it, but generally speaking researchers get very little attention for...
  13. rvallee

    Dr. Anthony Fauci on Long Covid and ME/CFS

    I do believe him when he says this, see no reason to think he'd make this up. But his description is very lacking, and I'd be far more interested in knowing why he couldn't do this when he was director of the NIH institute that is most capable of dealing with this. He could have done 1000x more...
  14. rvallee

    Developing a blood cell-based diagnostic test for ME/CFS using peripheral blood mononuclear cells, 2023, Xu, Morten et al

    Heh, not likely. Disability is so hard to get and pays so very little that actual fraud motivated by 'laziness', or anything that could be described as such, is so small that they'd actually lose money if everyone was tested for it, because it's just that small. And we're far from the only...
  15. rvallee

    BPS attempts at psychologizing Long Covid

    It is part of psychosomatic models to never say they mean psychosomatic. That's why they keep using new labels. They just think we're that dumb, but it's because they can get away by simply writing whatever they want to have happened.
  16. rvallee

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    It takes two to swallow an obvious lie: a liar and someone willing to not care how obvious the lie is. At this point I barely blame them, they're being handed praise and awards by their peers. How could they really suspect that they could possibly be wrong given this? They got everything they...
  17. rvallee

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    Same thing with the lazy "Long Covid is inflated" editorial. Looks like the SMC doing a push on both here. Meanwhile record sick leave news are being blamed on 'stress' and mental illness. It's really remarkable just how much propaganda there is on medical issues. I knew to some degree but it's...
  18. rvallee

    Opinion How methodological pitfalls have created widespread misunderstanding about long COVID, 2023, Høeg, Ladhani, Prasad

    This is in the Evidence-based Medicine journal of the British Medical Association. Good grief, medicine firmly is in the post-truth era. These 3 ideologues have basically been wrong about the whole thing and here they are, not only writing a "akshually, everyone else is wrong" article, but...
  19. rvallee

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    Just for fun, I asked a follow-up question: "Are there incorrect facts in the article? And what evidence supports the assertions made by the authors?"
  20. rvallee

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    I decided to ask ChatGPT about this op-ed, and it came up with an interesting answer. See, because officially speaking ME/CFS is described as, and all the evidence supports being, a biomedical illness, just lacking in biomarker and pathophysiology, this editorial proposing the same old ideology...
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