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  1. Ariel

    Covid-19 vaccination experiences

    I am also very worried about this. Constant jabs and an immune system (probably) behaving in an unpredictable way (ME/CFS) worries me. It's one thing doing a one-off in an emergency, but... yikes.
  2. Ariel

    Covid-19 vaccination experiences

    I am 38. (I am assuming my GP put me in group 6 but I wasn't told - I have not had any communication and I am trying to speak to them, but haven't been able to). Would side effects translate to ME/CFS worsening though? I feel like people are mainly discussing transient effects, no matter how...
  3. Ariel

    Tendon issues in arms

    I've had issues with my tendons for the past 11 years, a few years after the onset of ME/CFS. At first I thought it was connected to piano playing, but I had to stop that. This also didn't explain why I got problems in my feet/other areas too eventually. My physio said it was some kind of...
  4. Ariel

    Covid-19 vaccination experiences

    I got my vaccine text but I don't know whether to get the vaccine. I'd be a lot more comfortable with the Pfizer but it seems likely to be the AZ (I am in the UK and that's what my parents got); I don't know what to do about this. I'm worried about having an ME/CFS relapse. I've already had...
  5. Ariel

    Trisha Greenhalgh on ME/CFS and Long Covid

    The linked thread contains a bunch of people who are pointing out that she has blocked them. It's not even criticism. It's certainly clear that lack of sycophancy = abuse in the minds of some.
  6. Ariel

    Trisha Greenhalgh on ME/CFS and Long Covid

    I have just been reading this latest development. My mind is melting. Perhaps someone could get TG in that case to confirm that promoting GET for Long Covid would be harmful?
  7. Ariel

    Trisha Greenhalgh on ME/CFS and Long Covid

    Her responses were really good. I am genuinely moved by the poise and steadiness of so many. It gives me hope.
  8. Ariel

    Trisha Greenhalgh on ME/CFS and Long Covid

    I was not that diplomatic in replying to related nonsense today from NA (in relation to her defence of TG); she does not seem prepared to listen or engage with anyone who is not being ingratiating, sadly. And for all of the disingenuous claims of TG and others that they have been trolled and...
  9. Ariel

    Dispatches: The Truth About Long Covid Monday 15th March, 8pm

    I'm so glad! Honestly we could do without more harmful BS at the moment. I may watch it when feeling up to it - the whole topic is still quite upsetting. Do you think it will help people understand the relevant issues? I'm relieved! :)
  10. Ariel

    Dispatches: The Truth About Long Covid Monday 15th March, 8pm

    Don't think I can bear to watch it having seen that first tweet. :(
  11. Ariel

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I am wondering where PG is going with this, if anywhere. Is he really going to set himself up as an LP practitioner, or...? Don't know how anyone could take him remotely seriously. Is he really going to keep teaching students about how to do "evidence synthesis" after claiming to be cured from a...
  12. Ariel

    Antivirals as ME/CFS or Long Covid treatments (e.g. valacyclovir, valgancyclovir, amantadine)

    Personal anecdote about taking valacyclovir, raised in this thread (I have ME/CFS and long covid): I have been taking valacyclovir for 6 years now. (I had an initial EBV onset when I was a teenager but became much more ill later in my mid 20s, and have been sick for the past 13 years, don't...
  13. Ariel

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Unfortunately people seem to be ignoring or not really hearing this part of what she said, whereas I saw it as the key quote. I fear she is managing to sound reasonable to too many people, who are missing the key point. I do hope people come to understand that this is absurd, but it would...
  14. Ariel

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    The Guardian really should have told them their "opinion letter" was actually more of a tweet, and referred them appropriately.
  15. Ariel

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Disgraceful. Why does the Guardian seem to go out of its way to give airing to these views?
  16. Ariel

    Trisha Greenhalgh on ME/CFS and Long Covid

    Has anyone pushed back on TG's comments to the effect that "nobody gets long flu"? (!!!) I couldn't bear to try to follow it in real time. This shouldn't be the sort of thing someone in her position can claim and get away with? :( Sadly I saw people agreeing with her.
  17. Ariel

    Open Cervicocranial dysfunction, neuroinflammation and infection in ME/CFS compared to healthy subjects, Bragée & Bertilson [MEPRO study]

    Can someone explain some of the context here? I would appreciate it; I am unaware of it. I did not know that! I have been sick for well over a decade and haven't always followed what is happening online; recently I came back after a while and all I saw was spine/structural causes content. I...
  18. Ariel

    Dr Myhill’s complaint to GMC about PACE authors.

    Does anyone have any sense of whether this will go anywhere? Seems unlikely; is anyone helping her with her efforts? I admire her determination but she seems a lone figure. I hope she is getting good advice somewhere, as things have seemed somewhat impractical in the past.
  19. Ariel

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Plea from BMJ editor to listen to a "community" of one: Paul Garner, who beat illness through grit and strength of character - they could have used that instead
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