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I would have thought you had the right to burn books as much as any of us! Maybe that's the idea - you get real paper to set a match to.

I think that must be the implication. So ME activists are nazis. Of course if they really were suffering from a biopsychosocial condition then psychiatrists should be sympathetic to their unhelpful beliefs about them (as they would be for paranoid schizophrenics for instance) so it would not be...

I think my journalist friends might do the nose trick with their claret reading that bit.

Yes, I suspect some of my journalist friends will be chortling into their claret over this book. Last time I had lunch with Jerome Burne and James LeFanu SMC did not rank highly on the credibility stakes. Maybe that is why Fox has to bang her own drum - nobody else ain't going to bang it for her.

If we want to help PWME with useful information I think we should know and care. These so-called associations of ME, EDS, MCAS, autism whatever were not discovered by patients. You can trace them back to publications like the original Rowe paper on EDS and fatigue (I think 1999). I was in the...

She certainly makes a lot of things up in selling the ME/PACE story.

try this?

I think one has to separate out the features that occur as part of sa specific acute illness and which may persist as markers of damage from that specific illness. That would include loss of taste and respiratory problems from lung damage for Covid and neurological signs possibly suggestive of...

But one of the Foxes saved herself from ME by becoming a communist didn't she? I think that might have been Fiona.

What I see is patients reporting symptoms of ME/CFS (a real illness) and squeezing those into a whole list of irrelevant diagnoses. But that is exactly how the whole thing goes around and around. The so-called associations are invented by some fringe physicians wanting to make a name for...

I was thinking maybe asking her isf she knew she had fulfilled Godwin's law but that despite being a chum of Wessely's Mike Godwin thinks that PACE is... A piece of crap.

There is an interesting passage on how she helped the poor PACE chaps to counter the suggestion that PACE and XMRV were equally bad. The most striking thing that comes across reading the intro and the ME chapter is her complete lack of engagement with the content of the science nd its quality...

I got the e-book in two ticks for £8.49. That certainly is the title for the ME chapter. I will write a review right now.

I am wondering if she has picked up on any of my militant remarks? I have been thinking about doing a Division of Medicine Grand Round at UCL on the state of play with charlatanism in clinical trials and what not. This would be a good thing to build it around I think. 'First they came for the...

I am not sure pareidolia has come into it much since the supposed connections were 'discovered' by this or that physician about 20 years ago. The patterns of testimony are real. You only have to read the newspapers to see that everyone has POTS and MCAS and EDS and whatever. And they are a...

I think they are confusing two quite different usages of subjective. There are subjective symptoms - only knowable directly by a subject. And then there are subjective reports of symptoms - subject to bias. The problem is the relation between the two. There is a childlike naivety to their...

I also think we have to be aware of just how much support groups are themselves contributing to this problem. The material from Ehlers Danlos Awareness quoted by Tilly is complete garbage, full of false logic and non-existent facts. Yes, we should respect what patients experience but, no, the...

You seem to be missing the point though. How do these patients come to have these strings of diagnoses? How do EDS and POTS and autoimmune come to go hand in hand - only because the patients have been given these names by doctors! These are not 'lived experiences' they are what people have been...

Stephen Holgate may have played the politics in a way that has worked out well for PWME. But, nope, to be taken in by the BPS crowd is not 'understandable'. It was glaringly obvious to me that these people were bullshitting right from first coming across them. They talked a talk I had heard...

And I don't think there is any evidence for that either. The only way these diagnoses are linked all together - EDS, POTS, autoimmunity, autism, ME/CFS, CCI, MCAS, whatever - is by physicians and psychiatrists on the fringe of medicine who like to give patients disease names. A lot of them...