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  1. NelliePledge

    Mind Body Intervention for COVID-19 Long Haul Syndrome

    Behavioural gravy train
  2. NelliePledge

    New Zealand: 2022 Petition for the NZ government to recognise ME/CFS as a disability - deadline 29 August 2022 (people living outside NZ can sign)

    Are they suggesting ME should be specifically included on this disability certificate https://www.workandincome.govt.nz/documents/forms/disability-certificate.pdf
  3. NelliePledge

    New Zealand: 2022 Petition for the NZ government to recognise ME/CFS as a disability - deadline 29 August 2022 (people living outside NZ can sign)

    Signed:thumbup:
  4. NelliePledge

    Editorial: A research agenda for post-COVID-19 fatigue, 2022, Wessely, Knoop et al

    Research may be ignored. But If GPs are still telling people with long covid they have anxiety and or encouraging activity and if people with LC are being seen at fatigue clinics based on CBT approach, which all seems to be the case from tweets I’ve seen the treatment people receive is still...
  5. NelliePledge

    Article: Fibro Fog and ME/CFS Brain Fog

    Cherry juice for insomnia seems to be at the back of my mind
  6. NelliePledge

    Retraining and control therapy for pediatric psychogenic non-epileptic seizures (+ 1 year follow-up), Fobian et al, 2020

    Every time I see this title it makes me think of dog obedience training
  7. NelliePledge

    A systematic literature review of randomized controlled trials evaluating prognosis following treatment for adults with CFS, 2022, Chalder

    Oh goodness @BrightCandle sorry you had to go through that. It’s bad enough just reading the terrible rubbish she puts out as research but at least that’s at arms length. So we can tend to loose sight of the fact that real people like you are still being subjected to this mistreatment
  8. NelliePledge

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    “Encouraging recovery” utterly patronising
  9. NelliePledge

    Predictors of “brain fog” 1 year after COVID-19 disease, 2022, Cristillo et al

    Morning is when I feel the best :wtf: Yeah what? do you mean 1 am or 8 am? because that is two completely different situations
  10. NelliePledge

    ME Genetics Research Symposium, Edinburgh, 14th September 2022

    Excellent to see the focus on PPI continuing in this event :thumbup:
  11. NelliePledge

    UK healthcare services for people with fibromyalgia: results from two web-based national surveys (the PACFiND study), 2022, Wilson et al

    On a survey they only managed to get replies from 550 people with FM - they didn’t try very hard then.
  12. NelliePledge

    Effect on bone anabolic markers of daily cheese intake with and without vitamin K2: a randomised clinical trial, 2022, Helge Einar Lundberg

    Can’t believe they didn’t have a goat’s cheese group
  13. NelliePledge

    DecodeME - UK ME/CFS DNA study underway

    :thumbup::thumbup::thumbup::thumbup::thumbup:
  14. NelliePledge

    London Centre for Functional Medicine: Chronic fatigue

    Hi Linda Maybe worth suggesting to Russell that it would be simpler for someone from ME A folks to just check on here a couple of times a week to see what people have posted rather than people here having to duplicate efforts sending emails and clogging up their inbox. There are quite a few...
  15. NelliePledge

    Long Covid in the media and social media 2022

    Sounds like something Garner would write
  16. NelliePledge

    Long Covid in the media and social media 2022

    is the penny finally starting to drop at the Grauniad??
  17. NelliePledge

    Experiences of general practitioners explaining central sensitisation to patients with persistent physical symptoms:, 2022, den Boer et al

    Yeah mate F1 go with your gut and don’t go down that BS path
  18. NelliePledge

    EBV/HHV-6A dUTPases contribute to ME/CFS pathophysiology by enhancing TFH cell differentiation and extrafollicular activities, 2022, Cox et al

    I looked up IL 21 on Wikipedia. As a non scientist what jumped out to me was the use in immunotherapy for cancer and flu like symptoms being a side effect https://en.m.wikipedia.org/wiki/Interleukin_21 in all the time skimming through trying to get the gist at my low level of understanding over...
  19. NelliePledge

    Response Shift After CBT Targeting Severe Fatigue: Explorative Analysis of Three Randomized Controlled Trials, 2022, Müller, Knoop et al

    Yeah well my response to this type of “research” hasn’t shifted
  20. NelliePledge

    Long Covid in the media and social media 2022

    Yeah massive eye rolls from the whole ME community and wider chronic illness community
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