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I'd rather see the research funding going towards figuring out what we all have in common, rather than studying downstream symptoms that only some PWME have. If resources were unlimited, sure, maybe it would lead to a treatment for a symptom faster than trying to find one that treats all ME...

Even that is probably only 'a large subset of PWME' rather than something all PWME have. I didn't notice any reduction in my physical capabilities after significant exertion. I'm guessing that I wouldn't show a reduction on a properly done CPET test.

Things found in old recipes, such as flours or grains or seeds. Over the years I've noticed several such things disappear from the shelves. It's not just foods. Ammonia used to be a common cleanser. I looked for some recently, and couldn't find any. Replaced by fancy brand-named cleansers.

One thing I've noticed is that it's getting hard to find basic foods. On my last trip, I wanted to try some lamb, and the store only had one package of chops and two larger cuts. I used to see frozen legs cut into chops, but couldn't find those now. I guess the space has been given over to...

My weight started to rise rapidly just before my ME developed (a link there?). My solution was to simply reduce my meal sizes. That worked really well, and I fairly quickly dropped back to my previous 'normal' weight, and continued to drop. I also learned that cutting too much fat from one's...

I've heard a lot of Canadians returning from trips to the US say that they were amazed at the size of American meals; much larger portions than served in Canadian restaurants. What's the caloric difference between a typical French meal and a typical US one?

I had slightly reduced 'good' cholesteral, so my doctor recommended omega-3 supplements or statins. I did my own online research and found that statins weren't all that effective (and had worrisome side-effects) and that omega-3's lacked any reliable research findings that indicated more than a...

Hey, maybe they're all curry-loving people that cumin works for as a PEM blocker. :) As Invisible Woman says, it's a mess. It sounds like they did a poorly set up experiment and then tortured the results until it provided an interesting result.

To me, the lack of a definite 'all PWME have this virus' finding means that ME is not a viral disease. Viral infections might trigger ME in people susceptible to developing ME, and might increase the severity in PWME who are susceptible to that, but that there are also other PWME who triggered...

"specify time from onset to first ME/CFS formal medical diagnosis" It's been 20 years since my ME started, and I still don't have a formal medical diagnosis. There is no clinical test, so the best one could achieve is a doctor's 'professional opinion', and I haven't seen any point in bothering...

I almost expect a paper to come out revealing yet another, separate, immune system in our bodies, that no one had noticed before. They keep finding new organs, new lymph channels and other new--and important--bits of our bodies, so maybe they'll discover that RBCs engulf pathogens, or that...

I noticed the article too. My thought is that they discovered a separate sleep function, and that it possibly only applies to simple brainless organisms. I don't think it suggests that we should ignore the neural-refreshing aspects of mammalian sleep. Neural sleep may have provided the needs...

The paper supports my hypotheses for ME. For quite a long part of my ME, T2 (3-5 diiodothyronine) was an important treatment for me. A single dose would block an otherwise worsening of my symptoms for a very consistent 21 days. Hampering thyroid function, and thus T2 levels, would make my...

One thing that bothered me about the ME research projects is that their email addresses disappeared. If a patient discovers something, whether a treatment or a reliable correlation between symptoms and some factor, how do they pass that along to the research community? I considered the...

How about laying in bed while a boxer pummels you? :blackeye:

If that's what it did, it could be remarketed as "Pet cat in a pill. No litter box to clean!". :emoji_cat2: Regarding the pill in question, I really don't think that it offers health benefits to bedbound people. Larger unexercised muscles might even be detrimental.

I wonder whether there's some sort of bias against following up (or funding) research that has been done x years ago, even if it's suddenly become more relevant.

Have there been a clear clinical answer to the question: "Do PWME have lower ATP production and/or reserves?" I've seen some studies saying yes, and others saying no, but I haven't seen one yet that definitively answers it. However, I think the question should be "Do all PWME have lower ATP...

Yes, I think it's the neurons involved in motivation not functioning normally. There seems to be some understanding of the parts of the brain involved in motivation, so it's not a complete mystery. I'd study that research material and try to figure out why my ME is affecting motivation ... but...

If it had been clearly labelled: "One hypothesis", I wouldn't have a problem with it. At least it's something other than "It's a psychiatric problem". Saying that the graphic explains ME is simply wrong.