Search results

  1. D

    New Scientist: Chronic Lyme disease may be a misdiagnosis of chronic fatigue syndrome

    I must confess this study always struck me as a bit over-the-top obvious. Kinda cool at first glance, but once you get past who the authors are (no small feat), and really read the study, all it basically says is - and I am paraphrasing liberally - we can tell the difference between sick people...
  2. D

    New Scientist: Chronic Lyme disease may be a misdiagnosis of chronic fatigue syndrome

    Not wholly accurate, but I agree with the gist. Some people know a campaign of misinformation and mischaracterization has been going on against Lyme patients who are not cured. Indeed, some stalwart anti-Lyme peeps have gone so far as to declare - and propagandize - that chronic Lyme patients by...
  3. D

    New Scientist: Chronic Lyme disease may be a misdiagnosis of chronic fatigue syndrome

    Pretend it's not a thing and embrace repackaged imported propaganda to that end? :)
  4. D

    New Scientist: Chronic Lyme disease may be a misdiagnosis of chronic fatigue syndrome

    This article is pretty much just downright appalling, imo, but this sentence stands out: "Lyme disease can occasionally cause long-lasting symptoms...but this is rare." Ten - 20 percent of 400,000 cases annually in the US alone, that do not improve with mainstream treatment protocol, is far...
  5. D

    Differentiating Psychosomatic, Somatopsychic, Multisystem Illnesses and Medical Uncertainty, 2019, Bransfield, Friedman

    Friedman you all know. Bransfield is a former President of ILADS, so he is fairly prominent in the Lyme community, at least on the psych side. He is sort of like B Fallon of Columbia U -also a psych - in that regard.
  6. D

    SPECT scans: can they be used to diagnose ME/CFS?

    SPECT scans can be used to demonstrate blood flow in organs, including the brain. It brings to bear 3D imaging of organs functioning. It has been used diagnostically back in 90's but fell out of favor - why, I'm not sure. I think it should be used at least complementary. Personally, I think the...
  7. D

    Typical Lyme Story, Atypical Victim

    I am not having a particularly good brain day, so forgive me if I am wrong, but I want to say that researchers somewhere in Europe tied the rash into what eventually was labeled Lyme many years before. Many years. I'm not talking about ACA either, I'm talking EM. I could be misremembering...
  8. D

    Typical Lyme Story, Atypical Victim

    When you say ECM you are talking about Erythema Migrans rash, yes, @chrisb ? !983 was a watershed year for Lyme papers, and not in a good way. So, numbers for the bulls-eye rash are all over the place. It was considered so prevalent and specific to Lyme that to this day the mere appearance of...
  9. D

    Brain inflammation

    Lot of empty vessels out there. A lot. As far as I can tell, they float just fine. But hey, I know all too well what passes as opinion - or even dogma - in some areas can be crap, so I hear your concerns.
  10. D

    Brain inflammation

    Interesting location. (@chrisb) I think often times when it comes to brain inflammation people conflate the appearances of acute brain inflammation, like in encephalitis, with brain inflammation in chronic conditions which I suspect is less overt. I think this holds true with many commonly...
  11. D

    Brain inflammation

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3887148/ https://parkinsonsnewstoday.com/2019/03/11/parkinsons-study-new-repurposed-therapies-brain-inflammation/ I can keep posting additional links if you wish.
  12. D

    Functional Cognitive Disorder: Diagnostic Challenges and Future Directions, 2019, Pennington et al

    They don't have the tools to measure our cognitive difficulties. There is something frightening when a group of people have the ability to take patients' reality and fictionalize it simply because they cannot accurately measure or identify it. I pity these people if comprehensive post-mortem...
  13. D

    Brain inflammation

    Diseases like Alzheimer's and Parkinson's are now considered inflammatory diseases of the brain. I suspect eventually so too will ME/CFS
  14. D

    SMC: Advice for Researchers Experiencing Harassment

    Functional harassment.
  15. D

    Anyone Treating the Eight Herpes Viruses with Antivirals?

    @pone , I would be interested in pursuing this cortex atrophy possibility a little further. Do you have any references you can provide a link to? If so, many thanks in advance.
  16. D

    Article in Bella magazine - 'Please Believe ME' 26 Sep 2019

    Ma Belle Amie. It was a one-hit wonder kind of thing in the late 60's, maybe early 70's. MCI likely is why I could not figure out that this tune would be way to old for most members to know. :)
  17. D

    Article in Bella magazine - 'Please Believe ME' 26 Sep 2019

    My Bella ME! You were a child of the sun And the sky and the deep blue sea. Good luck getting that tune out of your head. :)
  18. D

    Anyone Treating the Eight Herpes Viruses with Antivirals?

    I don't know that. I don't remember the specifics of every study of theirs I read. But I suspect it since I do seem to recall Lipkin admonishing ME/CFS researchers not to look at tissue, or something to that end. With my memory, maybe I am misremembering, but it was striking at the time, so I...
  19. D

    Anyone Treating the Eight Herpes Viruses with Antivirals?

    Bet they were looking in the wrong places.
Back
Top Bottom