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This might explain why conjugated linoleic acid improves my sleep. Too many complex interactions for me to be sure. I'll add PPAR to my list of terms to search for occasionally, for new insights into ME.

I can only think of one example: a friend had a canker sore in his mouth, so his Chinese mother sent him to a TCM doctor, who prescribed 'watermelon frost (fungus on watermelon leaves)', and that worked really well for him. My guess is that TCM tried all sorts of different treatments for this...

This statement would apply just as well to treatments picked randomly and intended for other diseases. Take a bunch of ME patients, give them toe fungus treatments and spleen transplants or whatever else, and maybe throw in some magic crystals and mystic rituals, and you'd get some patients...

Once someone develops a proper neurological basis for how neurological function affects thoughts and emotions, it would probably be better to start a completely new branch of science. Psychiatrists need not apply, except as freshmen. Way too much baggage. What comes to mind is the eastern...

It fits my thoughts on ME, just with higher detail.

Well, I guess there are some people who actually do deserve to develop ME. Then see how happy they are with nonsense doubletalk.

This viral infection may have been the trigger, but not the cause of her ME. I had viral meningitis ~10 years into my ME: it made my ME symptoms worse for a couple of days. I do agree that ME needs to be recognized more easily by physicians, whether it's post-infection or any other trigger...

I get cold sores (HSV-1) on skin that gets colder than normal (lips, below nostrils when nose runs), and find that they clear up quickly if I apply heat to them. So yes, I agree that some infections might be quite temperature sensitive. It could also be that the cytokines released to attack...

My ME seems to be insensitive to changes in my sleep patterns. I do tend to feel worse at a certain time of day, but that could be fairly downstream of the circadian system. I'm guessing that after their research is complete, this statement will still be true: "evidence linking circadian...

From Google: "Floaters are broken-up bits of dead cells that stay in the vitreous humor in the back of the eye." I have loads of floaters, and have had them since I was young. I'm terrible at noticing things because my floaters have trained me to ignore 'little moving things'.

I can't judge the value of the research, but this is the sort of abnormality I expect they'll find in PWME: something that doesn't show up on the 'standard' testing, yet does interfere with normal brain function.

If I got stabbed in the butt, I'd run fast too. :woot:

No, that's a terrible name for this disease, because it's possible to have the other symptoms without having PEM. PEM is one symptom, not the core dysfunction. I dislike the term 'CFS' because of its history as a psychosomatic disorder. I try to avoid using 'ME/CFS' because of the 'CFS' part...

So are Olympic rowers going to have IV stands on their sculls? ;)

How likely is it that the testing will lead to a useful treatment or warn you of a serious potential problem that you could avoid? I vaguely recall reading of a few cases where such testing has led to a treatment for some rare disease, or warned of something avoidable, but how many 'worthwhile'...

Yes, but a lot of those non-memorable bits may add up and trigger someone's breakthrough.

The tools and knowledge base from covid research will probably help ME research. If some covid group gets funding to develop a non-invasive tool for measuring blood flow in brain capillaries, that can also be applied to ME research. A database of glial cell properties in covid patients plus...

I think it's likely that they'll find that the aberrant eye movements will vary with the individual. One PWME will have trouble focusing, while another will have trouble tracking, and another will have convergence problems. I think ME varies in which parts of the brain it affects to which degree.

A laptop could use a usb speaker system too. I don't use my computers when lying down, but I expect it would be reasonably simple to arrange a keyboard+mousepad for use. The monitor can be arranged in some way, such as the product Forbin showed. If you can find a way to arrange the...

It's a matter of correlation. I tried a wide variety of foods, and my symptom increase correlated only with proline. I didn't bother to do a detailed statistical analysis using 1000 unrelated foods or anything like that, but the principle is valid. From my experiments, I'm confident that...