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  1. rvallee

    Psychological and demographic factors associated with fatigue and social adjustment in young people with severe CFS/ME (2018) Chalder et al

    The concept of evidence-laundering really needs to have a tough discussion within medicine. "Two wrongs don't make a right but 7 obviously do" is just not the kind of thinking that should have a long shelf life.
  2. rvallee

    David Tuller: Trial By Error: Steve Brine's Troubling Claim in Parliamentary Debate on ME

    That could certainly explain some of White's friend's histrionics. It's a pretty big hole they have dug themselves into and there is no coming out of it without accepting responsibility, blame and consequences. Or maybe not. But if not that's quite a coincidence.
  3. rvallee

    David Tuller: Trial By Error: Steve Brine's Troubling Claim in Parliamentary Debate on ME

    And particularly breaking apart Brine's statement about patients having the right to refuse treatment. Apparently... they don't entirely. Not officially, anyway. Given the nature of how governments are responsible before parliament, this was not an off-the-cuff statement, it was prepared and...
  4. rvallee

    David Tuller: Trial By Error: Steve Brine's Troubling Claim in Parliamentary Debate on ME

    That's the point. They don't because any proper assessment would quickly show this is not relevant at all here. It is not a credible claim, hence why it is merely by implication, rather than actually processed. But more importantly an assessment cannot be a broad stroke, it is a personal...
  5. rvallee

    David Tuller: Trial By Error: Steve Brine's Troubling Claim in Parliamentary Debate on ME

    Something I've been thinking for a while but this is declaration of mental incompetence by implication. ME patients are assumed to be mentally confused and as such incapable of making decisions for themselves, as a broad stroke and without even an attempt at making individual assessment...
  6. rvallee

    Psychological and demographic factors associated with fatigue and social adjustment in young people with severe CFS/ME (2018) Chalder et al

    I think it's just busywork to keep the pretense that research is ongoing. With regular publication of this type of research it maintains the illusion that it is a valid area of research since it keeps on putting out papers (nevermind that they're all pretty much the same "research" done over and...
  7. rvallee

    David Tuller: Trial By Error: Steve Brine's Troubling Claim in Parliamentary Debate on ME

    It's pretty much inevitable. It's just a question of when the levee breaks. It may be years away, but it will. Once it does there will be much scrambling and throwing dead weight in front of very large double-decker buses. There will be attempts at presenting sacrificial lambs but it won't be...
  8. rvallee

    David Tuller: Trial By Error: Steve Brine's Troubling Claim in Parliamentary Debate on ME

    I have previously described this as an ouroboros of bullshit but I take it back. It's more appropriate to describe it as a human centipede of delusional bullshit, where some chains in the centipede clearly being occupied by the same people in a reality-breaking symbiosis, maybe some quantum...
  9. rvallee

    A general thread on the PACE trial!

    The 2 likes on this tweet are funny and pathetic, it's the psychosocial sock puppets. He could seriously get in trouble if he continues like this. Oh well.
  10. rvallee

    The Mirror: Veterans with debilitating Gulf War Syndrome may have passed it on to children

    From https://www.bbc.co.uk/news/uk-12195884: Hopefully that kind of money would be given to people who would actually do something about rather than finding creative ways to blame them for it. No doubt "trying to help those who are ill" would involve the kind of world-class research you can...
  11. rvallee

    Psychological and demographic factors associated with fatigue and social adjustment in young people with severe CFS/ME (2018) Chalder et al

    This is still the original framing that Wessely et al promoted from the 80's. Nothing has changed to their rhetoric. Completely stuck in an ideologically-fixed frame of mind. "Could be". "May be." 3 decades of forcing their ideology through and still absolutely nothing to show for other than a...
  12. rvallee

    A general thread on the PACE trial!

    I'm thinking there may be things happening behind the scenes. In some tweets he's bordering on histrionics. It seems deeply personal and emotional, likely an appeal from White. It's a very fragile house of cards, after all. Once things start unraveling there won't be much left standing of this...
  13. rvallee

    METRIC (UK) Royal College of GPs' online course on ME/CFS

    I'm so sick of this argument. It's a thought-terminating cliché. There are hundreds of health problems for which there is no help, some with minimal impact, some terminal. It's not a real issue. The only rational response is to help with the impact and do research, which is what is usually done...
  14. rvallee

    A general thread on the PACE trial!

    As well as the ones we got following the Cochrane report where "random" academics were seemingly shocked, *SHOCKED* I tell you, about unspecified misconduct that was, well, unspecified, but surely worthy of the harshest condemnation and performative public shaming. Total coincidence that most...
  15. rvallee

    Effects of a health education program on cytokines and cortisol levels in fibromyalgia patients: a randomized controlled trial, 2018, Pernambuco et al

    I have seen far too often "waiting list" being cited as a passive form of treatment. I guess it's a thing, apparently one that makes no distinction between waiting for nothing and waiting for actual treatment. Or it probably does in most cases and as always there's just exceptions for...
  16. rvallee

    A general thread on the PACE trial!

    So it's been revealed that Blanchflower is a friend of Peter White (bravo to those who found it, I checked for associations myself but missed it by checking only Wessely and Sharpe :p), hence his bizarre obsession with PACE (rather than the general psychosocial debate). Unfortunately he seems...
  17. rvallee

    (Not a recommendation) Bath University, Volunteer for research investigating Chronic Fatigue Syndrome

    Kind of telling that the purpose is policy development, rather than, you know, actually helping people, especially in the context of a review that was forced because there were so many complaints (this detail is really getting lost IMO). Supply-side medicine, patients need not apply.
  18. rvallee

    UK Parliamentary debate today - Thursday 24th January 2019

    Ah, my bad. But there was one shared recently from ME Association (I think) that had similar numbers. There was another one from Norway as well, I think? But somewhere around 1K respondents as well. We're really lacking in updated data here. Bits and pieces everywhere just isn't good enough...
  19. rvallee

    2018: Discussion on the NICE procedure: what to expect next?

    I seem to remember that several competent participants were excluded for being suspected to be "attached" to a single perspective. Double standards, clearly. As someone pointed out, Jo Daniels was the one who tried to do the shopping bag study. Oh, how we should not miss out on that level of...
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