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Persuasion?

An update Health Pathways The webinar will be included in the Allied Health Pathways page for Canterbury, New Zealand by the end of the year when it is updated. It will be included in the next update of Health Pathways page for doctors for Canterbury, New Zealand. I'm not sure how those updates...

Good point. As I said, I haven't yet understood the difference between the two charts of step counts, but here is Fig 3.3. You can see that the mean and standard error ranges for the ME/CFS and Long Covid participants fall almost entirely within those of the healthy participants. I'm not even...

Yes, and presumably you didn't have a child severely ill with the disease that you thought you might possibly have an answer for, giving you added motivation. If Ron had thought there was anything in this, I have no doubt that he would have found a way - crowd funding, investigating the...

As @SNT Gatchaman said upthread, we have a lot of discussion of the preview of this paper: Snippets from White P et al. "Eight major errors in the review process and interpretation of the evidence in the NICE guideline [...]" [for ME/CFS] I haven't looked closely, but a quick read through...

It's really wonderful to see. As well as having science on our side, this time it looks as though we also have the NICE staff and the establishment figures who were on the ME/CFS Guideline committee. Perhaps individuals with ME/CFS don't need to do a lot of the heavy lifting on this one. In...

Accuracy of Hours of Upright Activity (self report) There certainly is a positive relationship between the self reported measure of hours of upright activity and the sensor-measured percentage of time with legs upright, but it's far from a perfect match. This isn't surprising, as...

I note that this is a thesis done as part of a Bachelor's degree. It's a really worthwhile investigation. Well done to the student and their supervisors and clinical and patient collaborators. 3 measures tested: Hours of upright activity (HUA) - standing, or sitting with feet on the floor -...

It is possible that the reason that the nanoneedle wasn't picking up any difference between the ME and MS cells is because it was not picking up differences between any cells, full stop. In which case, the difference found earlier between the ME and control cells was due to some sort of...

Doctors' tendency to include a comment about the personality of the person they see in their clinical letters was noted on a Members' Only thread. I googled to see if other people found the practice rather patronising, and certainly unnecessary. I found this: Yes, Many People Are “Pleasant”...

I've had a look at that study and have made some comments on the thread. I don't find the paper particularly compelling as far as the ratio being correlated with ME/CFS symptoms. It seems to be more likely to be a product of age (and/or possibly acute covid-19 severity).

I had thought that the older people might have been more likely to have severe disease, and so the higher ratio might just have been a result of lung or heart damage, or of their treatments. It doesn't look as though hospitalisation/severe acute disease alone accounts for higher ratios here...

ADAMTS13 regulates VWF. In acute Covid, an increase in VWF:Ag(antigen) and a decrease in ADAMTS13 has been reported. 50 healthy controls were used to determine the healthy VWF(Ag)/ADAMTS13 ratio. They don't say whether some/all the healthy controls had recovered from Covid-19, or the age or...

I thought this was an interesting point. It's one thing to have a horrible disease. It's worse to have a horrible disease with no effective treatment. It's even worse to have a horrible disease with no effective treatment and lots of people telling you that if only you did this, or that, or...

Gammanorm? What organisation is offering this therapy?

This does look like an interesting and useful study. I haven't read the paper yet. I just would like to point out, in a pedantic way, that the wording in the article i.e. 'what proportion of patients benefit from a therapy' is not an accurate description of what has been measured here. The...

And many people who do know better are okay with that, because they believe in the power of the placebo. As in, it doesn't matter if the packaging is spurious if it helps 'mind over matter'.

great idea, Phil Parker's weird background would make for an interesting documentary

Could something like persisting measles account for the sore throats that some of us experience in PEM?

:) WG: Yep. And if it gets a bit iffy, we'll just say that it's an organic disease with a functional overlay.