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I don't think that was really seen as important. I vaguely remember some discussion of this, and I think that there are ways of making things look 'neater', and maybe standards on this have changed over the last few years? I don't really know though. I've never done any lab work myself, so this...

And there's no control group, people tend to be positive about worthless things like homeopathy and, as you say, over half the UK sample went missing anyway. The UK's CFS services have soaked up huge amounts of money over the years, and seem to have done almost nothing of value for patients...

Maybe they're in the midst of picking apart Crawley's quackery... seems unlikely Action for ME would let them speak then though.

Sounds like it should go up here at some point: https://www.royalfree.nhs.uk/about-us/become-a-trust-member/medicine-for-members/

I see value in keeping them separate. Some people prefer podcasts, others prefer articles.

Does she say HV is her grandfather? I've forgotten where that came from.

Thanks for the notes. I understand it, but also it is a bit annoying as that mentality has not been great for us over the last few decades. Hopefully doing that sort of work will also mean that they will fund research that is more likely to pay of in the long-run.

No worries. It can be helpful for ones own thinking to try to answer other people's questions. Those images are PCR bands. Even if you were to conduct and identical experiment on identical samples you could not get images that looked the same like that. They're clearly the same image. All the...

That journal does seem fairly consistently shit. (at least on ME/CFS/MUS/etc)

It's a bit interesting to look back on the XMRV thing. It was that which really got me paying more attention to CFS research, and was also a good crash course in learning about the importance of blinding, independent replication, etc. It probably was helpful for encouraging patients to learn...

I'm not that interested in the specifics of their subgroupings, so while I pulled out some bits that interested me, it's going to be missing the details of that stuff. This was just done on a glance while eating breakfast, so I might have made errors. It's all done on self-report of symptoms...

http://www.jpsychores.com/article/S0022-3999(17)30841-3/pdf posted by @Sly Saint in another thread, so it's getting it's own thread here.

I think that there's good reason to be extra cautious on family-matters though, especially if there's any doubt. "They falsely accused me of fabricating the sacrifices my grand-father made in the war, despite a record showing that what I said was true" would not be a good look. When there are...

To be fair, given the current state of UK medical 'education' on the topic, I think I'd prefer to keep awareness pretty low... let us hide in the shadows!

Thanks. For some reason I'd assumed Ouch had stopped on the BBC. Anyone listened to this yet?

Here's the event page, although it has no further details on Chalder's talk: https://www.kc-jones.co.uk/uksbm2017

Nope, you don't get to hope for a universal cure... lets keep it plausible people! As someone with a mild PACE obsession, I spend much more time hoping that junk-science gets picked apart rather than that good science will lead to real progress anyway. I dare to hope that we will see the...

My head can start swimming with this stuff. I'd been confused by what the R&D committee was. Time to start printing things out and going through with a highlighter!

Could timelines have been different for posh people back then? They were up to all sorts. Wikipedia said: Probably worth being extra cautious with stuff like this.

Yeah, I didn't mean to imply you were credulous about it.. I'm not sure the book is even her view - I think it's possible it's a more cynically constructed narrative than that. But I don't know. From what I remember the blog did a pretty good job of going into the details. A really simplified...