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  1. shak8

    Neuropathic pain

    The research article I read about lipoic acid used 600mg/day as their dose. They had positive results when they tested at 5 weeks out. I wonder if you are taking too much?
  2. shak8

    Neuropathic pain

    This is sort of unrelated, but in my literature search (after getting angry about a psych-social and functional somatic disorder article) I remember reading about how people with fibro, etc. focus too much on their pain. That's the opposite of what helps me. If I don't tune in to my...
  3. shak8

    Transcultural, transdiagnostic and concurrent validity of a Control Scale of ME/CFS, FM & Type 1 Diabetes

    About as fruitful as trying to parse an inane philosophical tract. Psychiatrists live with the fairies.
  4. shak8

    NIH: Accelerating Research on ME/CFS meeting, 4th and 5th April 2019

    I'm sorry, I meant my going back to uni for probably 20 years.
  5. shak8

    NIH: Accelerating Research on ME/CFS meeting, 4th and 5th April 2019

    Might have to go back to uni for what, 10 years?
  6. shak8

    NIH: Accelerating Research on ME/CFS meeting, 4th and 5th April 2019

    Terrific program and thank you so much for finding schedule/presenters.
  7. shak8

    Does anyone here get worse in relation to stress?

    Bravo for the reliable and complete answer. Clear and rational. Thank you for taking the time to write this. I've bookmarked it.
  8. shak8

    Neuropathic pain

    I am on week one of a five-week trial of alpha lipoic acid (if indeed that's what's in the capsules) for some neuropathic fibromyalgia, pre-diabetes pains. The literature is fairly positive on lipoic acid for neuropathy. The reason I opted to try it because a McGill Uni-trained MD on an...
  9. shak8

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    I (in the Venn between fibro and ME, if there is such a thing) just donated. In 1968 or so, Ed Bayley was the first dean of the UC-Berkeley graduate journalism dept and offered my dad a science instructor post in the department. Poor Dad pooh-pooh my diagnosis of fibromyalgia back in 1996...
  10. shak8

    Article : The Trump Administration Wants to Snoop on Disabled Americans

    I hope your government (or lack of) doesn't adopt our hodge-podge system of healthcare. But troubling to me is how institutional psychiatrists were able, in the NHS, to pull a Crowley, a Sharp, etc. Makes me worried about NHS over here in the USA. Slight change of subject: is there a chance for...
  11. shak8

    Open Chronic fatigue syndrome participants wanted for aquatic exercise trial Published 22 February 2019

    Even moving in a 94 degree warm pool is incredibly fatiguing. Water exerts so much pressure. If you have muscles that are always painful, and you challenge them by moving through water, not pretty. And yes, noisy and crowded. Maybe one could do 5 minutes but why waste all the effort just in...
  12. shak8

    Psychiatry's Incurable Hubris

    and in the same issue this: https://www.theatlantic.com/science/archive/2018/11/psychologys-replication-crisis-real/576223/
  13. shak8

    NYTimes Opinion: "Is Pain a Sensation or Emotion" - H. Warraich 2019

    After reading that article this morning, I will try not reading any more articles about pain in news outlets nor routine publish-or-perish research articles. Ditto for the opioid crisis. I don't need to be reminded that society wants to take away my low dose opioid, the only treatment that...
  14. shak8

    NYTimes Opinion: "Mental Illness isn't All in Your Head" - L. Pryor 2019

    Why the incessant professional ($$ ?) need to rehash and reclassify all sorts of nonsense in the psychiatric field if not because psychiatry has limited efficacy. They are psychopharmacologists. Oh what luxury to have debates with colleagues about this tripe when patients suffer from mistrust...
  15. shak8

    Rod Liddle in the Times: "Always fatigued — yet they never tire of claiming their malady really is a virus"

    Fact: fibromyalgia has been recognized as fibrositis, and previously rheumatism, in the 1800s per Robert Bennett,MD of Oregon Health Sciences Center (myalgia.com) rheumatologist and clinician with 5000+ fibro patients. A poisonous example, yet again, of the fluff (and this is nasty stuff)...
  16. shak8

    Independent: Father attempted suicide and family almost lost home after GP missed common genetic condition for six years

    If he had been a woman of child-bearing age, perhaps the doc would have run the full iron-ferritin tests and made the diagnosis. Still, a dimwit of a clinician, what a lack of caring.
  17. shak8

    Psychological impact of fibromyalgia: current perspectives, 2019, Reyes Del Paso

    Interesting review of current trends in thinking and research about fibro. Useful bibliography. But I am not sado-maso. Of course, it hurts my feelings to read about the emphasis on psychiatric illnesses but then, fibro can drive you mad (in so many ways: OCD, depression, bipolar). If there is...
  18. shak8

    Central sensitisation: another label or useful diagnosis? (2019) Nijs et al.

    Yup, central sensitization, which is a theory of how chronic pain becomes chronic, is now going to be a corrupted phrase. It's the big brush-off. They don't like patients who present with symptoms they can't slap a diagnosis on. So wham, in the waste-basket. And of course, the patients are...
  19. shak8

    Pioneering pain research leads to landmark deal - KCL 2019

    Whether the compound(s) that will be developed will be effective (note how much the FDA-approved fibro drugs were over-hyped by the medical community for years before the real-life, rather poor efficacy was teased out) will remain to be seen. I'm not a fan of the one-shot, "take this magic...
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