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  1. rvallee

    Journal of Medical Ethics - Blog: It’s Time to Pay Attention to “Chronic Fatigue Syndrome” (2019) O'Leary

    I agree 100%. Still worth taking it seriously as well, even if it's just to have it all on record (again). There just should be no illusions that it will be played fairly or that reasoned arguments will tip the scale from its position of imbalance. It's important that the process be approached...
  2. rvallee

    Journal of Medical Ethics - Blog: It’s Time to Pay Attention to “Chronic Fatigue Syndrome” (2019) O'Leary

    Not necessarily individually. It's collective, the way we don't have a choice to play nice with people who argue in bad faith and (mostly) restrain our language out of legitimate fear that it will be used against us, twisted and focused on tone, ignoring the substance. One slip-up can backfire...
  3. rvallee

    Journal of Medical Ethics - Blog: It’s Time to Pay Attention to “Chronic Fatigue Syndrome” (2019) O'Leary

    But NICE clearly defer to eminence and I don't see them challenging Wessely and his acolytes, who can make their lives miserable. They are absolutely not beneath that. It would be a huge paradigm shift that means eminent people who are still very influential were completely wrong despite being...
  4. rvallee

    Journal of Medical Ethics - Blog: It’s Time to Pay Attention to “Chronic Fatigue Syndrome” (2019) O'Leary

    FINE is the basis of the NHS training course. Being objectively wrong is not a problem to the psychosocial ideology. Of course the psychosocial ideologues on the NICE committee will present the Cochrane review as evidence. Unless it is retracted by then, which is unlikely. I don't see the...
  5. rvallee

    Journal of Medical Ethics - Blog: It’s Time to Pay Attention to “Chronic Fatigue Syndrome” (2019) O'Leary

    And I don't really see the point in pretending that they don't. Of course they 100% do. That they are deceitful about it does not change this fact. It's really a question of potato-pothato whether they mean the disease is the belief, or the belief leads to the disease, of the belief follows the...
  6. rvallee

    Journal of Medical Ethics - Blog: It’s Time to Pay Attention to “Chronic Fatigue Syndrome” (2019) O'Leary

    Years of (some) medical professionals acting in bad faith against the interests of the people they claim to be helping will do that. I think there is value in examining, eventually, the traumatic effect this has had. The psychosocial crowd just rammed their ideology through, indifferent to...
  7. rvallee

    Psychology & Health: Perfectionism and beliefs about emotions in adolescents with chronic fatigue syndrome and their parents (2019) Chalder et al.

    It's that second-hand perfectionism that will get ya. It just floats out there in the myasmia, follows you along with all the pre-scientific psychoarglebargle about beliefs and emotionally-generated symptoms.
  8. rvallee

    Journal of Medical Ethics - Blog: It’s Time to Pay Attention to “Chronic Fatigue Syndrome” (2019) O'Leary

    *cough* Peptic ulcers *cough* Literally the same mistake, for the same reasons, argued with the same illogical made-up arguments. The ideologues currently promoting the psychosomatic model of ME would have argued exactly the same about ulcers, ranting about whiners who just don't like being...
  9. rvallee

    Psychology & Health: Perfectionism and beliefs about emotions in adolescents with chronic fatigue syndrome and their parents (2019) Chalder et al.

    Ideological dogma is usually self-sustaining: being right proves it just as much as being wrong. Nothing that they do makes sense from a rational scientific perspective. Everything does when you consider they are purely ideologically driven, indifferent and incapable of finding fault in their...
  10. rvallee

    A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al

    That's pretty much what FINE, PACE and similar trials normalized. It's now accepted for psychological "research" to do everything they can possibly make to bias results and still pretend they have something significant, at least when it comes to BS "treatment" of chronic illness. It's...
  11. rvallee

    A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al

    "When it's too good to be true, hype the crap out of it, promote it relentlessly, never back down, charge people as much as possible, make evermore outlandish claims, reject the premise of every objection as the whines and rants of idiots and label your critics as unhinged militants" Hmmm... I...
  12. rvallee

    A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al

    But totally not a cult. It's just a coincidence that this is how cults recruit. Totally legit. It's going to be such an expensive anchor on their neck in the next few years. Giving institutional credibility to pseudoscience is something that needs severe punishment, many medical licenses will...
  13. rvallee

    Trial By Error: Who Has the School Study Documents?

    I'd like them to describe the service being delivered. Surely service evaluation has to actually name the service being delivered. What is that service? And how does it relate to the actual evaluation? Of course it doesn't help that it was published under research. Sometimes the devil is in...
  14. rvallee

    MEpedia and Internet Archive

    I see that robots.txt is not configured. It's a special file that tells search engines about updates and which pages are most important. Without that search engines do a basic crawl and set their own rules based on affluence (more visited sites get more interest, but this only works at much...
  15. rvallee

    Psychology & Health: Perfectionism and beliefs about emotions in adolescents with chronic fatigue syndrome and their parents (2019) Chalder et al.

    It's laughable to claim p-values from a subjective questionnaire. It's like giving triple-floating point precision on a guesstimate. Forced precision like this is a big tell that angels dancing on a hairpin are being discussed. This whole disease personality stuff is no more scientific than...
  16. rvallee

    Personality and fatal diseases: Revisiting a scientific scandal, 2019, Pelosi

    Of course... :banghead: You can barely look anywhere in this dumpster fire without finding conflicts of interest and extensions to the circle jerk. It's really amazing. Really bad idea to rely on a system of uncritical deference to eminence and old boys' network.
  17. rvallee

    Mitochondrial complex activity in permeabilised cells of chronic fatigue syndrome patients (2019) Tomas, Brown, Newton, Elson

    Pathogens have definitely not been ruled out. We don't know much about the vast majority of pathogens out there and some pathogens previously thought to be harmless are being found to have possible disease-causing mechanisms in some people. A study published last year in Nature suspects EBV (or...
  18. rvallee

    Psychology & Health: Perfectionism and beliefs about emotions in adolescents with chronic fatigue syndrome and their parents (2019) Chalder et al.

    They're talking about beliefs as if it's something that can be measured in any standardized way. Who gives approval for nonsense like this? You can't measure "unhelpful beliefs" any more than you can measure chakra energy, vitality or whatever marketing terms used by alternative medicine. This...
  19. rvallee

    Psychology & Health: Perfectionism and beliefs about emotions in adolescents with chronic fatigue syndrome and their parents (2019) Chalder et al.

    Let's see: it is possible, it may be, may have, could be. This is more speculative than astrology and of equal scientific value. I have second-degree cringe from the incompetence on display. Campfire drunks regularly manage more serious and meaningful discussion than this. It's completely...
  20. rvallee

    Psychology & Health: Perfectionism and beliefs about emotions in adolescents with chronic fatigue syndrome and their parents (2019) Chalder et al.

    WTF is emotion regulation style? How does anyone determine what style of emotion regulation one has and how does one measure that style in a scientific way that can have application to medicine? How does one decide what perfectionism is? This is the same fundamental issue as with fatigue: what...
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