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Thanks to Kind and Lipkin.

I agree that it's often better to start by criticising people in a gentle way, and to try to be as helpful as possible. I might try to do that regardless of status. It can also be hard to know what 'status' someone has. What if a mere PhD student ends up becoming a media sensation based on spun...

I was thinking of the criticism of how people like Andrew Gelman have been critical of Amy Cuddy, eg: https://www.nytimes.com/2017/10/18/magazine/when-the-revolution-came-for-amy-cuddy.html There, it almost seems like it was thought mean for high-thinking methodologists to criticise a mere...

PS: Looks like the ActiveME app mentioned in that article has been abandoned: https://itunes.apple.com/gb/app/activeme/id458308805?mt=8

It's probably best to be cautious with speculations on this. We can't really know, and we've seen how other people's speculations about the motivation of PACE critics are often nothing more than a reflection of their own bigotry. It's hard to prevent oneself from speculating on the...

It is so widespread amongst people with power and influence, and we need to win more of those people over if we want to make speedy progress. Also, I don't think that it's as simple as them just being calculatingly self-interested. I think that many of them have a genuine sense that they're in...

I see some people raising CFS/PACE concerns in the replies on twitter. Always good to get more critical attention on the SMC and Fiona Fox.

It really does seem to be the case that many of those in 'soft' science see debate, questioning and calls for transparency as 'harassment' and 'abuse'. It baffles me, but I think that it is a culture we're going to need to try to understand.

Their attempt to explain this was attached to the Vada article: Response from the University of Bristol A spokesperson from the University of Bristol said, ‘The recent FOI request to the University of Bristol asked for information relating to “official records” of harassment of our staff. The...

Looks like both Peter White and Debbie Smith disappeared from their timetable. Someone said Smith was also at Barts, and she was due to speak on: "Postural Orthostatic Tachycardia Syndrome (POTS): A claims epidemic waiting to happen? Debbie Smith, Chief Medical Officer, Swiss Re"...

So Tom Cruise won't be able to donate $2 million to scientology at 00:01.

Thanks for the french perspective @Nicolas the french guy , and welcome to the forum.

I vaguely remember that patients were really hopeful about this clinic, and that it was set up by someone patients trusted, but that then this person got side-lined. I was always suspicious - the 'complex chronic disease' title smelt like a trap.

Public Relations - don't worry! It wouldn't surprise me if the article was largely based on a press-release.

But it wouldn't be okay to post about it here? Rule 11 is thought to apply to descriptions of how other ME/CFS patient forums helped develop someone's understanding by providing useful information, debate, etc?

Thanks. Is the letter you're responding to public as well, or was it intended to be private?

So does that mean @Sly Saint would be okay discussing their experiences on other forums and how they learnt more about Action for ME?

I always cringe when politicians talk about Lamb's great work on MH. I've never seen him move beyond just thinking that politicians should do more of what the Royal College of Psychiatrists tells them.

I have no authority here, and my judgement doesn't matter, but imo that rule was not intended to stop people discussing their own experiences, history, learning. It was just intended to try to avoid bad-blood about what was happening on PR becoming a defining feature of discussions here. It...

Here's the SMC page on the paper, in case of interest: http://www.sciencemediacentre.org/expert-reaction-to-paper-on-health-and-social-care-spending-and-excess-deaths-in-england/ I've not looked at the paper itself, so can't really judge the comments.