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  1. NelliePledge

    Trial By Error: The Seventh Anniversary of My Initial Effort to Debunk the Fraudulent PACE Trial

    Just about the time I was discovering that the thing wrong with me was ME/CFS and trying to get a diagnosis. only discovered the debacle about a year later
  2. NelliePledge

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    Over 500 donors :thumbup: looking hopeful as we hit the end of the month that 100% will be achieved
  3. NelliePledge

    Tonsils, Appendixes, Gall Bladders and ME/CFS

    People of my age in the UK quite often had tonsils removed in childhood. Which is the case for me
  4. NelliePledge

    Effect of herbal cake-separated moxibustion on behavioral stress reactions and blood lactic acid level and muscular AMPK/PGC-1α signaling.. 2022 Xu

    CFS rats, yeah right, what criteria do they meet :wtf: plus all I think of when I see the title is cake made with cannabis
  5. NelliePledge

    UK:COVID-19 Post-Covid Assessment Service

    @CRG is there a link missing
  6. NelliePledge

    Norway: Article about ME seminar with security

    So dropping a coffee cup has turned into throwing a chair? Is this really the same incident? I thought the coffee cup business was discussed at the tribunal and it found there wasn’t anything of substance presented to it about harassment. Like dropping a cup a char falling or getting...
  7. NelliePledge

    Long Covid in the media and social media 2022

    This guy is a journalist for SKY news
  8. NelliePledge

    News from Doctors with ME

    It’s definitely an improvement even with my currently Covid befuddled head I could get the message :thumbup:
  9. NelliePledge

    Blog: What’s Happening When Living Systematic Reviews…Stop? by Hilda Bastian

    Maybe it’s more of a shot across the bows, those with influence in Cochrane must surely know the relevance. eventually someone who knows what’s gone on behind closed doors will spill the beans
  10. NelliePledge

    Cognitive Behavioural Therapy to Optimize Post-Operative Fracture Recovery (COPE): Protocol for a Randomized Controlled Trial, 2022, Busse et al

    At what point post surgery do they move from usual care to CBT? What usual care is the CBT actually replace oh I see it says enroll 2-12 weeks post fracture. So it’s replacing in person physio?
  11. NelliePledge

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    Yes would definitely be good to hear about these presentations, seems like they are attempting to move with the times, interesting to hear what these initiatives in different locations involve. something mentioned there about co production which I know nothing about but I think @Suffolkres has...
  12. NelliePledge

    Well-known, famous people with Covid-19 and Long Covid

    Yes highly likely a troll
  13. NelliePledge

    Covid-19 vaccination experiences

    I’ve had the flu one today just usual sore arm and usual pem from having to stand briefly in a queue and while the jab was done. Covid booster in 2 weeks
  14. NelliePledge

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    Yes me too a paper letter I had to go on their website to unsubscribe. Pretty sure I also did in previous years.
  15. NelliePledge

    The Atlantic - Long COVID Has Forced a Reckoning for One of Medicine's Most Neglected Diseases - by Ed Yong

    Some better quality coverage definitely such as Sean O’Neill in The Times. And Even the Guardian has stopped being consistently awful.
  16. NelliePledge

    UK: Blue badge blues

    Hi Sarah I’ve not done one of these although I am hoping to do so soon. I think not being able to get back to the car ought to be enough to qualify you for the blue badge. I can manage quite a lot further distance as a one off so I am thinking I would need to say something about pushing to...
  17. NelliePledge

    Long Covid in the media and social media 2022

    https://www.s4me.info/threads/visible-a-platform-designed-for-any-invisible-illness-that-benefits-from-resting-and-pacing-including-me-cfs-long-covid.23542/#post-438057 An interview about the Visible App has been moved to this thread
  18. NelliePledge

    Closed UK: DecodeME updates, was recruitment thread.

    But a lot of people with ME in the UK don’t have private health insurance or enough money (especially folks on benefits) to pay from income for genetic counselling. If people want to get private DNA testing and counselling that’s a different issue. This funding is to research ME of as many...
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