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Is there a list of the Guideline members for the Long COVID GDL?

Not sure if this has been posted already. https://www.principletrial.org It's a trial run by Oxford Uni, but not including BPS. It is for over 65s (or over 50 with underlying health condition) who have COVID to test one of two antibiotics v Usual care. They are Azithromycin and Doxycycline...

So, 7 people interviewed. Conclusion, they need OT for "more effective occupational adaptation". NO, they need a cure so the Euros should go on biomedical research!

@Caroline Struthers may know about this. Though as Hutan states it it comes from a psych base.

Hi @m.patriarca thanks for the reference to POTS and welcome to the forum. In one of the parents' Facebook groups I am on, it seems that some of the youngsters diagnosed with ME respons and improve with POTS medications, and can tolerate soem exercises.

They've used your avatar @NelliePledge -see slide 5

Moved post Medscape article: https://reference.medscape.com/viewarticle/937400 "Beyond the long-term physical effects, the lasting psychological impact of COVID-19 has been given a name: coronaphobia. Although the term is a catch-all for the anxieties and concerns experienced in reaction to...

So, parents can act rationally re their children's illness, when finding informed information via the internet. Wow! "Keywords =cognitive%20behavioural%20model']cognitive behavioural model =health%20anxiety']health anxiety =internet%20reassurance%20seeking']internet reassurance seeking...

"Broadcaster vs. medic Doctors can't ignore their patients' prejudices or advocate therapies that patients don't want. Nor can broadcasters survive by making programmes that people don't want to watch or listen to. Compromises have to be made by both." Seems Geoff Watts is oblivious to the...

So, no interest in Patient Public Involvement here then!

Another Crawley et al. Do wish they'd stop going on about "treatment". In fact I wish they'd stop all they are doing in ME/CFS.

Presumably they are monitoring blood oxygen levels as well, which tend to be lower i Cf due to lung pathology - "sticky mucus".

It uses results from the Great British Intelligence Test https://www.bbc.co.uk/programmes/articles/5tFHwWMgg9VbrHT9kvGlFqd/the-great-british-intelligence-test

I've used cognitive impairment when talking to people about my daughter's issues. Or sometimes impaired cognitive processing. We need something short, that doesn't allow BPSers to reduce it to poor concentration/memory issues. I agree that it is a huge issue. I think it came out top of a poll...

Crawley's research and position as expert in CFS is still doing tremendous harm to youngsters and their parents. Not only increasing activity. Threatening them with Social Services if they use their phones "too much". Too many are being threatened with FII.

FITNET-NHS Study Q. What level of funding has been provided for this study? A. The HTA as agreed to fund this study at a cost of £994,430. Looks like they are planning to do more "trials" on the Lightning Process as well...

Tragically @Medfeb, many of us in the UK are not at all surprised at this sort of garbage being spouted by these people. The draft NICE GDL for ME/CFS come out on 10 Nov for 6 weeks consultation/feedback. Most/many ME groups will be responding to NICE. The Psych and friends' view of ME in UK...

This is a really good program with input from the 3 UK docs. Is there a transcript for all of it? @Colin

I finished in 1980, so no. I had such a great time there and really enjoyed studying Physiology and Biochemistry.

I did wonder if reposting several of your tweets a few months ago @Caroline Struthers was the reason I am also blocked by Trish G!! I hardly ever tweet anything original, just retweet others' comments.