Search results

That's true. Now to find time to re-read it!

It's hard to judge from just slides, but the Luis Nucal presentation seemed to be promoting some form of OT led 'management' for patients. At the moment, I think that it would be better to put that money into further research, rather than almost worthless 'care'...

A good sign that scepticism of PACE is spreading.

Also... welcome to the forum.

Google translate often does a passable job. We could just host Google translations (maybe with some voluntary tinkering by anyone who speaks the language), so that they might turn up when people do searchers in other languages.

Looking back, perhaps we could have done more to make use of this. I think that at the time many of us failed to realise the potential value of these sots of reports.

Matthew Hill also did this 1999 programme on the same issue: http://news.bbc.co.uk/1/hi/programmes/panorama/archive/506549.stm My understanding is that he got considerable pushback from authority figures for the 1999 programme, and that this prevented him from doing any sort of follow-up until...

212,894 views already! I knew this was going on, but it was just when I was getting dinner. Probably would have been wise to prioritise asking questions there. I keep being busy when I want to be able to do stuff on-line at a set time. I've now had too much of my life devoid of time-management.

I don't know. Engaging people in discussion about these things? Linking to some of the good summaries that have been done (eg Tuller's)? Making it clear why it really matters to how patients are treated around the world? And making it clear that having patients be well informed, and able to...

People are who more suggestible might find it more dangerous too. Some people can really try to commit to living according to the unreasonable approaches promoted by therapists like this, and get messed up by it. Some sort of simplified positive thinking may be good for some people, but even...

Even if it's not the sort of detailed analysis we'd ideally like, a side bar like that is still a number of steps forward from where we were a few years ago. I think that even if not many journalists are willing to dig into all the details themselves, more and more of them must be noticing that...

The title alone makes me shudder: "Annie Hoppers Dynamic Neural Retraining System"... brrrr. Too many buzzwords.

This is now on sci hub, but for some reason it didn't give me a direct link to post (never done that before). I gave up reading this half way through - it just looked like more pointless building on a foundation of sand. I did skim the rest and pull a couple of bits out in case they interest...

He signed the open letter raising concerns about PACE... I'm a fan! http://www.virology.ws/2016/02/10/open-letter-lancet-again/

Enough positive info that it's worth funding a large trial, and to feel a bit hopeful about it, but it hard to say much more than that.

If he's logged in, he may not have realised that you need a journalist's log in details to access the link.

If sent by a journalist, maybe it's currently under embargo?

Yeah, I guess I hadn't focussed so much on what I hoped from the forum. re S4ME: I'd like it become a place where patients and researchers could come to test their ideas against people happy to be critical and pick apart the views of others as robustly as they can. I know I've learnt a lot from...

Yes, I think Montoya can be overly bold.

It's probably worth waiting for the release of results for the multi-centre RCT (which they're just analysing now, and should be released next spring). There have been reports of individuals reporting full recovery... but it could be that was unrelated to their use of rituximab. Fingers...