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  1. Mij

    Circadian rhythm disruption in [ME/CFS]: Implications for the post-acute sequelae of COVID-19, 2022, McCarthy

    This was my experience too, I had hypersomnia in the first 9 years of M.E. I woke up feeling refreshed, but still needed to nap soon after I ate breakfast, after lunch and then fall asleep early in the evening. When severe insomnia hit 10 years later (lasted 2 years), I longed for the...
  2. Mij

    Magnesium

    Many pwME experience vertigo/vestibular disturbances and vertigo migraine that might be an indication of mg deficiencies.
  3. Mij

    Magnesium

    The reasons they give for mg oil stinging doesn't make much sense to me, the claims they make are almost bizarre tbh. They go on to advertise "no sting magnesium bath flakes". Would that mean you're not deficient or that it's not helping? #1 Choose a magnesium product more suitable for...
  4. Mij

    The effect of water temperature on orthostatic tolerance: a randomised crossover trial, 2022, Lain T Parsons et al

    Water boluses, which involve drinking glasses of water in rapid succession, can help to expand blood volume. The specific amount reported in the medical literature varies, but is approximately two 8 ounce glasses of water.
  5. Mij

    Magnesium

    @Hutan There might be a difference between 'food grade' mg chloride and the regular compound. I buy all my bulk organic spices, sea veggies, coconut oil, olive oil et from this store once a year. I noticed that they sold 'food grade' mg chloride flakes that is ok for consumption too. On...
  6. Mij

    Magnesium

    @Hutan Are you saying that you have burning sensations after applying mg oil? I feel prickly sensations on my skin, but that comes from the salts of mg, it's very uncomfortable. I water it down with more water after 20 minutes.
  7. Mij

    Magnesium

    Exatest lab measures magnesium and other minerals in the cells, not RBC.
  8. Mij

    Magnesium

    From his website. The all caps and exclamations marks :emoji_rolling_eyes: About Us The supplements we speak about and recommended are available directly on our site! For those of you who know us here at the Shealy-Sorin Wellness Institute, you know 2 things: 1. We NEVER promote...
  9. Mij

    Meaning of the word 'malaise' and its use in the term Post-exertional malaise (PEM)

    I agree @Trish I don't have many symptoms when I pace. I get vertigo and malaise when my immune system is acting up which is transient. My disabling symptoms are from autonomic distress. When I'm in PEM it feels completely different from day to day M.E- completely different.
  10. Mij

    Magnesium

    My heart started racing really fast when I added 2 cups of epsom salts to my bath water. At first I thought it was the warm water, but that racing didn't occur with water on it's own. I'm not sure what that was all about so I stopped taking epsom salt baths and just use the transdermal.
  11. Mij

    Meaning of the word 'malaise' and its use in the term Post-exertional malaise (PEM)

    @duncan How many minutes do you get during your doctor visit? I only get 8-10 minutes ;) I talk really fast before she's out the door.
  12. Mij

    Magnesium

    @Hutan thanks. I missed that. I don't absorb supplements so will continue with the transdermal application. It's possible that it does absorb somewhat? The abstract that was posted does show lower calcium and potassium status after 6 weeks from applying mg chloride. This...
  13. Mij

    Meaning of the word 'malaise' and its use in the term Post-exertional malaise (PEM)

    Telling your doctor that you have 'orthostatic intolerance' isn't going to describe how this negatively/disables your life either. I got that glazed over eyes look from my doctor when I mentioned it once years ago, I never mentioned it again. I told her I had chest discomfort when I'm...
  14. Mij

    Meaning of the word 'malaise' and its use in the term Post-exertional malaise (PEM)

    What term would you suggest better describes PEM in one or two words to a physician w/o a biomarker? We could also add that over exertion amplifies all other symptoms including cognitive function that disables us to bed for days, weeks, months . . .
  15. Mij

    The effect of water temperature on orthostatic tolerance: a randomised crossover trial, 2022, Lain T Parsons et al

    Funny thing is that I found drinking warm milk (hot cacao, pink of salt) to be very hydrating and helped with orthostatic stress. I don't urinate for hours, unlike water that keeps me up all night.
  16. Mij

    Exercise Training in Post-COVID-19 Patients: The Need for a Multifactorial Protocol for a Multifactorial Pathophysiology, 2022, Cattadori et al

    Sorry, I missed this post yesterday. Yes, I've come to learn from reading M.E groups/forums that PEM does vary from person to person. This has not been the case for me, my delayed PEM has followed the same distinctive pattern since PEM started. Perhaps this has been an advantage in...
  17. Mij

    The effect of water temperature on orthostatic tolerance: a randomised crossover trial, 2022, Lain T Parsons et al

    Abstract Purpose Bolus water drinking, at room temperature, has been shown to improve orthostatic tolerance (OT), probably via sympathetic activation; however, it is not clear whether the temperature of the water bolus modifies the effect on OT or the cardiovascular responses to orthostatic...
  18. Mij

    Sex differences in autonomic recovery following repeated sinusoidal resistance exercise, 2022, Joseph Carere et al

    Abstract A simple bodyweight squat is sufficient to cause substantial stress on the autonomic nervous system (ANS) via ~30–50 mmHg blood pressure (BP) oscillations. However, it is unknown to the extent of the ANS is impacted during and immediately following bodyweight and resistance squat-stand...
  19. Mij

    Meaning of the word 'malaise' and its use in the term Post-exertional malaise (PEM)

    To be fair, even Leonard A. Jason has difficulty defining what is occurring during PEM. He uses 'fatigue' a lot in his definition. I don't expect my GP to understand and have never mentioned PEM to her in 31 years. Yeah downplaying is irresponsible and harmful to patients, I agree.
  20. Mij

    Meaning of the word 'malaise' and its use in the term Post-exertional malaise (PEM)

    The ramifications of LC will certainly put more focus on how the immune system may be abnormally sensitive to the modulatory influence of the autonomic nervous system. We all want a better term to describe our malaise (PEM), but 'un malaise' in French medical terms does include cardiac...
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