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Not open access! Was there a very similar paper to this recently too? Maybe I'm just confused and they're really the same thing.

Although pictures of sick children do emerge, so there must be a way of getting consent. Although I'm not sure that Crawley's understanding of the issues around informed consent is the best.

Bumping because today's the day, but tbh i don't really understand how this works on FB.

Thanks for that Denise.

It looks like she's a regular columnist on health issues, rather than someone who did a big investigative report. By those standards, and despite the flaws, this is a good sign of the narrative turning against the PACE crew. When so much is unknown, and there's so much misinformation around, it...

It would be good to know what is said, but I doubt I'll ring in from the UK.

I think @Barry responded better than I could. That lot often imply more than they say, and then offended when patients criticise things that they didn't exactly say. It's a cycle that we normally end up coming out worse from, so I think it's worth trying to be as precise as possible, making sure...

I thought that this bit really reflected the Fink spin on things, but other than that it's not too bad.

I thought that this blog was a bit loose in some points, as Crawley/Bristol can be quite evasive with their language. eg: Crawley actually said that ""I couldn't put a picture of a patient up today, because I was really worried about them being attacked, like I am attacked. It is the nature...

LOL. WTF? Wibble-wibble...

That does read like a rather confused article. LOL at 'weeks'.

Although if participants receiving an experimental drug are given reasons for positive expectations of it's effect, I'd still expect that to lead to greater biasing of subjective outcomes. Yes, that seems an important thing to examine when looking at these sorts of problems. Did you see...

Completely agree with the positive thanks in the first post... feel a bit sorry for those who donate to Action for ME in the hope of helping people though.

Best wishes to everyone on this. I thought it was pretty unlikely to be an effective treatment for me personally, as I was assuming it would be a null result, although with a substantial chance of finding a positive effect for a sub-group of patients. But even with that scepticism, I still saw...

I never have. I could do though. Thanks, I'll bear it in mind.

Thanks Andy. And of course, thanks to Mike too. It's really been a marathon of marathons, and it's really impressive to see how this campaign has also been used to successfully generate decent media coverage too. Great work!

Thanks for letting us know. Downloaded a copy now. Has anyone got a reply from TEDx Bristol about Crawley misrepresenting that slide? Not a good look if they're more concerned about protecting their copy-right than the accuracy of the claims made in their talks? Although... TEDx was in the...

Thanks. I feel like I've not used MEpedia much until recently, and there's loads of good articles on there now. I just started reading that, and wondered if it's a mistake to have the talk about what ME/CFS is not so early in the article, or to talk about the 'illness beliefs' model as being...

Someone else pointed out a few years ago that a lot of articles in the Journal of Psychosomatic Research seemed to have superfluous references of work by the journal's editor.

Looks open access: https://academic.oup.com/aje/advance-article/doi/10.1093/aje/kwx344/4604571 Association Between Risk-of-Bias Assessments and Results of Randomized Trials in Cochrane Reviews: the ROBES Meta-Epidemiologic Study. Savovic J, Turner RM, Mawdsley D, Jones HE, Beynon R, Higgins...