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Agreed. I think we should embrace the science and the evidence, while keeping a close eye on the narrative. We need to look after us.

Right: I think many of us feel this way. I think many psychs do as well. But it's the ones who do not, and perhaps even some that may have an agenda, that we have to be concerned with manipulating "biological" into something more "psych/social."

@Inara, over the years there have been a number of reports linking oscillating levels of Interleukin 6 with ME/CFS. I think a theory was early on IL-6 was low, but as the disease progressed values climbed. The hope was perhaps we had a workable biomarker. However, as I recall, a psych...

No. I'm saying drawing some correlations invite problems which by now we should be familiar with - and about which we should know better.

History. Not so much with miRNA yet, but look what they did with IL-6. It's not BPS for nothing; it seems to me that elements within that school have demonstrated a willingness to take any biological component and fold it to suit their psych purposes. I wonder, why give them a ready made...

Well, sure. I appreciate Cartesian Dualism as much as the next person, and I trust on paper so does the BPS crowd. Regardless, it is what they might do with the dichotomy between brain and mind that is troublesome. I don't find it a stretch to imagine they could use some of these abnormal brain...

Brain, mind, depression, bipolar...Why do I find myself so leery of this review?

@Helen , I also thought immediately about Lyme, but I think herxing is not exclusive to Lyme, although perhaps it is to spirochetal infections.

This is a remarkable compilation that must have taken a long time and a lot of effort. Thank you, @Valentijn .

That's it, @Scarecrow ! :thumbup: :hug:

Infection with what, @Sasha ? Did Teitelbaum specify which pathogen he suspects/suspected? If memory serves me. he used to promote an acronym protocol when he worked out of NYC, but now he is out of Hawaii? I always thought he was a little, um, optimistic.

Recovery?

This really hits straight at one of the main issues with characterizing ME/CFS, i.e., what is causal vs what is a downstream effect. That we don't know yet is frustrating, especially for those of us who are long term sick. Like @Justy , I have immunological markers like low NK cell function...

For many there would be a need to first determine if you are hypo vs hyperkalemic. Not everyone can do this, though. My wife cannot, so we do not know which side she should be erring on, ie, supplementing potassium, or avoiding it. But for many, knowing whether to supplement or avoid becomes a...

Sorry, @Jenny TipsforME , I am on line at the moment, so I hope you don't mind me answering a question directed at you. Yes, @Inara , some forms of PP can be determined through genetic testing, while others cannot. Some of those that cannot be uncovered thru genetic testing can be figured out...

It might. Every PP patient is different, just like pwME. Most - but not all - episodes are triggered by something. For my wife, the trigger is sleep or prolonged rest - how's that for irony?

Great find, @Jenny TipsforME . I see the authors focused on sodium imbalances in the first study. The second study with Unger and Vernon seems to suggest in the abstract that some ion channelopathy (or at least ion irregularities?) might be inferred? I wonder why these were not followed up...

@Jenny TipsforME , there are not a whole lot of competent PP experts out there, and even less with any budget. Do you know when the last ATS research by the NIH was performed? YEARS ago. But I agree - that's likely the way to go. That private email thing that Periodic Paralysis International...

@Marco , PP can be inherited or acquired, from what I understand. Symptoms can appear early in life or later, even when inherited. My wife was born with certain PP characteristics, but most of the more serious ones appeared after she was an adult. Also, even though it is referred to as Periodic...

Most neurologists don't know anything about PP even though it falls within their domain. How many neurologists are competent about ME/CFS? The only "expert" I can think of that is a neurologist would be Natelson. Even when it comes to POTS, most of us get referred to an electrophysiologist...