Search results

But reduced cerebral blood flow is surely something suggested by Campos-Costa thirty years ago and never verified?

I would be interested to know what was actually said but I find it hard to believe it was quite that. I imagine that Strauss was saying that he did not want to give the illness the implication of some known physical mechanism, such as causation by a virus or presence of inflammation of neural...

As indicated in my replies above. In the UK we just need a functioning medical care system, full stop. I realise that PWME have had a raw deal but the reality is that the system has collapsed for everything now. Education is going backwards. The whole thing is a disaster because health care...

Michael Hanna is very knowledgeable about mitochondrial disease affecting muscle power. He is at the National Hospital Queen Square.

Yes one is a concept based on an idea of what causes the problem the other is a concept based on a problem needing a cause. Quite different categories. Medicine commonly pigeonholes people into both sorts of categories and often it works quite well. However, it also quite often leads to...

As I understand it the symptoms are not similar. I think patients get into thinking that if two diseases include headache or shortness of breath then that means they are likely to be similar. Medical diagnosis goes way beyond listing symptoms. It is a bit like saying that two problems that...

I think it is interesting to see this sort of attempt to invoke trauma for a condition for which trauma as a cause is inherently very implausible. It casts a light on similar studies in ME. The studies are probably not directly comparable but it shows that people will try very hard to get the...

On the face of it this looks like unhelpful perpetuation of exactly the thing she is complaining about. Let me try some answers: When did ME begin? Nobody knows. The outbreaks people talk about are largely irrelevant. What is the origin of the false name “chronic fatigue syndrome?” It was...

Discussion moved from the Long Covid in the media thread Has this Guardian article been posted? Alarm after EHRC says long Covid should not be treated as disability Equalities watchdog statement provokes backlash from coronavirus support groups and unions...

Just because some people think it is a problem does not mean that it is. From a brief glance at that paper it just shows that estimates of 'overtesting' vary so wildly as to be meaningless. In my experience overtesting is very often a function of not medicalising enough - in the sense of...

The situation is certainly very complex and all sorts of confusions are possible. On the other hand in the 1990s I think quite a lot of neurologists would have pigeonholed anyone with odd neurological symptoms without signs into 'ME' either because they believed ME had odd neurological symptoms...

No I am not. She mentioned a Facebook group and I commented. My other comments relate to other detailed issues. I think the conversation has drifted away from the basic point that failure to produce ATP by mitochondria does not plausibly explain ME symptoms when considered in the detailed...

Actually, for what it's worth, the NICE guidelines say that therapy should be done by a properly trained therapist - sorry Mrs Rothney, you don't count.

I don't think Mike Murphy's view would be 'in the past', @lunarainbows. He was picked as a top mitochondrial disease expert by IiME and is currently working in the area at Cambridge. I do think you need to be careful about what goes on on Facebook groups. Quite a high proportion of members may...

Autogenic Training was invented in 1950 and there have been 1,300 papers on it since then - rather fewer in the last twenty years. There appear to be no quality trials with a Cochrane Review concluding evidence was poor. The list of journal names for papers is bizarre - things like Complementary...

A foolish consistency is the hobgoblin of little minds, adored by little statesmen and philosophers and divines. With consistency a great soul has simply nothing to do. He may as well concern himself with his shadow on the wall. Speak what you think now in hard words, and to-morrow speak what...

Ye I think so. He attended one of the IiME meetings and Jo Cambridge and I had lunch with him and we discussed the symptom issue. He had heard all about PEM all morning and was aware of other features like sensory sensitivities. He was clear that he did not see how these things could be...

Actually for mitochondrial disease this is to the case as I understand it. Things are more complicated. But I am not sure how relevant all this is anyway.

No doubt people with mitochondrial disease will report fatigue but as everyone on this list says, that is not really what ME symptoms are about. And I think this sort of account is fairly unhelpful. People with any disease can have any symptoms if you keep asking. I have not looked after...

No doubt people with mitochondrial disease will report fatigue but as everyone on this list says, that is not really what ME symptoms are about. And I think this sort of account is fairly unhelpful. People with any disease can have any symptoms if you keep asking. I have not looked after...