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Prolonged psychosomatic illness is medicine's philosopher's stone. There is evidence for acute events in alarming situations, but not detached from an actual traumatic event and leading to prolonged illness. I think it's an obsession for many, they badly want to be the one who will finally make...

I think there is value in evaluating this as a public relations effort to sustain the work by continued exposure. If GPs regularly hear about this research, no matter how bad it is, it helps maintain its status as valid research. Especially as most of them will never hear about the real research...

They're using their own previous flawed logic to justify further flawed reasoning. Patients relenting to downplay their symptoms on a self-rated questionnaire does not add up to being recovered when it follows "treatment" that primarily consists of convincing the patients to downplay their...

What's the point of this? That's literally the opposite of how science works. "What do you think you have?" "I don't know Doc, that's literally why I'm here!". Other than reinforcing the belief that belief is the cause of this disease, there is literally no use for this, even if it was...

I came upon a thread on the medicine subreddit (I won't link because they hate that) but a comment really jumped out at me. I think it really describes exactly what is wrong with medicine to cause situations like ours, because they seem to take a small fraction of their actual difficult patients...

That's clearly because they keep pronouncing leviosa wrong! Which is still better than pronouncing nektu wrong, wouldn't want to bring demons into this world with such a simple mistake.

Uuhhhh.. citation? Of course there is no citation for this. There have been multiple studies on the mental health of ME patients and they all found no significant differences with the general population outside of what should be expected of any illness and how it impacts quality of life and...

I don't know how convincing it will be as an argument seeing how humans are notoriously bad at anticipating future consequences, but those involved, especially at The Lancet, NICE, BMJ and Cochrane really need to think long and hard about what will happen once the house of cards they so...

Ironically enough, I find it important to be grateful of the good things in life and practice this naturally. It's nice and all but the much more likely explanation is that healthy people tend to find it easier to be grateful about good things in their life because they are less burdened by...

It's a take on the God of the gaps argument from natural philosophy (i.e. pre-science "science"), where any phenomenon that could not be explained was attributed to God. Particularly, that it has to be the explanation, not just that it could be. I'm frankly astonished at how strongly this...

:) I did a few takes on it but still some reflection to get it right. I'll get it one day, if I get the old brain to be more cooperative.

I'll believe it when I see the opposite: when someone uses their mind to raise their body into a state of hyper-health independent of anything else. That is: someone sedentary, eating a horrible diet and otherwise doing everything wrong health-wise but manage to remain fully healthy by the power...

Even by Sharpe's standards this is weak. It could mostly have been written verbatim 150 years ago, mentions of the immune and endocrine system aside, so about a single sentence in the whole. Science shouldn't be argued on the basis of "may bes" and "could bes" alone, this is ridiculous and...

And the myth that it's a first world disease hides what is likely millions of deaths in the developing world over the past half-century. Living with ME in a society that does not have a safety net only leaves one outcome and it's early death. Those are not counted because most people with a...

This is a good test of whether the hype in the past few years over patient engagement can actually lead to something constructive, or whether it's just theater. So far there is still a huge disconnect between patients and medical professionals. It's not at all a relationship. We are still firmly...

So many papers mixing up cause and effect entirely in ways that defy disbelief. Like the psychosocial ideologues puzzling over why sick people think they are sick, as if it were some deep mystery. I'm getting a sense that Occam's razor is not a prominent of medical school curriculum.

If we get a primary treatment that works, I think rehabilitation is more likely to involve the use of elastics or other types of restraints to stop us from bouncing around freaking everywhere. There will likely be more broken bones from people rushing to use wobbly legs and crashing into things...

I have not seen a thread yet on the survey so there it is. Hopefully this is the right forum. The full report: https://www.efna.net/wp-content/uploads/2018/07/EFNAYoungPeopleSurvey.pdf. The ME-specific report (link in full report is incorrect)...

It may not address the stated problem but it certainly addresses the problem they are actually trying to manage: reducing costs. There seems to be this weird idea floating around in the past few years that biomedical science has found everything it would ever find and the rest is just dotting...