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  1. NelliePledge

    OMF: Does ME/CFS Change Molecularly Throughout a Day? Jonas Bergquist & Christopher Armstrong's New Study 2022

    Fair point @Ravn from what we hear in commentary on the Tour de France road race cycling teams have lots of monitoring data
  2. NelliePledge

    Covid-19 vaccination experiences

    I managed to drive myself to my booster appointment this pm. Believe it or not it was a Pfizer again so that’s 4/4. Hopefully given I didn’t have anything other than punched arm bit of a headache previously I should be ok. My arm does hurt quite a bit. the session was in a very well...
  3. NelliePledge

    NHS Health at Work website

    Wow that’s some determined overlooking
  4. NelliePledge

    Discovering strengths in patients with medically unexplained symptoms – a focus group study with general practitioners 2022 Jøssang et al

    I would think the majority of people living with chronic illness have considerable strengths and it is bizarre that people need to be “encouraged” in order to be able to see that also what is so difficult to understand about patients only going to see GPs about problematic symptoms you don’t go...
  5. NelliePledge

    Mindfulness Meditation Interventions for Long COVID: Biobehavioral Gene Expression and Neuroimmune Functioning (2022) Porter & Jason

    Yes @Peter Trewhitt your posts are always pretty useful but this one is top notch and I agree with Trish that the researchers would benefit from reading it.
  6. NelliePledge

    Depression in paediatric chronic fatigue syndrome 2013 Bould, Crawley et al

    Shame it doesn’t mention that the request was made because of HRA review.
  7. NelliePledge

    Mindfulness Meditation Interventions for Long COVID: Biobehavioral Gene Expression and Neuroimmune Functioning (2022) Porter & Jason

    It’s like so many of these things we’re entreated to do to improve health. Eating kale doing some yoga or as advised by Gerada getting off the bus a stop earlier and walking more, all things that can make a non-ill person a bit fitter. A bit of light meditation can be good if you are a healthy...
  8. NelliePledge

    Covid-19 vaccination experiences

    Got mine booked on Thursday as it’s now 4 weeks since I got Covid. I’m keen to get it as soon as I can. A couple of relatives one who is badly affected by Parkinson’s have had Covid after me and had already had boosters their symptoms haven’t been as bad as mine and the one who had been...
  9. NelliePledge

    New York Magazine - Intelligencer: Has Long Covid Always Existed, by Jeff Wise, November 2022

    Well he quotes Sharpe doesn’t he so presumably believes the guy has some expertise I assumed the people he’s quoted are ones he’s actually spoken to.
  10. NelliePledge

    Possible Application of Melatonin in Long COVID 2022, Cardinali et al

    Melatonin helps me get off to sleep earlier than I would do without it under my normal conditions, it has no impact when I have PEM wired insomnia.
  11. NelliePledge

    New York Magazine - Intelligencer: Has Long Covid Always Existed, by Jeff Wise, November 2022

    Jeff the NY News guy is grumpy because people with 300,000 and 400,000 more twitter followers disagree with his article he’s not bothered about considering whether they have made any valid points just feeling sorry for his hurt pride
  12. NelliePledge

    Website 'neurosymptoms.org' founded by Jon Stone, funded by the Scottish Government promoting Recovery Norge

    Diagnosis overshadowing I think they call it. In my opinion because I had minor depression diagnosis contributed to a delay of about a decade in ME diagnosis.
  13. NelliePledge

    In progress: Rehabilitation Therapy for Post COVID 19 Chronic Fatigue Syndrome, 2022 -

    What’s the etiquette on researchers writing to peers if they see studies that are replicating something known to risk harm to participants.
  14. NelliePledge

    Changes after multicomponent group-based treatment in patients with medically unexplained physical symptoms 2022, Polakovska et al

    Yes I agree There are some potential knock on benefits from the validation of taking part in something like this. As well as giving a connection to others in the same boat from the actual programme. Validation can come from the ability to talk to family friends and if relevant colleagues about...
  15. NelliePledge

    BMJ: Activists demand more funds for ME research

    Activist/campaigner I have no problem with these words. I think this article is ok it makes clear the activists/campaigners include broad selection of MPs researchers.
  16. NelliePledge

    Elevated ATG13 in serum of pwME stimulates oxidative stress response in microglial cells , 2022, Gottschalk et al

    They don’t even mention it’s 2 people until the last paragraph. Unless they have work in progress that indicates this is going to be shown to apply in larger numbers it seems naive to use such language.
  17. NelliePledge

    BABCP 50th Annual Conference: Imperial College London 20-23 July 2022

    Must be pretty nauseating for counsellors who don’t subscribe to the CBT as panacea group think
  18. NelliePledge

    Doctors’ attitudes toward specific medical conditions, Scoles, 2022 (includes ME/CFS)

    I was tempted but I couldn’t access it through the link presumably as I’m not signed up to Reddit, so my default setting of not touching Reddit with a barge pole remains in tact and I won’t bother.
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