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  1. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I ask myself that question routinely and there is frankly no good reason other than people not wanting any bad news about what they are doing, basically doing the equivalent of creative (aka criminal) accounting of just counting income and ignoring expenses. Which is actually a Simpsons gag...
  2. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Flottorp is completely incoherent. Almost reads like drunken ramblings. This wouldn't even be an acceptable quality standard to run an ice cream shop. These people are complete amateurs, I have no idea how this is considered serious and credible.
  3. rvallee

    Evaluation of Fatigue in Cancer Patients in An Area Affected by the Great East Japan Earthquake, 2020, Sato

    "What if we actually compared apples and oranges?" said very weird people. Really starting to think that the main reason medical research is so expensive is because so much of it serves absolutely no purpose and has no chance whatsoever of providing anything of value, that there is a tendency...
  4. rvallee

    Covid-19 - Psychological research and treatment

    I'm having a hard time deciding whether this is a low-effort content mill or a serious article. Covid-19 Fatigue Syndrome: Finding the Unknown and Unknowable https://pro.psychcentral.com/covid-19-fatigue-syndrome-finding-the-unknown-and-unknowable/ Serious or satire? I really can't tell.
  5. rvallee

    In progress: A systematic review & meta analysis of the incidence of, and risk markers for, [CFS] and [ME] in population studies, 2020, White

    Oof. This is especially bad. Some of the graphics make me think of conspiracy theorists putting random labels and arrows on various concepts and pretending it means something. Seriously you have to look at it to appreciate it in full. It mostly boils down to cheap philosophy over the duality of...
  6. rvallee

    Cognitive behavioural therapy for adults with dissociative seizures (CODES): a ... multicentre, randomised controlled trial (2020) Goldstein, Chalder

    This is a terrible response from the Lancet. The op-ed is in June's edition, they were not overburdened until then and I see no reason why psychiatry should be so overwhelmed by an infectious disease pandemic. It's insulting in its weakness. This is not how scientific debate works. Stifling...
  7. rvallee

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    Excellent. Again. The whole series is just excellent. It's nice to see faces to familiar names. The absurdity of this being known and documented and happening alongside the descent into madness in Norway and Denmark is frankly incredible. I've only had a few short episodes of severe symptoms...
  8. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Pretty much :) Although I think of it more as "energy efficient". I have to say it comes in handy when having to deal with the ME monster, I was energy efficient before I had to be.
  9. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    This all really sounds like things they easily should have planned for. If the plan is "paint myself in the corner" you can't really use the fact that you are stuck in a corner as an excuse for being stuck there. This is typical for BPS but totally inexcusable of journals and various oversight...
  10. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    It's only one person's perspective but I am generally speaking a stoic, stress response is not really part of my behavior. I have kept perfectly normal conversations going while smashing the brakes to avoid a close automobile collision. Twice. It's not a skill or anything, I am just generally...
  11. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    That it takes the single most disruptive event in human history for medicine to "discover" something that has been denied for years despite ample evidence.
  12. rvallee

    Impact of symptom focusing and somatosensory amplification on persistent physical symptoms: A three-year follow-up study, 2020, Barends et al

    Ridiculous. There is no way to measure focus in any meaningful way and obviously stronger symptoms are more noticeable. Good grief this is so juvenile in its incompetence how these people are even allowed to work on important matters is beyond reason. One of the most fundamental problems in...
  13. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Very insightful and necessary discussion. It only marginally concerns us but only because this is about the much broader issues in evidence-based medicine. That line about author bias, though, absolutely perfect. The underlying problems are as fundamental as it gets and are far from unique or...
  14. rvallee

    Primary care providers' use of and attitudes towards placebos: An exploratory focus group study with US physicians, 2020, Bernstein et al

    There's a reason placebo is the control for nothing in formal trials: it is nothing. It's a measurement error that occurs only about things that can't be measured. Whenever anything is measured it disappears, because that's all it is, an imprecision from being unable to formally measure...
  15. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    With the Cochrane review and NICE guidelines coming up, I expect there will be more of this. It's always maximized for PR effect and there were pretty much promises of scorched earth attacks on Cochrane if they did the right thing, it's likely that this will be even worse given the high stakes...
  16. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Somehow that's never part of the discussion even though it has incredibly damaging impact, all the way to denial of medical care. These people are literally our bullies and like all bullies they always play the victim. It's disgusting, morally bankrupt.
  17. rvallee

    Rename Pain Catastrophizing (Stanford study/survey)

    A project from what seems to be the Stanford Division of Pain Medicine surveying the patient community over the notion of pain catastrophising and how to better define and label it. I did not manage to offer an alternative name. I am not fond of the proffered alternatives either. It's pretty...
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